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      Guai-Support Group   
Information & Support for Fibromyalgia

Sal-FreeTM Centre
 Salicylate Information. Includes data bases of Sal-FreeTM Cosmetics, Supplements & Helpful Items.

Established in October 1997 as a non-profit enterprise the original, international Guai-Support Network offers access to 'self-help' health education and support.   Discussion revolves around all renditions of the guaifenesin treatment for FMS, CFS, CFIDS, ME, IBS, EDS, IC, MCS, NMH, RLS, VV, MVP, MPS along with many other health issues such as HG, IR, reflux, Thyroid, Toxicity, etc., reference to other theories about FMS.  Other health conditions & treatment possibilities are referenced here and discussed under appropriate topic in the mailing list.  Members have access to extensive archives.

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Human Interest Animal Interest
                                    

 

Guai Groups
On & off-line

Revised: 6 February, 2008

---Online---

GUAI-SUPPORT offers online support and information for people with fibromyalgia who are using guaifenesin.
                      
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            ---Guaifenesin Groups Meet---

Australia

Western Australia

Perth
Group started in November 99.
Perth Guai Group is now a more casual gathering of FMers with no regular formal monthly meetings at the West Stirling Neighbourhood House- more just a luncheon here and there. The formal meetings were putting too much pressure on some of the members and therefore they have opted for something more relaxed.   For date and time of next lunch/meeting please contact Verona by email.

Canada

Alberta

Calgary

Guai Groupies meeting: Please email Nicky at racegirl@telusplanet.net for meeting info and directions.

The next meeting will be held on Tuesday, July 8, at 7:00pm at the home of one of our Guai'ers, Margaret.

Our schedule for the rest of the year is:

Tuesday, August 12, 7:00pm
Tuesday, September 9, 7:00pm
Tuesday, October 14, 7:00pm
Tuesday, November 11, 7:00pm
Tuesday, December 9, 7:00pm

If you are currently following the protocol, please join us!!!  Email me (Nicky) for address and directions.


Ontario

Combermere
Julie Levy, Fibronorth, P.O. Box 270, 750 Tamarack Rd., Combermere, Ontario, Canada K0JIL0,  Telephone: 877-HELPS FM (877-435-7736)

UK

Discussion group for UK based FMS (Fibromyalgia Syndrome) sufferers who are on the Guaifenesin Protocol or who are considering it.

The UK-FMS-GUAI Website' is located at:
http://www.geocities.com/ukfmsguai
 

US Flag United States of America
Arizona
Arkansas

California
Delaware
Florida
Hawaii
Illinois
Indiana
Minneapolis
Minnesota
New Mexico
New York

Pennsylvania
Washington

Arizona

Phoenix
The February meeting of the Phoenix Arizona Area Guai Group will be Saturday, Feb. 8th, 1:30 pm at 3814 E. Mallory St., Mesa. Those new to the guai protocol should arrive at 1:00 pm for an introductory video presentation. An experienced mapper will be in attendance who has offered the group a special rate of $25 per map.

If you wish to have a mapping done, have questions or need directions to the meeting location please call 480-832-5733 or e-mail Brenda brendafrandsen@cox.net . We will also have a speaker who will be discussing "Salicylates" in relation to the guai protocol.


Experienced guai'ers should arrive at 1:30 PM.
The location is 3814 E. Mallory St., Mesa.
October 12 - Guai 101

Tucson 85710
In-office Guaifenesin Support Groups are held twice a week- the first and third Tuesday of each month, from 6:00 to 7:00 p.m. and are led by Dr. Penniston.  All ages are welcome, whether on guai or just wanting to learn about it.

They will be happy to help you check your products at another time. To have this arranged, please call to set up a time.

Their office is located at 6563 E. 22nd Street Click here for map.

Or feel free to click here to contact
Robyn

Click on the logo to read all about GuaiLife

A Quick-Acting Over- the-Counter Guaifenesin

 

Shop GuaiLife for Dr Penniston's book, DVD & Sal-FreeTM products

Very competitive prices


Arkansas

Sherwood
Guaifenesin Support Group, starting July 8, 1999, in the Counsel Room of the Sherwood Police and Courts Blds. at 1 p.m., the second Thursday of each month. For more information, contact Valarie Garland at 501-835-2513.


California

San Diego
The San Diego Fibromyalgia Hope and Recovery Group meets the 3rd Saturday of each month in Mission Valley.  The group is lead by a RN who has FMS/CFS.   The group mission is to provide education, support, self-empowerment and fun for those with this illness and for their families and significant others.   Loved ones are welcome guests, please encourage them to attend.

Contact Janis for meeting information at, Ph: 619-216-9661 or e-mail at  janis_@cox.net


Delaware

Eastern Shore Maryland, Southeastern PA

We meet the first Saturday of the month from October thru May from 1:30-3:00 p.m.
(except certain holidays) at the Grace Episcopal Church, 4900 Concord Pike (Route 202), Wilmington (across from the Concord Mall).

Members are composed of people from Delaware, Pennsylvania, Maryland & Southern New Jersey.

For more information, contact: fmsrecovery@yahoo.com
or call 1-302-834-4063 Mon-Fri between 9 a.m. and 5 p.m.

Meeting schedule, directions & further information:
http://www.fibromyalgia-recovery.org/Directions.htm


Florida

Dade City
Meets the first Thursday of each month at 7:00 P.M.
East Pasco Medical Center, US. Hwy 301 Zephyrhills, FL
Lots of guai information and info for mapping
Please contact Jean Semeraro at (352) 523-2570
or email at jean615@webtv.net

Miami

Fibromyalgia support group in the greater Miami area.

Contact Micki via:

Email: areamicki@lewis.org
or
Telephone: 305-255-7955.


Hawaii

Kauai
Meets the second and fourth Saturday of each month
at 10:00am to noon, followed by lunch and maybe a swim in the pool.  Contact Miki Kaipaka at Kaipaka@aol.com or 
(808) 245-9202

Oahu
We have been working closely with Miki Kaipaka since iFOG (informed Fibromyalgics on Guai) started in April of this year.

40 to 50 people meet once a month, normally on a Saturday but no set Saturday per month due to my work schedule.   Anyone interested can contact me, Annette, at: email address buckwun@aol.com
Phone: (808) 677-8770
I keep those interested on my regular mailing list and send out a notice ahead of meeting time.


Illinios

Chicago
Meetings are held at the Rolling Meadows Library
3110 Martin Lane, Rolling Meadows, IL 60008.
The first meeting is Tuesday, March 18th from 7:00 PM -8:30 PM in the board room.  Future meetings will be the last Tuesday of the month in the community room from 7:00 - 8:00 PM.
For more information contact Jody at chicagoguaigroup@yahoo.com
 

Swansea
Metro Guai Group meets once a month on a Sunday evening from 5:30 p.m. - ?
We have yet to have a short meeting. The last one went for over 3 1/2 hours! They are wonderful and so uplifting.  We draw people from the whole metro area including St. Louis, and the Ilinois side of the river (where we meet)

The place is Massage & Bodyworks ( we use their meeting room)
#1 Emerald Terrace, Swansea, IL
phone no. 1-618-233-9886
It is about 3.5 miles South from Jct. Hwy. 159 and I-64
(St. Clair Square)
Personal contact - Sandy mphillips@ezl.com


Indiana

Evansville
The Evansville support group will meet the first Sunday of the following months:
Dec. '3, Feb. '04; April, '04; June, '04; Aug., '04; Oct. '04; and Dec. '04. 
Time: from 2:00- 4:00 pm.
Place: Room 2, St. Mary's Medical Center on Washington .
Mapper usually available at meetings however perhaps not the December one due to accident.
If you have any questions, please contact Sr. Joanne privately.


MiamiMinneapolis

Minneapolis
Meet the last Tuesday of every month at 7:00 - 9:00PM
Berean Evangelical Free Church 6625 Humboldt Ave North, Brooklyn
Center, MN 55430.  We welcome new people!! Those of you who are on the protocol or those that just have questions and are interested in finding out more about the protocol. We give you a welcome packet full of information, we show Dr. St. Amands video, have his book available to purchase, and mappers to do your first map if interested for a fee.
For more information please contact Renee 612-786-2335 or Lynn 612-755-2220.


Minnesota

Moorhead
Red River Guaifenesin Education Group:
Guaifenesin Group welcomes guaifenesin users in the Fargo, North Dakota-Moorhead, Minnesota area. 


Day: Third Monday of each month
Time: 7-8pm
Place: Voyager School, Room 206
1330 8th Ave. North
Moorhead, MN
Map of north Moorhead
Map of Voyager School

Please direct questions about the group to Meredith at Red River Spine Associates, (701) 280-0057

Offering education and encouragement for people using guaifenesin to recover from fibromyalgia or myofascial pain. Beginning the guaifenesin protocol can be a daunting experience. You're in pain; you can't think straight; you're tired all the time, and your doctor hands you 70 pages to read about your new treatment. If that seems overwhelming, we have  good news!

Dr. Scott Turner and his staff at Red River Spine Associates invite you to attend a series of monthly seminars designed to help you during your recovery from fibromyalgia and myofascial pain. The series features medical professionals and other patients briefly explaining the protocol. There will be time set aside for questions and discussion.


New Mexico

Albuquerque
First meeting will be Tues., Sept. 12 - 1:30 P. M.
Heights Cumberland Presbyterian Church, Room #406
8600 Academy, N.E., Albuquerque, NM
We will meet the second Tuesday of each month
Contact Karla Wirth: katwirth@aol.com for more information


New York

New York City/Long Island
The group meets in New York City the third Tuesday of every month at the Rusk Institute, and meets in Cedarhurst, Long Island once per month. Dates will be announced.
Contact Aileen Goldberg: Email Gold2222@aol.com, telephone (516) 569-4300


Pennsylvania

South Eastern Pennsylvania
I am pleased to announce that I am starting a new support group called the South Eastern Pennsylvania Fibromyalgia & Chronic Fatigue Hope & Recovery Group.

It is tentatively being held at the Silver Creek Social Club in Springtown, PA from 7:00 p.m. to 8:30 p.m. on the second Monday night of every month.  The first meeting is scheduled for Monday, December 12, 2005 pending decent weather.

Please call to let me know that you are coming, for directions, meeting locations, dates, and times as they may change depending on where the bulk of interested individuals in the Lehigh Valley are.

Family and friends are welcome to attend!

Guais, please contact me by e-mail for information or call me on: (610) 346-8868

Kim: Southeastern Pennsylvania Fibromyalgia & Chronic Fatigue Hope & Recovery Group Leader


Washington

Spokane
Dianne L. Cook
1218 S. Greene
Spokane, WA 99202-4366
Please drop her a card for information.



 

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And More Resources For All

More Information On FMS & About Other Diseases - Studies - Plus treatments offered

 

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Guaifenesin Treatment
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Basic Treatment Instructions
FAQ: Guai Treatment

Blocking Test
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Variable Higher Doses (VHD)
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Guaifenesin Sources

How to split capsules & tablets

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Guai quality control
History of Guai Product Protest

 

FMS & Guaifenesin
FAQ - FMS-DX-Guaifenesin.htm
Guaifenesin - Dr Starlanyl
Dr. Penniston Re FMS & GL

FMS/CFS & IBS (book)
Fibromyalgia & Guai. Therapy
FMS: Symptoms & Guai Theory
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Invisible Illnesses, Visible Stereotypes
 

Vulvodynia

Vulvar Pain Foundation
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Responses to Misconceptions

 

St Amand Papers

FMS: Symptoms & Guai Theory
FMS & Uricosuric Agents 
Fibromylgia

Genitourinary Syndrome & Fibromyalgia 

Hypoglycemia

FMS & HG


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Hypoglycemia
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Type 2 Diabetes

Diabetes l & ll Breakthrough  NEW

The GG Book Nook
Insulin Resistance Syndrome

Insulin & its Metabolic  Effects

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Carbs in All Types of Food and Drink
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Bonny Talks About Xylitol

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Miracle Mineral Solution
   

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DVD - Understanding MMS: Conversations with Jim Humble
A feature-length documentary on the origin, science, and proper use of the MMS protocol to disinfect the waters of the human body with chlorine dioxide.  Produced and directed by Adam Abraham.
 

    And for Some Fun

    I'm a Damien Leith Fan

 



 

 

   The GG Book Nook

            Including

GG members' book Reviews

 

 

 

Fibromyalgia, Chronic Fatigue & Irritable Bowel: Treating Symptoms Treating Cause

By Dr Gregory K. Penniston
(The re-titled new edition to
The Guaifenesin Guide)

A unique book that gives sufferers and their families clear explanations and practical information on every type of treatment for these distressing and hard to manage disorders. It dispels the misconceptions, that lead some people to dismiss these conditions, with thoughtful explanations and reasoning. This book gives emphasis to eliminating the conditions by addressing their 'cause', with a commonly used 'over-the-counter' medication, guaifenesin and provides detailed, easy-to-follow guidelines.

 

 

 

              

Examining Guaifenesin

 

 

Parting the Fog: The Personal Side of Fibromyalgia/Chronic Fatigue Syndrome

By Sue Jones, a GG Member

Parting the Fog" is a candid, first person account of what it is like to walk in the shoes of someone suffering from fibromyalgia/chronic fatigue syndrome. It relays the seriousness of this condition in an easy-to-read manner, while employing humor and focusing on hope.

 

 

 

 

 

Crack Up at the Wake of Dawn: Everyday Poetry to Incite and Delight Your Soul

Another great Book from our GG Member Sue Jones!  If you are a fan of "Parting the Fog", you won't want to miss this book. Although it isn't specific to fibro, you WILL find chapters you can closely relate to, since many topics are dealt with. Some of the poems may make you cry, others make you laugh, and still others trigger a thought or give you greater insight. Whichever the case, you won't be left unaffected.

 

 

 

 

 

 

 

 

Take My Hand: The Extraordinary Story of a Girl Named Janis

In Take My Hand, Audrey Revell (a long time member of GG) paints a vivid and moving picture of the life and indomitable spirit of her daughter Janis, an exceptionally talented musician and composer despite having lost her sight as a child together with progressive hearing loss.

 

 

 


 I Remember Me

 

 
 Fibromyalgia: Show Me Where It Hurts DVD

 


Start Drinking Alkaline Water Today!

 

Swanson's has a huge selection of products at very good prices.
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Sales, Coupons And Great Deals! 
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 Emotional Freedom Techniques

 

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Procedures to acquire free drugs for needy clients. There are many many resources here that perhaps you can either share with your doctors willing to go the extra few steps to help, or friends who need financial assistance:  Volunteers in Health Care

Web Site Flyer
can be printed out and given to your doctor.  S/he can then print it out for his or her FMS patients, and their waiting room.  You can print & pass out copies as you encounter people interested in the protocol & the Guai-Support group.

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The information on this web site comes from many sources, including: Dr. R. Paul St. Amand, his assistant Claudia Marek, members past & present of the Guai-Support Group Mailing list and others consulted on various topics. It is not meant to be medical advice, but rather helpful hints on this journey. Please consult with your Health Care Professional.

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The information on this site is the property of the Guai-Support ListOwner Tesa Marcon:
vashtii@optusnet.com.au  
(& various authors).  If you wish to publish anything from this site, or use the mailing list to gather information for same, please request her permission.