Guai-SupportTM
Group
Information & Support for Fibromyalgia
Sal-FreeTM Centre Salicylate Information.
Includes data bases of
Sal-FreeTM Cosmetics, Supplements & Helpful Items.
Established in October 1997
as a
non-profit enterprise
the original, international Guai-Support Network offers access to
'self-help' health education and support. Discussion revolves
around all renditions of the guaifenesin treatment for FMS, CFS, CFIDS,
ME, IBS, EDS, IC, MCS, NMH, RLS, VV, MVP, MPS under the GUAI topic.
Many other health issues such as HG,
IR, reflux, Thyroid, Toxicity & reference to other theories & treatments
for
FMS/Cfids are welcome without a topic keyword. Members have access to extensive archives.
If you appreciate the full spectrum
of services I provide, both personally and through my management of the GG
network, and want to help keep GG on-line please
"Sal-FreeTM"
means an ingredient or product does
not contain any salicylates. It is a reserved
term. * A trademark of Guai-Support.
Warning:
ReadAbout Salicylates
before purchasing products NOT listed in these data bases.
For information, click on the arrows to open
these drop-down boxes.
Not a member yet? There are 2 ways to
join Guai-Support & 2 ways to manage your account (including signing off &
setting NOMail). Web access at the GG archives interface
or via e-mail commands. If you wish to join, leave or manage your account
during the archive downtime, you can do so via e-mail commands instead. Some people prefer the e-mail option anyway as it can be formulated
so that admin can track the status of your commands if you are having
difficulties.
There are no reported difficulties involved with the 3
following most used links, which are in a quick e-mailmethod.
Clicking on these links will open most email programs
and address your message (be sure it
sends using the address you are signed up to Guai-Support with)
- do not include a subject line or text in the body of any of these options:
(An alternate option to
unsubscribing is to set NOMail to retain access to
archives and post/reply to messages but not receive mail into your mail box -
see directions below) To get Admin Help,
click
here
If your email program doesn't open automatically
when clicking on the above links, you can follow the directions below for email
or web interface.
(Once you've clicked on this link you will be
able to do all the above. Members will also be able to link to other pages
(see top left of page) such as the Guai-support Group archives interface, where members can check previous
discussions & read their mail after setting NOMail. You can also link
to Subscriber's Corner where you can see all the
lists you are subscribed to, or all the public lists on the server.
The archives site is closed daily for
Maintenance at midnight USA EST for approximately 45 minutes.)
Check the options that suit you,
i.e., digest, regular mail and choose your topics. Subscribers are set to
all the topics by default. You can opt out of any topic by following the link
in the
posting guide. When you've
checked all the options you want, check 'Join the List'..
Confirmation:
To confirm your identity and prevent third
parties from subscribing you to the list against your will, an e-mail message
with a confirmation code will be sent to the address you specify in the form.
Simply wait for this message to arrive, then follow the instructions to confirm
the operation.
Members Changing Options: If you have a listserv password
you can click on highlighted portion of:
"Alternatively,
login
with your LISTSERV password (if
you have one) and update your subscription interactively, without e-mail
confirmation." and then check the appropriate boxes
DIGest
(1 daily message containing all the messages sent to GG that day)
Also, you must access them from the address
you are signed to the list under. Ditto for signing off and changing
options.
Check one of the digest versions boxes (html doesn't work
for everyone), then click on the "Update options" button (this delivers only
one mail message daily into your mail box, which contains all the messages for
that day).
You can read at the archives via searches for specific interest or you can
choose to read a particular week's messages and sort them into a preferred
order, i.e. by 'author', 'posted date', 'topic', 'chronological order' or 'most
recent first'.
Not all browsers that support HTML
support the HTML Digest format:
(which is built according to the RFC for HTML Digests). You may also have
an e-mail program that doesn't support HTML Digests. Unfortunately it takes trial
and error to figure out which form of digest works best for you.
The HTML MIME digest works well however.
You could attempt these fixes if it isn't
working for you;
The default header for the mailing list is SUBJECTHDR. Try changing it to
FULLHDR.
MS mail products are known to not
comply with the HTML DIGest format. Try Netscape Communicator
Mailer.
NOMail(&
read the archives at your leisure. This will retain your ability to
access & read mail in the archives as well as send and reply to list mail without receiving mail into your mail box).
Check the box "Mail delivery disabled temporarily" (under
the Miscellaneous heading), then click on the "Update options" button
Add or Remove Topics
Set topics
to those you prefer (NOT available in DIGest mode)
Scroll down to the topics heading and check or un-check
your choices, then click on the "Update options" button.
To Leave Guai-Support
Click on the box "Leave the list"
No need to sign off & sign
on again to change name or address:
To change your name simply insert your new name
in the space provided and
LISTSERV will make the change. To change your address simply insert your new address
in the space provided and
LISTSERV will make the change (this will retain your current settings).
Query Your Account
Query all aspects of your account at the archives
interface by inserting your name or e-mail address. If you don't remember
your e-mail address try inserting all those you normally use or which you've used
in the past. If you still can't find the e-mail address you are subscribed
under please
e-mail our posting mentor. Outline
your problem to her, give her the name you signed up under and she will
do her best to find your e-mail account. Check your new options
(Topics, NOmail, etc) or change your address (whatever it is you want to do) and
then press the button labeled 'Update
Options'.
Leave the subject lines blank or
add something meaningful to you.
In the body of the email type the appropriate
command
in one line only:
(copy/paste
commands to ensure they are exact). Do not put part of a command on one
line and the rest on another. You can put as many commands in one
email to the LISTSERV as you wish so long as they are all complete
commands and line up at the left margin, down the page, one after another.
E-mail
commandsare auto computer tasks and as such superfluous
data MAY invalidate commands.
If
your subscription seems to not to be progressing, send another after turning
off auto signatures and don't say 'thank
you' or anything
else in the body of the e-mail.
The use of upper case here is just
to define the commands and settings in the examples but not necessary for you to
use either in common settings sent
to listserv or in subject lines when
you post messages to the list.
Difficulties:
If you have any difficulties with commands being activated please Insert
our posting mentor's e-mail address, i.e., wendy.howard@gmail.com
into the CC field of your subsequent attempts. Do not do this when setting
passwords.
To temporarily stop all
e-mail while on vacations or needing a rest from mail etc.
Please set yourself to "NOMail" if/before you invoke your auto reply feature. Letting people know that you are "out of the office" or will not be responding
to e-mail messages is great, however, when every message sent to you sends your "auto
reply" message back to the list, that creates a problem.
SET GUAI-SUPPORT NOMail
Note: Due to network delays, you may still receive mail after you have sent
commands because mail that has been queued to be sent to you may not have
reached you yet.
To begin receiving mail again
SET GUAI-SUPPORT MAIL
To begin receiving in digest form
(causes the subscriber to receive one posting per digest cycle [typically daily]
rather than individual messages as they are processed by ListServ). Subscribers cannot restrict which topics they receive in DIGest mode. SET GUAI-SUPPORT DIGest
To stop digest and receive individual e-mails
again
You will be able to reset your topic preferences.
SET GUAI-SUPPORT NODIGest
To receive just the index of e-mails
This invokes on e-mail message per digest
cycle containing only an index of subject topics for all messages during that
cycle SET GUAI-SUPPORT INDex
To turn off index and receive individual e-mails
again
SET GUAI-SUPPORT NOINDex
Set topics to your preference
You can add or delete topics - Use plus (+) and minus (-) signs.
Please be careful to PUT SPACES WHERE THEY BELONG in commands i.e.: a space
after each TKW but none after the symbols and before the TKW. Use the topic
setting examples here as templates.
Topicname must be replaced with the actual
topic keyword.
To delete a Topic you are presently receiving, send the command:
SET GUAI-SUPPORT TOPICS: -Topicname
To add a Topic you are not
presently receiving, send the command:
SET GUAI-SUPPORT TOPICS: +Topicname
More than one topic can be added
and/or deleted in a single command: SET GUAI-SUPPORT TOPICS: +Topic1
+Topic2
(The first topic keyword must have the plus sign to show that this is an
addition, and not a replacement.)
To leave GUAI-SUPPORT permanently
You *must* SIGNOFF from the same address you subscribed with.
Due to network delays, you may still receive some mail after you have sent this command
because mail that has been queued to be sent to you may not have reached you yet. SIGNOFF GUAI-SUPPORT
If you don't remember
your e-mail address try inserting all those you normally use or which you've used
in the past. If you still can't find the e-mail address you are subscribed
under please
e-mail our posting mentor. Outline
your problem to her, give her the name you signed up under and she will
do her best to find your e-mail account.
To change your email address and retain
settings
This form of the CHANGE command
is sent from the old address by any subscriber and results in a
cookie being sent to the new address. This cookie MUST be confirmed by the new
address, exactly as it was entered, or the command will fail. Note that this
assumes that the user still has login access to both addresses, or at least the
ability to send mail from the old address.
CHANGE GUAI-SUPPORT NEWADDRESS
(replace
newaddress
with YOUR new address)
You will receive a confirmation request to your new address.
Follow it's instructions. This will retain your settings.
If you're unable to write from your old email address
subscribe from your new address. You will have to re-set your preferred
settings again and then e-mail
wendy.howard@gmail.com so
your old address can
be deleted.
To change the name associated with your
current email address and retain settings
SUBSCRIBE GUAI-SUPPORT NEWFIRSTNAME
NEWLASTNAME
(newfirstname IS your the new first
name now associated with this email address and newlastname IS the new last name
now associated with this email address).
To set a new password, or change an existing
password, so you can access the archives:
PW REP YOURPASSWORD
(where "YOURPASSWORD" is the word of your choice, at least six alpha
and/or numeric characters long.)
You
will get two automatic responses to this email. One will echo the subject
line you used (if any), and in the body will say:
For security reasons, you will now be required to confirm the execution of
your command. Instructions are being sent to you under separate cover. This
step is necessary to prevent malicious users from registering a password in
your name.
You do not need to
do anything in response to this email. The other will have a subject line
containing "Command confirmation request..." and this one does require a
response. The easiest & most reliable, way to
respond to this is to click on the "Reply" button, type OK at the beginning of
the first line in the body of the email, hit your return button on your keyboard
and then send.
We've
been noticing an increase in the use of rigorous anti-spam programs, in which
emails sent to the user of the program must confirm/verify their validity (by a
simple response) before the email is delivered to its destination. This is
perfectly fine for anyone to choose to use.
However, it is up to the user of that software to ensure that they can
communicate with the services to which they sign themselves up to.
In the case
of membership to this list, it is vital that everyone can receive emails from
these addresses:
Any automatic request for verification sent to these addresses will not be acted
upon, so if you use such software to help protect your computer, please take the
necessary steps to ensure mail from all five of the addresses listed above will
be received without impediment.
Should you choose to write to the list, with such anti-spam software running on
your computer, please add a note to your signature to indicate this, and that
all replies should be directed to the list rather than privately.
If you have any questions about this issue, please do not hesitate to click here to send an e-mail with the details of your concern and we
will be here to help you. Ensure that your computer will accept email from the
above addresses first, or you will not receive a reply.
See if this section covers your concerns and then if not please access Wendy, our Posting Mentor,
for help. If she cannot answer your question she will ask for my
assistance. Before writing to Wendy please see our Antispam item above.
1. Query your
subscription by sending an
email to:
If your
message to the list returns a message stating 'you are not authorized to send mail from
your <whateveraddyyousentitfrom@whichdomain.com> addy' please
query
other
addresses you may be subscribed under. You can line any number up under each
other in the one e-mail to server. You can also query at the archives
interface as per above.
If you find yourself no longer receiving messages
you might have been set to nomail or removed from the list due to omitting to
set
NOMAIL
when away
and/or leaving an 'away from
office' type auto response.
check your mailbox filters
(some mailbox filters detect mass
mailings, such as those from the Guai-Support list and see it as
SPAM then reject
it. Add the GG list, to your e-mail approved list and your filter or mailbox
protector
will let the mail come through)
maybe your ISP has implemented some new spam blocking and is now filtering out messages
that have a null return path. The quick test for this condition is to send one message to:
LISTSERV@COMMUNITY.LSOFT.COM
with the 2 line command
THANKS
INFO GUAI-SUPPORT
You should get 2 separate responses back.
YOU'RE WELCOME to the first
and information regarding Guai-Support to the
2nd.
NOT getting a response from the 2nd command (i.e.,INFO GUAI-SUPPORT)
always means the problem is with the member's service and is a strong
indication of SPAM blocking technology. If you get 2 responses consistently, then it
is probably not a blocking problem.
Give the server at least a half hour to respond in case things are moving slowly.
3. If it looks as
though the LISTSERV may be down, i.e.
you are not receiving list mail but you are receiving other mail, do not take a
chance on clogging the system by sending "Where is everyone?" or "Is the system
down?" messages through the lists.
If the system is up, you should get the polite response:
YOU'RE WELCOME
It also indicates how slow/fast the system is
working. If the system is down, you'll get no response. Please wait patiently
for mail to resume.
As per above, if you are not receiving other mail it can also indicate
that your own ISP is down or that the free email service you are using has a
problem with mailing list configuration. You can talk to your ISP and see if you
can sort out the problem.
4. If you think your mail isn't making it
to the list:
check the current month's mail in the archives.
If it is not there do a
QUERY on your account
as per above.
These days, some web-based email
services (e.g., Gmail, Yahoo & there are sure to be others following soon) do
not forward a copy of your own post to you when you post, regardless of the
settings you may have at the list.
It happens with other lists besides this one, using a range of different list
programs. It is the email service, not the list software, and likely not
something that is going to be changed in a hurry. One can get used to not seeing
copies of their own posts arrive in their mail box but there are some things you
can do if you want to know that your post went through okay.
There is a setting you can turn on in your membership settings so that you're
sent an email to tell you when your post has been distributed - each and every
time you post. It's located under 'Acknowledgements [ACK ... Norepro]. the
ACK is for "acknowledge").
(If you want to know more
about this or other settings, please go to the
L-Soft Subscriber's Manual
and go straight to page 19.)
Wait for
replies to be posted, either to the list or directly to you privately. That's a
sure sign your post was received.
If you are on review, please remember that there may be a delay between sending
your post, and Tesa or Wendy (depending on who is on duty at the time) taking a
look at it, so please have a little patience.
If you have any questions or difficulties with this, please write to
Wendy privately with
the details so she can help you.
5. If your e-mail to the List receives a rejection notice:
Not clearing your mailbox and files on a regular basis can trigger a very unpleasant
string of events. Please ensure your mailbox is not full. Set yourself to NOMail if you are going to be away from your computer to avoid being set to NOMail
by admin; this ensures that we don't have rejected mail filling our mailboxes.
Auto-delete for bounced mail is set to 15 days, so if you don't sort out your mail
problems in that time you will be removed by the listserv programming. This is not a punishment. It's
just necessary to make work more manageable and is used by all ListOwners.
You can re-subscribe.
If you're having issues with
whatever one you're using perhaps you could try these free email
services which were recommended to me. I have no personal experience with
them however but they might be worth a trial:
Gmail,
Yahoo,
Hotmail,
and
AIM
are free web-based email services. All provide free Instant Messaging
services, and provide a POP service which allows emails to be downloaded to
your own computer if you wish (but not all offer this for free).
This one doesn't insert advertising (it can be down very occasionally for testing
upgrades). It's Novell's showcase server, running the latest of their
business-class e-mail solutions. The "WebAccess" interface is especially clean
and fast. They offer a lot larger mailboxes (10MB vs 2MB at yahoo and
hotmail) with pop3/imap access and there are no advertisements on either the
website or tagged to your e-mails.
http://www.myrealbox.com
Don't open e-mail attachments. Use virus protection programs with e-mail
scanning or use one of the free virus scanning sites.
Please don't send virus reports
to the mailing list, or write that
you've just received a virus. Check them out at some of the sites listed
in our virus info page
first. If they are legitimate and you are concerned please send Wendy
the name of the virus and, when deemed necessary, she will send appropriate
reports to the GG list. Wendy has created the virus help page on this web
site
SPAM
Policy
Please add Guai-Support and Administrative
Helpers to your Anti-spam programming or you will not receive mailing list mail
or responses from admin.
A ListServ feature called 'Probe' has been implemented. You will receive
the 'probe' message (every 93 days). It doubles as a List Guide providing information you
may appreciate.
The "Probe" option makes subscription renewal passive rather than reactive; no
"CONFIRM listname" response is needed from you.
How
the Mailing List Works, Click
here
(An alternate option is to set
NOMail to retain access to archives but not receive mail -
click here
for directions &
more account options)
Guai-SupportTM Archives
Members can check previous
discussions & read their mail
here after setting NOMail.
-----ooooo-----
Closed daily for M'ce midnight
EST (US) approx. 45 mins downtime
Help with GG Archives New members will receive
this Membership Welcome
(Book) by
Esther and Jerry Hicks
This book presents the powerful basics of the original Teachings of Abraham.
Within these pages, you'll learn how all things, wanted and unwanted, are
brought to you by this most powerful law of the universe, the Law of
Attraction. (that which is like unto itself is drawn)
"This riveting book can awaken humanity. It
reveals the simple power of four phrases to transform your life. It's all based
in love by an author spreading love. You should get ten copies of it----one for
you and nine to give away. It's that good."
---- Debbie Ford, New York Times bestselling author of The Dark Side of the
Light Chasers
After 13 years of illness, some good
things are happening, and I'm finally on my way to being totally well. Books
that set me on this path are:
Ri's Story - from "Recovery from CFS, 50 Personal Stories" by Alexandra Barton
AND Zero Limits - Dr. Hew Len
and Joe Vitale
DVD - Understanding MMS:
Conversations with Jim Humble A feature-length documentary on the origin,
science, and proper use of the MMS protocol to disinfect the waters of the
human body with chlorine dioxide. Produced and directed by Adam Abraham.
By Dr Gregory K. Penniston
(The re-titled new edition to The Guaifenesin Guide)
A unique book that gives sufferers and their
families clear explanations and practical information on every type of treatment
for these distressing and hard to manage disorders. It dispels the
misconceptions, that lead some people to dismiss these conditions, with
thoughtful explanations and reasoning. This book gives emphasis to eliminating
the conditions by addressing their 'cause', with a commonly used
'over-the-counter' medication, guaifenesin and provides detailed, easy-to-follow
guidelines.
Parting the Fog" is a candid,
first person account of what it is like to walk in the shoes of someone
suffering from fibromyalgia/chronic fatigue syndrome. It relays the
seriousness of this condition in an easy-to-read manner, while employing
humor and focusing on hope.
Another great Book from our GG Member Sue Jones!
If you are a fan of "Parting the Fog", you won't
want to miss this book. Although it isn't specific to fibro, you WILL find
chapters you can closely relate to, since many topics are dealt with. Some
of the poems may make you cry, others make you laugh, and still others
trigger a thought or give you greater insight. Whichever the case, you won't
be left unaffected.
In Take My Hand, Audrey Revell (a
long time member of GG) paints a vivid and moving picture of the life and
indomitable spirit of her daughter Janis, an exceptionally talented musician and
composer despite having lost her sight as a child together with progressive
hearing loss.
Procedures to acquire free drugs for needy clients. There are many many
resources here that perhaps you can either share with your doctors willing
to go the extra few steps to help, or friends who need financial assistance:
Volunteers
in Health Care Web Site Flyercan be printed out and given
to your doctor. S/he can then print it out for his or her FMS
patients, and their waiting room. You can print & pass out copies as
you encounter people interested in the protocol & the Guai-Support group.
World
Time Server Find the right time to
call
friends
Here
or
Here
Site Best Viewed This site is best
viewed
with Microsoft Internet
Explorer' with 'VIEW'
'text' set to 'medium'. If
necessary adjust the text
size via the 'View' menu.
To print out any pages from this site
without the extraneous heading/link panels/footer, highlight/select the text
area you want printed & select 'print' from your browser 'file' menu. the
option of printing 'selection'. Be careful to set it up first rather
than just choosing print from a tool bar icon.
The
information on this web site comes from many sources, including: Dr. R. Paul
St. Amand, his assistant Claudia Marek, members past & present of the
Guai-Support Group Mailing list and others consulted on various topics. It
is not meant to be medical advice, but rather helpful hints on this journey.
Please consult with your Health Care Professional.
The information on this site is the property of the Guai-Support ListOwner Tesa Marcon:
vashtii@optusnet.com.au (& various authors). If you wish to publish anything from this site, or use the mailing list to gather information for same, please request her permission.
