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Guai Groups
On & off-line
Revised: 5 October,
2008
---Online---
GUAI-SUPPORT offers online support and information for
people with fibromyalgia who are using guaifenesin.
Subscribe to
the Guai-Support mailing list
---Guaifenesin Groups Meet---
Australia
Western Australia
Perth
Group started in November 99.
Perth Guai Group is now a more casual gathering of FMers with no regular formal
monthly meetings at the West Stirling Neighbourhood House- more just a luncheon here and
there. The formal meetings were putting too much pressure on some of the members and
therefore they have opted for something more relaxed. For date and time of
next lunch/meeting please contact Verona by
email.
Canada
Alberta
Calgary
Guai Groupies meeting:
Please email
Nicky at
racegirl@telusplanet.net for meeting info and directions.
The next meeting will be held on Tuesday, July 8, at 7:00pm at the home of one
of our Guai'ers, Margaret.
Our schedule for the rest of the year is:
Tuesday, August 12, 7:00pm
Tuesday, September 9, 7:00pm
Tuesday, October 14, 7:00pm
Tuesday, November 11, 7:00pm
Tuesday, December 9, 7:00pm
If you are currently following the protocol, please join us!!! Email
me (Nicky)
for address and directions.
Ontario
Combermere
Julie Levy, Fibronorth, P.O. Box 270, 750 Tamarack Rd., Combermere, Ontario, Canada K0JIL0,
Telephone: 877-HELPS FM (877-435-7736)
UK
Discussion group for UK based FMS
(Fibromyalgia Syndrome) sufferers who are on the Guaifenesin Protocol or who are
considering it.
The UK-FMS-GUAI Website' is located at:
http://www.geocities.com/ukfmsguai
United States of America
National Fibromyalgia Support Group Information
Arizona
Arkansas
California
Delaware
Florida
Hawaii
Illinois
Indiana
Minneapolis
Minnesota
New Mexico
New York
Pennsylvania
Washington
Arizona
Phoenix
The February meeting of the
Phoenix Arizona Area Guai Group will be
Saturday, Feb. 8th, 1:30 pm at 3814 E. Mallory St., Mesa. Those new to the guai
protocol should arrive at 1:00 pm for an introductory video
presentation. An experienced mapper will be in attendance who has offered the
group a special rate of $25 per map.
If you wish to have a mapping done, have questions or need directions to the
meeting location please call 480-832-5733 or e-mail Brenda
brendafrandsen@cox.net . We will
also have a speaker who will be discussing "Salicylates" in relation to the guai
protocol.
Experienced guai'ers should arrive at 1:30
PM.
The location is 3814 E. Mallory St., Mesa.
October 12 - Guai 101
Tucson
85710
In-office Guaifenesin Support Groups are held twice a week- the first and third
Tuesday of each month, from 6:00 to 7:00 p.m. and are led by Dr. Penniston.
All ages are welcome, whether on guai or just wanting to learn about it.
They will be happy to help you check your products at another time. To have this
arranged, please call to set up a time.
Their office is located at 6563 E. 22nd
Street.
Click here for map.
Or feel free to
click
here to contact
Robyn
Arkansas
Sherwood
Guaifenesin Support Group,
starting July 8, 1999, in the Counsel Room of the Sherwood Police
and Courts Blds. at 1 p.m., the second Thursday of each month. For more information,
contact Valarie Garland at 501-835-2513.
California
San Diego
The San Diego Fibromyalgia Hope and Recovery Group meets the 3rd Saturday of
each month in Mission Valley. The group is lead by a RN who has FMS/CFS. The group mission
is to provide education, support, self-empowerment and fun for those with this
illness and for their families and significant others. Loved ones are
welcome guests, please encourage them to attend.
Contact
Janis for meeting information at, Ph: 619-216-9661 or
e-mail at
janis_@cox.net
Delaware
Eastern Shore Maryland, Southeastern PA
We meet the first Saturday of the month from October thru May from 1:30-3:00
p.m.
(except certain holidays) at the Grace Episcopal Church, 4900 Concord Pike
(Route 202), Wilmington (across from the Concord Mall).
Members are composed of people from Delaware, Pennsylvania, Maryland & Southern
New Jersey.
For more information, contact:
fmsrecovery@yahoo.com
or call 1-302-834-4063 Mon-Fri between 9 a.m. and 5 p.m.
Meeting schedule, directions & further information:
http://www.fibromyalgia-recovery.org/Directions.htm
Florida
Dade City
Meets the first Thursday of each month at
7:00 P.M.
East Pasco Medical Center, US. Hwy 301 Zephyrhills, FL
Lots of guai information and info for mapping
Please contact Jean Semeraro at (352) 523-2570
or email at jean615@webtv.net
Miami
Fibromyalgia support group in the
greater Miami area.
Contact Micki via:
Email:
areamicki@lewis.org
or
Telephone: 305-255-7955.
Hawaii
Kauai
Meets the second and fourth Saturday of each month
at 10:00am to noon, followed by lunch and maybe a swim in the pool. Contact Miki Kaipaka at
Kaipaka@aol.com
or
(808) 245-9202
Oahu
We have been working
closely with Miki Kaipaka since
iFOG (informed Fibromyalgics on Guai) started in April of this year.
40
to 50 people meet once a month, normally on a Saturday but no set Saturday
per month due to my work schedule. Anyone interested can contact me,
Annette, at:
email address buckwun@aol.com
Phone: (808) 677-8770
I keep those interested on my
regular mailing list and send out a notice ahead of meeting time.
Illinios
Chicago
Meetings are held at the Rolling
Meadows Library
3110 Martin Lane, Rolling Meadows, IL 60008.
The first meeting is Tuesday, March 18th from 7:00 PM -8:30 PM in the board
room. Future meetings will be the last Tuesday of the month in the
community room from 7:00 - 8:00 PM.
For more information contact Jody at
chicagoguaigroup@yahoo.com
Swansea
Metro Guai Group meets once a month on a Sunday
evening from 5:30 p.m. - ?
We have yet to have a short meeting. The last one went for over 3 1/2
hours! They are wonderful and so uplifting. We draw people from the whole metro area
including St. Louis, and the Ilinois side of the river (where we meet)
The place is Massage & Bodyworks ( we use their meeting room)
#1 Emerald Terrace, Swansea, IL
phone no. 1-618-233-9886
It is about 3.5 miles South from Jct. Hwy. 159 and I-64
(St. Clair Square)
Personal contact - Sandy mphillips@ezl.com
Indiana
Evansville
The Evansville support group will meet the first Sunday of the following months:
Dec. '3, Feb. '04; April, '04; June, '04; Aug., '04; Oct. '04; and Dec. '04.
Time: from 2:00- 4:00 pm.
Place: Room 2, St. Mary's Medical Center on Washington .
Mapper usually available at meetings however perhaps not the December one due to
accident.
If you have any questions, please contact
Sr. Joanne
privately.
MiamiMinneapolis
Minneapolis
Meet the last Tuesday of every month at 7:00 - 9:00PM
Berean Evangelical Free Church 6625 Humboldt Ave North, Brooklyn Center, MN 55430. We welcome new people!! Those of you
who are on the protocol or those that just have questions and are interested in finding
out more about the protocol. We give you a welcome packet full of information, we show Dr.
St. Amands video, have his book available to purchase, and mappers to do your first map if
interested for a fee.
For more information please contact Renee 612-786-2335 or Lynn 612-755-2220.
Minnesota
Moorhead
Red River Guaifenesin Education
Group:
Guaifenesin Group welcomes guaifenesin users in the Fargo, North Dakota-Moorhead,
Minnesota area.
Day: Third Monday of each month
Time: 7-8pm
Place: Voyager School, Room 206
1330 8th Ave. North
Moorhead, MN
Map
of north Moorhead
Map of Voyager School
Please direct questions about the group to Meredith at Red River
Spine Associates, (701) 280-0057
Offering education and encouragement for people using guaifenesin to recover from
fibromyalgia or myofascial pain. Beginning the guaifenesin protocol can be a daunting
experience. You're in pain; you can't think straight; you're tired all the time, and your
doctor hands you 70 pages to read about your new treatment. If that seems overwhelming, we
have good news!
Dr. Scott Turner and his staff at Red River Spine Associates invite you to attend a series
of monthly seminars designed to help you during your recovery from fibromyalgia and
myofascial pain. The series features medical professionals and other patients briefly
explaining the protocol. There will be time set aside for questions and discussion.
New Mexico
Albuquerque
First meeting will be Tues., Sept. 12 -
1:30 P. M.
Heights Cumberland Presbyterian Church, Room #406
8600 Academy, N.E., Albuquerque, NM
We will meet the second Tuesday of each month
Contact Karla Wirth: katwirth@aol.com
for more information
New York
New York City/Long Island
The group meets in New York City the third Tuesday of every
month at the Rusk Institute, and meets in Cedarhurst, Long Island once per month. Dates
will be announced.
Contact Aileen Goldberg: Email Gold2222@aol.com,
telephone (516) 569-4300
Pennsylvania
South Eastern Pennsylvania
I am pleased to announce that I am starting a new support group called the South
Eastern Pennsylvania Fibromyalgia & Chronic Fatigue Hope & Recovery Group.
It is tentatively being held at the Silver
Creek Social Club in Springtown, PA from 7:00 p.m. to 8:30 p.m. on the second
Monday night of every month. The first meeting is scheduled for Monday,
December 12, 2005 pending decent weather.
Please call to let me know that you are
coming, for directions, meeting locations, dates, and times as they may change
depending on where the bulk of interested individuals in the Lehigh Valley are.
Family and friends are welcome to attend!
Guais, please
contact me by e-mail for information or call me on: (610) 346-8868
Kim: Southeastern Pennsylvania Fibromyalgia & Chronic Fatigue Hope &
Recovery Group Leader
Washington
Spokane
Dianne L. Cook
1218 S. Greene
Spokane, WA 99202-4366
Please drop her a card for information.
Sorry, Dianne is no longer responding to
queries so it is assumed she is no longer at that address and has not left a
forward. If anyone knows of a Guai or FMS group in this area, please
email me so I can list it.
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