Guai-Support - More Resources

Revised 19 May, 2009

MEMBERS of Guai-Support can search the Guai-Support archives for more information.

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Contents:

If anyone has information and links that they think would be suitable under one of the headings below please send it to me.  The items on this page are for information purposes only.  I have no medical background and only include the page for the reader to investigate for themselves and discuss with their health care professionals.

Fibromyalgia Syndrome and Guai Tools/Management

What is a syndrome?

Symptom Checklists

A combination of symptoms for Fibromyalgia &  Hypoglycemia

Devin's Diagnostic

CDC Chronic Fatigue Syndrome Symptoms

FMS Checklist Filemaker Pro Cross Browser

FMS Checklist for the PC

FMS Checklist for the MAC

Electronic Journal

Pain Scales

Personalizing A Pain Scale

Reminders for taking Medications/Supplements

Various Pill Timers & Organizers

Wendy's Mums' Tip

Wendy's Tip

Medication and Treatment Information

Shed Some Light - Ask a Patient

USA Drug Index

USA Medical Terms from A to Z

Australia - My Dr (from MIMS)

NZ RX - Restricted Meds

Activator Method

Devin Starlynal - Information re Medications

Australian Version of Devin's Information re Medications

Check Potential for Interaction Between Drugs

Blood Pressure Target

Blood Pressure Tests Explained

How To Determine If You Have Low Blood Pressure

Causes and Treatment of Low Blood Pressure

National Fibromyalgia Research Association on Low Blood Pressure

Blood Pressure Monitors

Garlic boosts hydrogen sulfide to relax arteries

Ratio of sodium-to-potassium a Stronger Predictor of Cardiovascular Disease
At-Home Allergy Pulse Test

CenterWatch Clinical Trials Listing Service

Medication Resources

On-line Meds with no RX needed

On-line Meds with no RX needed - Overnight Delivery

ProceduresToAcquireFreeDrugsForNeedyClients

Disability

GG Disability Resources and Information Page

Access E Bility

Letter to Normals

My Name Is Fibromyalgia

Books, Tapes, CDs, etc

Fly Lady Useful Tips

Step By Step Organizing Tips

Suggestions for Pain Management, Symptom Relief, etc

for FMS symptoms, conditions that often occur in those with FMS and other conditions.

Bonny's Suggestions

Prelief Acid-Reducer

Mitral Valve Prolapse & Magnesium

Chiropractic - Low force care for the spine - Activator method

Magnetic Therapy
Stopping a migraine headache before it ever begins is the new focus of treatments.

Parkinson's Drug May Treat FMS

Activator Method

Taste Tests

Kinesio Taping

Columbia University Researchers Discover On/Off Switch for Chronic Pain (Research only)
 

Spiritual/Consciousness/Energy/Alternative Tools

Emotional Freedom Technique

Wisdom Studies at Yahoo

How Meditation Changes Your Brain

Fibromyalgia & Meditation
The Meditation Society of Australia

Full Moon Meditation - Meditation for World Service

Meditation at Wikipedia

Mastering Emotions

Body - Mind Resources

Reiki: The International House of Reiki - Benefits of Reiki

About Chanting

Prayer for all Religions

Other Guai web sites or FMS sites with Guai content

GuaiLife

Wendy Howard

Bob Joy

J C Waterhouse

Devin Starlanyl

The Vulvar Pain Foundation

CISRA

Shanjo

Jo Gallagher

UK FMS-Guai Group

Jane White

fibroNorth

Miriam Ehrlich Williamson
Homeopathics for Fibromyalgia Recovery-Custom Homeopathics

FMS Research and Treatment Options

Miracle Mineral Supplement

Life Force Body Balance
 

Glutathione Depletion—Methylation Cycle Block Hypothesis

Fibromyalgia Recovery Group on Iodine:

Iodine

Fibromyalgia: Putting the Pieces Together

The Differences & Similarities Between the Guaifenesin & Iodine Treatments

The Iodine Group

How Much Iodine Do We Need?

Orthoiodosupplementation
 

Chronic Neurotoxins for FMS

The Klinghardt Neurotoxin Elimination Protocol

The Role Of Infection In Initiating Me/Cfs

Samento Science Library

International Guai-Support Group For Fibromyalgia Home Page

Dr Cheney Articles

Antibiotic Protocols

What is a Herx?

What is Pulsed Dosing?

What is an Antibiotic (IV) "Push"?

Alert: Secondary Porphyria Concern When Using Combination Antibiotic Protocol:

What is Porphyria

Chlamydia Pneumoniae Help

Antimicrobics and Infectious Diseases Newsletter

Breaking Research Reveals Common Bacterium Chlamydia Pneumoniae may be Culprit in CFIDS, FMS and MS
N.A.C. for Chlamydia Pneumoniae

A-CID: Acquired Chronic Inflammatory Disease (A-cid) And Chronic Infection 

Mycoplasmas: The Unsuspected Invader

Fibromaylgia: Is There An Infection Connection?

New Uses For Older Antibiotics (abx)

Bacteria May Be The Cause of IBS

Bacteria Tied To Chronic Illness

Road Back Foundation

Emerging Infectious Determinants of Chronic Diseases

Marshall Protocol for Treating Chronic Fatigue Syndrome Sal-Free^TM)

Explanation Of Test For Serum Phosphorus

Effects of 1,25?D (1,25?dihydroxyvitamin D) on Mineral Metabolism

Bacteriality: Exploring Chronic Disease - About the Marshall Protocol

Journey Towards Complete Recovery From CFS on the Marshall Protocol

The Marshall Protocol (MP) in Laymen’s Terms by J. C. Waterhouse, Ph.D.

Vitamin D,_Vitamin D Receptor_and_Chronic Disease

Simple explanation of the pathogenesis of Th1 inflammation

Simple explanation of vitamin D metabolism

Marshall Protocol - Dr Gary Deed interviewed by Judy Williams

Detoxification

Miracle Mineral Supplement

Holy Tea

Glutathione: The Master Antioxidant That Defends Against Illness
Undenatured Whey (Sal-Freetm) Protein sites

N-Acetyl-L-Cysteine (NAC: see also for Pcn)

Frequency Therapy

FreX News with Ken Uzzell

Inflammation

Cytokine Inflammation and Management in Fibromyalgia and Chronic Fatigue Syndrome

Immune System

Is Glutathione Depletion an Important Part of the Pathogenesis of Chronic Fatigue Syndrome

Miracle Mineral Supplement

Depression

Rapid Recovery From Major Depression Using Magnesium Treatment
 

Antioxidants

Anti-oxidant Protocol by Dr Martin L. Pall, PhD

Live Chat with Dr Martin L. Pall, PhD re his anti-oxidant Theory & Protocol

Amino Acids

Healing Back Pain, Blood Pressure, Fibromyalgia

Understanding and Curing Fibromyalgia

Amino Acids for Heavy Metal Removal & Much More

Viral Connections

New Clues to CFS

Detection of Enterovirus in CFS/FMS

Dysbiosis Metabolic Markers - Urine

EVB Lab Report

CFS Linked to HHV-6 Virus

Parasites

New Parasite Found in CFIDS
 

Candida

Iodine: The Candida Killer (includes info on Zinc and Kefir as antifungal)

Suggestions from GG Members

National Candida Centre - Includes 3 Self Tests

Eliminate The Underlying Cause

Health Truth - Did You Know?

Diagnose Me - Yeast Candida Infection

Fungus Focus

Know the Cause

The Low Carb Cook

Naturopathy Works Candida Stealth Invastion

Lovely Health

Miracle Mineral Supplement

Audio/Visual

The Neuro Programmer 2

Studies

Scottish Scientists Find 'Key to Curing ME' (CFS)

National Databank for Rheumatic Diseases Needs FMS Participants

Microcirculation abnormalities in patients with fibromyalgia – measured by capillary microscopy and laser fluxmetry
Increased neutrophil apoptosis in chronic fatigue syndrome

Symptom Improvements with Parkinson's Drug Found in Fibromyalgia Trial

Scientists Find Genetic Link for a Disorder (Restless Leg Syndrome)

Alfred Blasi Protocol

Good News for FMS Patients

Normalization of the increased translocation of endotoxin from gram negative enterobacteria (leaky gut)

Possible role for early-life immune insult including developmental immunotoxicity in CFS or ME.

Inspiratory airflow dynamics during sleep in women with fibromyalgia

New study proves that pain is not a symptom of osteoarthritis, pain causes arthritis

A comparison study of quality of life in women with fibromyalgia and myofascial pain syndrome

Chronic Fatigue & Fibromyalgia Syndromes

Is Heart Failure Secondary to Mitochondrial Malfunction

AACFS Myths of CFS

Paul Cheney Articles on CFS

The Heart Of The Matter: Dr. Cheney On Cfs & Cardiac Issues (Part 2)

Dr Pall on Nitric Oxide (referenced in Cheney article above)

Ray Peat on Nitric Oxide (referenced in Pall & Cheney articles above)

Chronic Lyme Disease is a Frequent Cause of Fibromyalgia and CFS

Chronic Neuroimmune Diseases

Hit-and-run injury to the brain

Marshall Protocol - Dr Gary Deed interviewed by Judy Williams'

Chronic Fatigue In The Genes, Study Finds

From the Bench

Increased neutrophil apoptosis in chronic fatigue syndrome

Neuro-immune Fatigue And Cellular Hypoxia

Miracle Mineral Supplement

Raymond Peat Ph.D. Biology

Dr John C. Lowe's page (thyroid protocol for FMS)
Dr Cheney's Basic Treatment Plan for Chronic Fatigue Syndrome
Advanced Techniques For Overcoming CFS, FMS & GWS
Diagnosing Chronic Fatigue? Check for Sinusitis

New Test for FMS: Algotensiometry
Fish Oil Supplements Could Help Fight Chronic Fatigue Syndrome
FAQ About Antibiotic Therapy
Information for Patients and Supporters with Devin Starlanyl

Oil Pulling

FMS Discussion Forums

FMS Australia

A-CID (Acquired Chronic Inflammatory Disease [and Chronic Infection].

Friends International Support

Men with Fibro

FMS-Recovery

Yahoo Whey Group for FMS/CFS/Gulf War Syndrome

Alfred Blasi Group for Recuperat-ION

Vulvodynia Forums

Other Sites Which May Interest
(If you are using Guai you may discuss other (non-FMS) conditions and treatments under the PLUS topic on the GG mailing list.  Some other conditions will be more prevalent in those of us with FMS but others may not.  Either way you can discuss them all with us so long as they are under the PLUS topic.) 

News Items

Drugmaker's "Blackmail the Public"

Chronic Illness Support and Research Association (CISRA): Synergy Health Newsletter

Anti-aging

Anti-aging and Health Basics With References

Degenerative Disorder and Anti-Aging Protocol

Anti-aging Information
 

Sleep Issues & Sleep Apnea

Connection between insulin resistance and sleep apnea

Sleep Apnea Can Lead To Diabetes

Sleep Apnea Articles

Short-term sleep restriction results in impaired glucose tolerance

Archives of Internal Medicine on Sleep Apnea

Type 2 diabetes, glycemic control, and continuous positive airway pressure in obstructive sleep apnea.

Influence of Melatonin on Glucose Tolerance & Insulin Sensitivity

Melatonin adverse effects warning

Sleep apnea in women may be different from that in men

Want to Prevent Cancer? Make Sure You Sleep Well

Magnesium & Sleep

Sleep Apnea

The Apnea Patient's News, Education & Awareness Network

Sleep Apnea, Restless Leg Syndrome, Insomnia, Narcolepsy

How are sleep problems affecting you?

Sleep Apnea Products and services (Victoria, Australia

Inspiratory airflow dynamics during sleep in women with fibromyalgia.

AveoTSD (anti-snoring aid)

The Pillar Procedure

Sleep Disorders Guide
 

Thyroid

Transdermal Iodine Therapy

Supposed Test for Iodine Sufficiency

Thyroid Disease with Mary Shoman

Thyroid Disease - Related Conditions

Thyroid Info

About Thyroid

Interview with Raymond Peat - Thyroid

John Lowe on Thyroid Resistance

Broda Barnes Research Foundation

All About Thyroid

Wilson's Syndrome Foundation

Free Book From Dr Wilson

Interview With Richard Shames

Osteoarthritis

Red Wine Can Ease Your Sore Joints

Antibiotic Slows Joint Damage in Knees

Miracle Mineral Supplement

Autoimmune

American Autoimmune Related Diseases Association

Marshall Protocol

Mechanism Behind Autoimmune Diseases Found

The Cause Of Degenerative Disease

Antibiotic Protocols

Antibiotics Slows Joint Damage in Knees

Bacteria Tied to Chronic Illness

Mycoplasmas: The Unsuspected Invader

Marshall Protocol - Dr Gary Deed interviewed by Judy Williams

Miracle Mineral Supplement

Osteoporosis

National Osteoporosis Foundation (USA)

Osteoporosis Australia

Preventing Osteoporosis with Ipriflavone

IPRIFLAVONE, Bone Building Miracle

Pharmaceutical Treatment Of Osteoporosis

Basic Prevention of Osteoporosis

Hormones

Raymond Peat on Hormones

John R. Lee Natural Hormone Balance

Stress, Hormones, and Fibromyalgia

A Survivor's Guide to Surgical Menopause

Celiac Disease and Gluten Intolerance

What is Celiac Disease

A Doctor Describes Celiac Disease

Research Data on Celiac And Gluten Intolerance

Nutritional: Vitamins, Minerals, Supplements, etc.

The Vitamin And Nutrition Centre

Drugs Do Not Work For Everyone

Ray Peat on Nutrition

Magnesium for Life

Coconut In Modern Medicine

Know Your Fats

A New Look At Coconut Oil

Coconut Oil & Cancer

The Oiling of America

Koconut Pacific - The DME System

Coconut Research Center

Coconut Research Center Success Stories
Coconut Oil Open Forum

Coconut Diet Forums

Xylitol

One Mineral for a Myriad of Conditions

Vitamin D Deficiency Linked to Pain

Dr Rath's Health Foundation

Natural Eradication of Cardiovascular Disease
Dr Rath Foundation Free Cellular Health Seminar

The Cause Of Degenerative Disease

The Vitamin C Fanatics Were Right All Along

Research in Aging, Nutrition, and Hormones by Ray Peat

Ray Peat on Aging

Ray Peat - Many articles about lots of things.

Why Soy Can Damage Your Health

Cholesterol

The Greatest Scam in the History of Medicine! Why Your Fear of Cholesterol Could Be Killing You

Have We Been Conned About Cholesterol

Lyme Disease

Alternative Treatments for Lyme Disease and Co-Infections

Lyme Literate Medical Doctors in the USA

Miracle Mineral Supplement

Advanced Topics in Lyme Disease

Lyme Disease Links at WSE
Lyme Disease: A Comprehensive Guide To Diagnosis and Treatment

Lyme Disease: A Look Beyond Antibiotics

Miracle Mineral Supplement

Susceptibility of Lyme to Flagyl

Guai, Whey & Leaky Gut Syndrome

Lyme Disease: It's Evolving & the Clock's Ticking

Science Library: Samento*

Marshall Protocol and Lyme

Late and Chronic lyme Disease: Symptom Overlap with Chronic Fatigue Syndrome & Fibromyalgia

Chronic Lyme Disease is a Frequent Cause of Fibromyalgia and CFS

Lyme Disease and Rife Machines

Road Back Foundation

Townsend Letter for Doctors and Patients (see following link re acetylcholine also)

How Nicotine Works (particularly see acetylcholine re Lyme)

The Science of Salt/C

Lyme Disease Alternative Remedies

Starting the Salt/C protocol

Finding a Holistic Protocol For CFIDS and Lyme Disease
Lyme Strategies

Cautions about Salt/C

Curezone & Lyme

Crohne's Disease

Study Supports Bacterial Cause for Chrohn's Disease

Mycoplasma's:  The Unsuspected Invader

Curcumin May Be Effective for Inflammatory Bowel Disease

Miracle Mineral Supplement

Heavy Metal Toxicity

Amino Acids for Heavy Metal Remoal and Much More

Metallothionein Test

Insulin Resistance, (+ Diabetes Type ll, Hypoglycemia, Carbohydrate Intolerance)

GG's Insulin Resistance Excerpts  & Links

PCOS Research News

Drug-induced Disorders of Glucose Tolerance

Miscellaneous

Helpful Medical Abbreviations

Chronic Back Pain Shrinks Thinking Parts of the Brain

An Expert Interview With Dr. John Sarno, Part I: Back Pain Is a State of Mind

An Expert Interview With Dr. John Sarno, Part II: Pain Management Prophet or Pariah?

John Sarno Interview with Spirit.com

The Divided Mind: The Epidemic of Mindbody Disorders

CranioSacral Therapy Targets Nerves

Dr. Mirkin's E-Zine

Mouth Sores (Canker Sores & Cold Sores)

Folk Remedies

Miracle Mineral Supplement

Members may find more information on particular subjects listed below.   Not a member yet?

Click here to Join Guai-Support

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FMS and Guai Tools

What is a Syndrome?

"In medicine and psychology, the term syndrome refers to the association of several clinically recognizable features, signs (discovered by a physician), symptoms (reported by the patient), phenomena or characteristics that often occur together, so that the presence of one feature alerts the physician to the presence of the others."

Symptom CheckLists

With the Symptom Checklist you can rate your pain levels, fog, eyesight, fatigue, gut, etc on a 1 to 10 scale. You can make a new record every day, or once a week or whatever, and since it's filemaker you can export the data you collect to a spreadsheet and make charts to monitor your progress. (The file requires Filemaker to run.  There isn't any password protection so feel free to modify it to suit your needs.

If you already have Filemaker Pro, please download the first file. If you don't have Filemaker Pro, download either the 2nd or 3rd file, choosing the one appropriate for your platform. These last two files are large and may take 10 to 20 minutes to download on a standard 56K modem.

A combination of symptoms for Fibromyalgia &  Hypoglycemia

Devin's Diagnostic (A list of symptoms)

Centers for Disease Control & Prevention Chronic Fatigue Syndrom Symptoms

"Chronic fatigue syndrome can be misdiagnosed or overlooked because its symptoms are common to other many disorders. Fatigue, for instance, is found in hundreds of illnesses. The nature of the symptoms, however, can help distinguish CFS from other illnesses."

FMS Checklist Filemaker Pro Cross Browser

FMS Checklist for the PC

FMS Checklist for the MAC

Runtime files have been tested on Macintosh OS 9 and Windows NT. If you are experiencing problems, please email AussieSue aussie_sue@optushome.com.au with the error message you are getting and she will endeavor to assist you.

Electronic Journal (is down and attempts to contact the manager of it have so far failed)

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Pain Scales

Personalizing A Pain Scale

Reminders for taking meds/supps

(Feedback on any of these very welcome) 

Various Pill Timers Example :

The Cadex Medication Reminder Watch
The CADEX Medication Reminder takes the worry out of taking medications, so you can spend your time enjoying the more important things in life.

Wendy's Mum's Tip:

• Write on the lid of the bottle or packet when, or how many times per day, you have to take the medication (e.g, "x3" or "AM/PM", and so on)

• Keep them all together in a tray, with your added notes visible

• Sort them into order of the first medications of the day at the front, working your way towards the rear during the day.

Wendy's Tip:

By preparing a chart in a spreadsheet on the computer, you can save it and make alterations very quickly as needed.

You can print a separate page for each day.

You can see at a glance if something is due or has already been taken, and there is no need to actually remember what time something has been taken to work out when the next dose is due, because it is there in black and white if you need to check.

• Create a chart that fits onto a single page (Landscape orientation is probably better than Portrait).

• List all medications down the side, with the dose and the frequency of taking them, one per row.

• Add columns across the page for all the times you are to take your meds (upon rising, before breakfast, with breakfast, etc), one column per time period. 

• Use border lines to mark all the columns and rows, so they are clear. 

• Shade the boxes for times that you don’t take a particular drug in grey, so that you are left with a white space that matches a drug and time in the day when it is to be taken.

• When the drug has been dispensed, tick the relevant box, so it can be seen at a glance if something is missing.  Sometimes it is more useful to write the actual time the drug is to be taken, rather than just ticking the box - it all depends on the particular drug and your needs.  For example, pain relief may have be prescribed for four times a day, but if you begin to recover from that particular symptom your need for it may be reduced and you may skip a dose or two; writing the time means you know how long since the last dose if you want more.

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Medication and Treatment Information

Also see Helpful Items  & Sal-Free Pages

USA, Shed Some Light: Ask a Patient for Information

USA Internet Drug Index - 

USA: MedTerms Medical Dictionary A-Z List
Medicine.net

Australia: MyDr.com from MIMS
Search extensive database of Consumer Medicine Information from Australian  pharmaceutical companies. 

NZ: Information for Health Professionals

NZ prescriptions and restricted medicines only.

Information re Medications  Devin Starlynal: "Often, you may have to try many medications before you find the optimum ones for you. We react differently to each medication, and there is no "cookbook recipe" for FMS or MPS. What works well for one of us can be ineffective for another. A medication which puts one person to sleep may keep another awake. Each of us has our unique combination of neurotransmitter disruption and connective tissue disturbance. We need doctors who are willing to stick with us until an acceptable symptom relief level is reached."

Australian Version of Devin's Information re Medications

Drug Digest: Check potential interactions* between two or more drugs
 

What is your Blood Pressure Target

Tests Explained

http://www.mydr.com.au/default.asp?article=3127

What are the acceptable blood pressure levels?

According to the Heart Foundation of Australia, blood pressure less than 120/80 mmHg can be classified as ‘normal’ and blood pressure between 120/80 and 140/90 mmHg is classified as ‘high-normal’ blood pressure.

According to the Heart Foundation, a person could be defined as having high blood pressure (hypertension) if they have systolic pressure greater than or equal to 140 mmHg and/or diastolic pressure greater than or equal to 90 mmHg and/or are receiving medication for high blood pressure. 

Low blood pressure, or hypotension, generally refers to a blood pressure reading below an average of about 120/80 mmHg.

How to determine if you have Low Blood Pressure

What is low blood pressure, what are causes & How is it treated?

National Fibromyalgia Research Association on Blood Pressure

 Blood Pressure Monitors

Garlic boosts hydrogen sulfide to relax arteries
Eating garlic is one of the best ways to lower high blood pressure and protect yourself from cardiovascular disease. A new study from the University of Alabama at Birmingham (UAB) shows this protective effect is closely linked to how much hydrogen sulfide (H2S) is produced from garlic compounds interacting with red blood cells.

"A new study suggests that people trying to lower their blood pressure should also boost their intake of potassium, which has the opposite effect to sodium."
 

Issue 8, 2004 Update: Food Allergies/Sensitivities and the Pulse Test:Withdrawal Reaction Mechanisms, Overcoming Resistance, New Pulse Test Tips and Some Other Methods

by J. C. Waterhouse, Ph.D.

At-home short cut pulse test (originated decades ago by dr. Arthur coca) to arrive at a diet that minimizes reactions. The short cut version of the test is a controlled test, which if done correctly, is objective and often gives very strong proof of the reaction:

I wrote out these brief directions for myself which others might find them useful (Tesa):

If any food raises the resting pulse over 12 beats per minute above your morning resting pulse, that food should be eliminated; you are certainly allergic to it or can't digest that much of it. If your pulse has not returned to its morning resting rate one hour later, you are still having an allergic reaction to the food you ate previously and cannot get a decent result on another food until either your pulse slows again or until the next morning. You may, however, continue to eat other foods that you know do not provoke allergic reactions.

If a food causes no acceleration of pulse (at least 6 beats above your estimated normal maximal) that food can be tentatively labeled non-allergenic.

CenterWatch Clinical Trials Listing Service

"Welcome to the CenterWatch Clinical Trials Listing Service!

You can use this site to find a wealth of information about clinical research, including listings of more than 41,000 active industry and government-sponsored clinical trials, as well as new drug therapies in research and those recently approved by the FDA. Our site is designed to be an open resource for patients interested in participating in clinical trials and for research professionals. Please visit the ‘Your Privacy’ page to learn more about our privacy and confidentiality policies."

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Medication Resources
I do not recommend these sources as I've had no experience with them but I provide them for interested parties to investigate for themselves.  Experiences with buying from these sources can be reported to GG members via the FMS topic.

Online Drugstore without Prescription
111Drugstore.com

Online Pharmacy Delivers Overnight - No Prior prescription needed
TheBest-Choice.com
 

Procedures to acquire free drugs for needy clients: There are many many resources here that perhaps you can either share with your doctors willing to go the extra few steps to help, or friends who need financial assistance:  Volunteers in Health Care

Compounding pharmacies can compound most drugs

If you don't know where your nearest local compounding pharmacy is, you can find it through compounding pharmacy associations.

Australian Compounding Chemists Directory

International Academy of Compounding Pharmacists

In the USA, most drugs that have a generic version available can be custom compounded.
Call PCCA at  800-331-2498 )

Disability Resources

GG Disability Resources/Assistance Page

Access e-bility ...

e-bility's website offers easy access and links to a wide range of information, resources, services and products of interest to Australians with a disability, their families and carers, as well as health professionals and other service providers in the disability sector.

Letter to Normals' Letter to those without fibromyalgia; a guide for relatives and companions.  This site contains some of Dr. St. Amand's information, the FAQs developed by Guai-Support, and other info about fibro.

My Name is Fibromyalgia

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Books, Tapes, CDs, etc

Canadian Source for Tapes, CD's Protocol/Mapping, Sal-Free^tm products, etc.

US Source for Tapes, CD's (protocol/mapping, etc

Guai-Support Book Nook

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FlyLady Useful Tips

FlyLady "Step through the door and follow FlyLady as she weaves her way through housecleaning and organizing tips with homespun humor, daily musings about life and love, the Sidetracked Home Executives (SHE™) system, and anything else that is on her mind.

When you join FlyLady, you will receive daily FLYmail. Your FLYing Lessons will guide you through babysteps to help you set up routines, get rid of your clutter, and put your home and life in order."

 

Web Shop Emporium Buy Plus Size Clothes from the comfort of your own home! Most merchants ship international!

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Pain Management, Relief Measures, etc for FMS symptoms or conditions that often occur in those with FMS

Bonny's Suggestions For Pain Management

Prelief for Interstitial Cystitis
Interstitial Cystitis Foundation: IC is a symptom which can be worsened by purging phosphates.  It's also made worse by acid foods, coffee, etc.  There is an acid-reducer with clinical effectiveness in countering some acid foods for IC called Prelief (NOT a cure.  Generic: Trimethoprim which is a synthetic antibacterial available in scored, white tablets, each containing 100 mg trimethoprim or 200 mg trimethoprim.  Inactive Ingredients: Corn Starch, Dibasic Calcium Phosphate Dihydrate, Magnesium Stearate, Microcrystalline Cellulose, Silicon Dioxide and Sodium Starch Glycolate. 
Trimethoprim is 2,4-diamino-5-(3,4,5-trimethoxybenzyl) pyrimidine which is *Sal-Free)

There is also a diet which anecdotal reports indicate helps.  The low oxalate diet also apparently helps to some degree.

Mitral Valve Prolapse & Magnesium
This study concludes that many patients with heavily symptomatic Mitral valve prolapse have low serum magnesium, and supplementation of this ion (magnesium) leads to improvement in most symptoms along with a decrease in catecholamine excretion.

Chiropractic - Low force care for the spine: Activator method

Magnetic Therapy

"Beneficial for pain relief, stress, sleep, bacterial, fungal and viral infections, anxiety, depression and a host of other problems."

 

Stopping a migraine headache before it ever begins is the new focus of treatments.

Prevention: The Future of Migraine Therapy

"...taming this lion has made a 360-degree turn. Now, prevention is the focus. It involves disabling a migraine headache before the pain ever begins."

Parkinson's Drug May Treat Fibromyalgia

Friday, July 29, 2005

By Jennifer Warner

"A new study found that most people with fibromyalgia who took Mirapex in addition to their other medications experienced a significant decrease in pain. About eight in 10 reported some improvement in pain, and more than four in 10 reported a 50 percent or more improvement in their pain symptoms."

Activator method (chiropractic - Low force care for the spine)

Taste Tests: A member of Guai-Support, Donna Hudson recommends The Taste Tests in Dr. Lendon Smith's book, 'Feed Your Body Right'.

"Dr. Smith met a guy in animal nutrition who discovered that his horses would maintain HOMEOSTASIS by seeking out the nutrients they were short of by smell and taste.  They decided that if animals could do it, humans could do it."

"These tests are a wonderful learning tool for demonstrating how tastes change according to needs."  Donna Hudson

Kinesio Taping

Columbia University Researchers Discover On/Off Switch for Chronic Pain
by Editor - ImmuneSupport.com - 08-08-2006

"Researchers at Columbia University in New York have identified a protein in nerve calls that acts as an “on/off switch for chronic pain.” They’ve applied for patents to develop a new class of drugs that they predict will block chronic pain by turning this switch off.
The “switch” is the enzyme protein kinase G (PKG), which is activated upon injury or inflammation. And, the researchers state, “we are very optimistic that this discovery and our continued research will ultimately lead to a novel approach to pain relief for the millions suffering from chronic pain.”

Scientists have known for years that for chronic pain to persist, “a master switch must be turned on” inside the first order or peripheral nerve cells. These are the neurons that feed from the body to the second order nerve cells in the spinal cord, responsible in turn for relaying pain messages to the brain."

 

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Spiritual/Consciousness/Energy/Alternative Tools

Wisdom Studies at Yahoo

How Meditation Changes Your Brain

"There is growing evidence to show that meditation can make people healthier and happier. It may even increase lifespan, alter brain structure and change personality.

Now, mainstream medicine is beginning to take notice of meditation’s effects."

Fibromyalgia and Meditation
Friday, December 19, 2008
By: Daniel Lewis MD
FMOnline vol. 8, no. 12
 

"Soon after becoming a physician and rheumatologist in 1983, I developed an interest in many of the different traditional mind-body healing practices such as qigong, tai chi, yoga, breathing techniques, hypnosis, and meditation. Initially, this personal inquiry was separate from my professional work. However, you cannot completely separate your personal life from your professional work, and gradually the nature of my work developed a more holistic orientation. This approach seemed to resonate especially with people who had painful and often difficult-to-categorize conditions such as fibromyalgia."

"Epigenetics and Meditation
Epigenetics is a word that means “above the genes." Many illnesses, including fibromyalgia, have a genetic predisposition. This means that individuals with a particular genetic make-up are at a greater risk than the general population of developing fibromyalgia. In general, for conditions where there is a known genetic risk, lifestyle and environmental factors can both positively and negatively impact on both the development and progress of these conditions.

The science of epigenetics has demonstrated that environmental factors and lifestyle changes have a profound effect on the emergence or suppression of predisposed illnesses such as fibromyalgia. We now know that genes are not autocratic and we are not "bystanders and victims" of our genes. How we live our lives does make a difference. It is also well known that good nutrition and exercise are among the many important environmental stimuli for healthy living and exert an epigenetic influence. What is less well known is that it is our thoughts and feelings, and hence our perception of life events, that have a most profound and possibly dominant influence on gene expression. This is where meditation exerts its influence.

A regular meditation practice can produce a beneficial shift in the way we think, feel, and respond to everyday life events. Hence it is a powerful and positive epigenetic influence."

The Meditation Society of Australia

"The focus of this site is to explore spirituality in a simple and FREE way for the entire world. The meditation society is non-denominational - it has no religious, political or financial affiliations - we are a community organisation encompassing all faiths, who exist to help you learn to meditate.

We offer a free online meditation course. Our online course features a written step-by-step guide for people learning to meditate - each class includes a free radio quality audio recording of the discussion topic and a guided meditation exercise that you can download and play (these are also available as podcasts)".

Full Moon Meditation - Meditation for World Service
"Individuals and groups throughout the world meditate at the time of the full moon with the aim of serving humanity while also furthering their own development. The purpose of this website is to provide meditators and students alike with all the resources they need to participate in this process. Every month full moon commentaries written by long-time meditators will be presented a few days before the next full moon so that people can use them in their meditation. Suggested meditation formats and other resource material are also available.

We hope you find the material here useful to you as you unite and align with servers everywhere to utilize the energies available at the full moon to serve humanity."

1 Forms of meditation

BodymindResources.com

Reiki: The International House of Reiki - Benefits of Reiki

Inserting 'Reiki' into a search engine will invoke lots more information.

About Chanting
Inserting 'Chanting' into a search engine will invoke lots more information.

Combined with an image of what makes you happiest, such as good health for instance, focus on a point somewhere (on the wall or object) and with your eyes open, chant repetitively.

Nicheren Daishoin says:
"Nam-myoho-renge-kyo is like the roar of the lion.  What sickness can therefore be an obstacle??"  (MW-1, 119).

Prayers of the Day for All Religions

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Other Guai web sites or FMS sites with Guai content

GuaiLife - Chiropractic, Applied Kinesiology and GuaiLife Guaifenesin

Wendy Howard's Web site - the personal web site of our own Guai Buddy, Posting & Sal-mentor^TM.

Bob Joy  "The Cure" - guai, whey and leaky gut syndrome

"A simple treatment for fibromyalgia syndrome (FMS), chronic fatigue syndrome (CFS), chronic lyme disease (LD), irritable bowel syndrome (IBS), gulf war syndrome (GWS), multiple chemical sensitivities syndrome (MCS).  To my knowledge this web site is the only place in the world which brings the three treatments together in a simplified clinically orientated fashion for the patient.    I plan on keeping the three treatments separate because they are separate in the literature and in the eyes of most patients.  This will keep the confusion to the patient to a minimum except that if a patient has one label they must remember that they have the condition, regardless of the applied label.  If you are new to these treatments, I suggest you start with the whey first simply because it is much simpler than guai." - Bob Joy

Bob Joy Whey-CFS-FMS Group
"This discussion group is intended to be a central meeting place concerning whey and the treatment of CFS, FMS, MCS, and GWS.   Since this is a very new and unknown treatment, information is very fragmented across several discussion groups and sites. The guai/whey combination appears to be the best if not the only treatment for these conditions and lacks any central meeting place for veterans and novices.   Hopefully this group will solve that problem."
Guai-Whey Web Site

J. C. Waterhouse, Ph.D.
"Speeding up the Guaifenesin Reversal Process: Variable Higher Doses (VHD)"

Dr. Devin Starlanyl - co-author of "Fibromyalgia and Chronic Myofascial Pain: A Survival Manual" and author of "The Fibromyalgia Advocate".

- Guaifenesin extract

The Vulvar Pain Foundation - "The Foundation’s purposes are to give hope, support, reliable information, safety, and success to sufferers and their families, to advance the standard of medical practice in treating vulvar pain syndrome, and to promote scientific research."

CISRA - Chronic Illness Support and Research Association's Synergy Health Newsletter

Editor: Editor: Dr. J. C. Waterhouse

Shanjo - a personal FMS site (UK)

Jo Gallagher - a UK Guai'er's web site

UK-FMS-GUAI Web Site - in conjunction with their Yahoo group; some pages can be viewed by members only

Jane White - "Come Guai With Me"

fibroNorth - "your Canadian connection for FM resources"

Miryam Ehrlich Williamson  

"Fibromyalgia, Insulin Resistance, and Diabetes: A Non-medical Approach. Information and Ideas from Miryam Ehrlich Williamson." Author Miryam Williamson says that FM is a "do-it-yourself disorder." Her suggestions concern life-style changes in diet, sleep hygiene, physical activity, and stress management.

Miryam has written several books which can be found in the book nooks on this site (see links under Shopping on home page.)

Homeopathics for Fibromyalgia Recovery

Custom Homeopathics:

"This is all anyone with Fibromyalgia, Chronic Fatigue Syndrome, Heavy Metal Toxicity and a number of related diseases wants. They want it without further risking their health, and without financial drain. These are reasonable, achievable goals."

"Salicylic Acid
Remedies for salicylic acid are a component of the kidney tubule remedies of nearly everyone who has a calcium phosphate accumulation problem. Since the tubule remedy addresses this, it does not make sense to be taking a remedy to eliminate salicylic acid while more is being taken into the body. We suggest people do not take aspirin or use products that list salicylic acid as an ingredient while they take the kidney tubule remedy (about 2 weeks), or during the first few weeks of the kidney remedy."
 

Members of GG can click here to read some information re Custom Homeopathics sent to the list.

You may be asked to log in with your archives password.  If you don't have one as yet please click here.

Not a member yet, To Subscribe, click here.
 

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FMS Research and Other Treatment Options

Miracle Mineral Solution
"Chlorine dioxide is the topic of author, scientist, chemist and humanitarian, Jim Humble's book entitled, "Breakthrough, The Miracle Mineral Supplement of the 21st Century". In Breakthrough, Humble describes how he discovered the use of chlorine dioxide as an alternative treatment for Malaria, which has since led to over 75,000 documented successful treatments of the disease in Africa. Humble's research aims to establish MMS as a powerful alternative treatment to most pathogen-borne diseases.  Chlorine dioxide can be used to kill "disease-bearing bacteria, yeasts, molds, fungi and algae", including MRSA and other deadly pathogens."

The inventor believes that this information is too important to the world that any one person or any group should have control. Follow the link to Jim Humble's web site on this page to download the free e-book which gives complete details of this discovery. Please help make sure that it gets to the world free. There are many medical facts that have been suppressed and this invention must not be added to that list. The name of the e-book is The Miracle Mineral Supplement of the 21st Century.

DVD - Understanding MMS: Conversations with Jim Humble
A feature-length documentary on the origin, science, and proper use of the MMS protocol to disinfect the waters of the human body with chlorine dioxide.  Produced and directed by Adam Abraham.

Life Force Body Balance

Liquid Vitamins & Minerals to nourish and support your body.
Life Force International "Baseline Nutrition" is a basic set of Liquid Vitamins and minerals that each person should have as part of his or her daily diet.

Body Balance is NOT Sal-Free^{TM
(Ingredients: Aloe Vera Juice (Inner-Filet of Leaf), Honey, Natural Black Cherry, Sea Vegetation (Fucus Gardneri, Ulva Lactuca, Alaria Valida, Nereocystis Luetkeana, Laminaria, Ulva Linza, Gigartina, Costaria Costata, Rhodymenia Pertusa). Other Ingredients: Citric Acid, less than 0.2% of Phosphoric Acid and Potassium Benzoate and Potassium Sorbate (to preserve Freshness), and Stevia Extract (Leaf).)}

OsteoProCare, FlexioPlus & Colloidal Silver are Sal-Free^TM

Glutathione Depletion—Methylation Cycle Block Hypothesis:
The Customized Approach developed by: Richard A. Van Konynenburg, Ph.D.
posted by earthwalker on april 10th, 2008

Richard A. Van Konynenburg, Ph.D presented the Glutathione Depletion—Methylation Cycle Block Hypothesis for the pathogenesis of CFS in a poster paper at the 8th international conference of the International Association for Chronic Fatigue Syndrome in Ft. Lauderdale, Florida, on January 10-14, 2007. Due to subsequent requests from clinicians for a description of a treatment approach based on this hypothesis, Van Konynenburg came up with a Simple Approach and a more Customized Approach, based on what he perceives to be the most successful treatment approaches currently used in autism, which he believes shares the same basic pathogenetic mechanism with CFS. In most cases, it will be necessary for the physician to use the Customized Approach and tailor the treatment program to the individual patient. Van Konynenburg has since updated his approach and added some cautions. Please note that some people who have tried this approach have had adverse effects, sometimes of a serious nature.

Van Konynenburg believes that the fundamental biochemical issue in a large subset of the CFS patients is that the methylation cycle is blocked. The main goal of this treatment approach is to remove this block and restore the methylation cycle. He also believes that glutathione depletion is directly responsible for many of the features of CFS, but that it is usually not possible to normalize the glutathione levels on a permanent basis by direct approaches of glutathione supplementation. Rather, the methylation cycle block must be corrected first, to break the vicious circle that is holding down the glutathione levels. In addition to this, about one-third of CFS patients, because of particular genetic polymorphisms, cannot tolerate supplementation with glutathione or other substances intended to help them directly to build glutathione.

Based on what is being done in autism by the Defeat Autism Now! (DAN!) researchers and clinicians and independently by Dr. Amy Yasko, N.D., Ph.D., he suggests two treatment approaches for CFS. The first is a Simple Approach better suited to patients who have been ill a relatively short time and are not disabled. Use of this simplified approach would be based on the hope that the patient does not have certain genetic polymorphisms, which would not be known in this simplified approach.

If the patient does in fact have these polymorphisms, the simplified approach will not be successful, and the customized program should be followed. This simpler treatment approach is based partly on the treatment that was used by Dr. S. Jill James, Ph.D., et al. in the study that found the connection between the methylation cycle block and glutathione depletion in autism (Ref. 2 in his pathogenesis paper), but it makes use of supplements that are part of Dr. Amy Yasko’s treatment program.

The second treatment approach is much more involved and is based on Dr. Yasko’s complete autism treatment. Van Konynenburg believes that the second approach is the treatment that will be necessary for most CFS patients, especially those who are more debilitated/disabled, as well as those with certain genetic polymorphisms.

More

Click here to join a group discussing both the Simplified Protocol and the Customized Protocol

Genetic ByPass--Using Nutrition to Bypass Genetic Mutations #464

Provides background information on the value and usefulness of genetic testing as well as specific recommendations for analyzing and comprehending gene mutations.

Comprehensive Methylation Panel with Methylation Pathway Analysis #697

Fibromyalgia Recovery Group Iodine

 Could this be the solution.......?

" Over 4,000 patients tested
- 95.6% have tested low via urine or serum (blood) testing
- Results – After iodine treatment, subjects reported:
– A sense of overall well being
– Lifting of “brain fog fog”
– Feeling warmer in cold environments
– Increased energy
– Needing less sleep
– Achieving more in less time
– Experiencing regular bowel movements
– Improved skin complexion
– Some subjects reported a dramatic reduction in fibromyalgia
symptoms"

Linked: 28 March, 2008

Fibromyalgia: Putting the Pieces Together

A comparison of various theories with Iodine.

Linked: 9 April, 2008

The Differences and Similarities Between The Guaifenesin and The Iodine Protocols

Linked: 9 April, 2008

The Iodine Group

How much iodine do we need? What are the best sources? What happens if we don't get enough? Or get too much?

"The Iodine Group is gathering information on iodine in an attempt to understand how iodine affects the body and how iodine can best be used to support total body health.

One of the current controversies in the Iodine field is how much iodine is good for the human body. Some people claim that the RDA is appropriate (about 150 mcg per day), while others claim that much larger amounts are needed and recommend orthoiodosupplementation.

Iodine is essential for the body and is detected in every organ and tissue. It is found in high levels in the thyroid, breast, liver, lung, heart, and adrenals. Iodine is essential in pregnancy.

There is increasing evidence that iodine is related to numerous diseases, including cancer. Various clinicians and researchers have found iodine effective with hypothyroid and hyperthyroid conditions, goiter, fibrocystic breasts, uterine fibroids, ovarian cysts, brain fog, constipation, obesity, diabetes, high blood pressure, arrhythmias like atrial fibrillation, and detoxification issues (mercury, perchlorate, fluoride, bromide)."

Linked: 9 April, 2008

Orthoiodosupplementation.
"Orthoiodosupplementation challenges the traditional view on iodine in many fundamental ways, especially (1) how much iodine is appropriate and necessary, (2) how much is "excess" and potentially toxic, and (3) what are the criteria to determine what is "excess".

Traditional View.
The traditionalists see the RDA of approximately 150 mcg per day as appropriate and necessary. Amounts above 1 mg (1000 mcg) would be seen as excessive and potentially toxic. And the primary criterion for determining excess would be thyroid function, especially increases in TSH (Thyroid Stimulating Hormone, a common blood test used to measure thyroid function).

From this point of view, the traditionalists view most Americans as getting sufficient iodine from their daily diets, and the primary concern is Iodine Toxicity, which requires being careful that people do not consume too much iodine.

Orthoiodosupplementation View.
In contrast, the Orthoiodosupplementation point of view sees the RDA as too low, with 6.5 - 12.5 mg of iodine seen as necessary for total body health for most people. Amounts of iodine up to 50 mg (and sometimes more) may be necessary for brief periods of time to restore iodine sufficiency."
Linked: 9 April, 2008

Chronic Neurotoxins:

This website  provides information on chronic human illness caused by exposure to toxins produced by living organisms (biotoxins). Many biotoxins are neurotoxins in that they adversely affect neurologic function. Registered users will be able to complete questionnaires on exposure history, medical history and current symptoms. Users can also take a vision screening test that helps determine whether or not their health problems are likely to be caused by biotoxins. Deficits on the vision test, visual contrast sensitivity, have been associated with chronic illness caused by biotoxin exposure (1-8). If the data suggest biotoxin-induced illness, users can obtain a treatment protocol that has been used to successfully treat many people. This paradigm for diagnosing and treating chronic, biotoxin-mediated illness is based on research by Ritchie C. Shoemaker, MD, and H. Kenneth Hudnell, PhD, and on the clinical experiences of Dr. Shoemaker (1-8).

Our Research

"The pathogens may differ, but the biotoxins they produce all do their damage by setting off an "exaggerated inflammatory response" in humans. While hiding out in fatty tissues where blood-borne disease-fighters can't get at them, they "trick" the body's immune system for fighting germs into launching attacks of inflammation in many organ systems, including joints, muscles, nerves and brain. Increasingly, there is evidence to show that these attacks are carried out by a newly discovered group of molecules, the "proinflammatory cytokines," and that the devastation they cause is clearly linked to recent surges in the rates of heart disease, obesity and diabetes. Much more research is needed, of course. Nonetheless, the recent findings about inflammatory disorders caused by biotoxin-driven cytokines do seem likely to challenge our understanding of the body's "immune system" in the years immediately ahead, while also forcing us to reevaluate much of our currently accepted medical practice. At the same time, these provocative discoveries will require medical researchers to confront the grim possibility that these organisms have "figured out" how to skew our basic immune responses. How? By targeting them with powerful toxic molecules that can wreak havoc on the body's system for protecting itself from disease."

A New Diagnostic Tool And A New Drug Therapy Provide Major Weapons Against The Surging Epidemic of Post-Lyme Syndrome:
http://www.chronicneurotoxins.com/learnmore/lymedisease.cfm

The above website also, "provides information on chronic human illness caused by exposure to toxins produced by living organisms (biotoxins). Many biotoxins are neurotoxins in that they adversely affect neurologic function. Registered users will be able to complete questionnaires on exposure history, medical history and current symptoms. Users can also take a vision screening test that helps determine whether or not their health problems are likely to be caused by biotoxins. Deficits on the vision test, visual contrast sensitivity, have been associated with chronic illness caused by biotoxin exposure (1-8). If the data suggest biotoxin-induced illness, users can obtain a treatment protocol that has been used to successfully treat many people. This paradigm for diagnosing and treating chronic, biotoxin-mediated illness is based on research by Ritchie C. Shoemaker, MD, and H. Kenneth Hudnell, PhD, and on the clinical experiences of Dr. Shoemaker (1-8)." 
"Previous Diagnoses
Chronically ill patients successfully treated by Dr. Shoemaker and others using our treatment protocol had many previous diagnoses, including Depression, Chronic Fatigue Syndrome, Fibromyalgia, Irritable Bowel Syndrome, Multiple Sclerosis, Sick Building Syndrome, Bell's Palsy, learning disability, endometriosis, sensory-neural deafness, low vision, Chronic Soft Tissue Injury (usually from an automobile accident) and Post-Lyme Disease."

The Role Of Infection In Initiating Me/Cfs
"While the question of what causes ME/CFS is logically the first question on people’s mind, it is almost an inappropriate question. It has occupied many years of research on the illness, and has caused enormous confusion, yet now fades to the background because it is becoming apparent that it is almost irrelevant. And the difficulty in finding “a cause” has been one of the prime reasons that people have doubted the reality of this illness. What has become apparent is that there are many “causes”, and what is important is not so much the initiating event or infection, but the mechanism of what perpetuates the illness. In other words, it is not the actual onset that matters, but why the symptoms do not resolve after the onset."

Samento Science Library

Fibromyalgia- is there an infectious connection?
Potential Pathogens As is the case of most forms of "arthritis," no known cause has been established, but a number of possibilities are mentioned in the medical literature. Like many forms of arthritis, the cause of FM is probably not limited to one single factor. 55% of patients identify a "flu-like" or viral type illness, 33% physical trauma/injury and 14% emotional stress as a precursor to the onset of symptoms. The connection of FM to infections is well documented in the literature, especially in relation to Lyme disease, mycoplasma, Chlamydia pneumoniae., Hepatitis C, Parvovirus B19, HIV, and Epstein-Barr. It is believed as many as 25-40% of long-term Lyme patients develop fibromyalgia-like symptoms, particularly pain and fatigue; as many as 25% of HIV patients, 57% of RA patients and 24% of Psoriatic Arthritis patients also have FM symptoms.

Antibiotic Protocols for FMS/CFS

What is a Herxheimer Reaction?
By Donna Herrell, Director, Lyme Alliance Inc.

What is Pulsed Dosing?

"Pulsed dosing refers to administering a dose periodically, such as every 48 hours, rather than once or several times daily. When given in this manner, the immunosuppressive effects of the antibiotics are minimized but their ability to weaken bacterial ribosomes remains intact. Patients gradually increases the dosage of the pulsed antibiotic, so that species of bacteria that are susceptible to all different concentration levels will eventually be targeted."

What is an Antibiotic (IV) "Push"?

"Some medications are also given by IV push, meaning that a syringe is connected to the IV access device and the medication is injected directly (slowly, if it might irritate the vein or cause a too-rapid effect). Once a medicine has been injected into the fluid stream of the IV tubing there must be some means of ensuring that it gets from the tubing to the patient. Usually this is accomplished by allowing the fluid stream to flow normally and thereby carry the medicine into the bloodstream; however, a second fluid injection is sometimes used, a "flush", following the injection to push the medicine into the bloodstream more quickly."

Linked: 5 April, 2008

Alert: Secondary Porphyria Concern When Using Combination Antibiotic Protocols

Note: I was alerted to the following information by a friend who has followed the Marshall protocol seemingly successfully and who then relapsed.  Her investigations lead her to the information regarding Secondary Porphyria.  I think this is worth an alert to anyone following ANY combination antibiotic (abx) protocol or who may be contemplating doing so.  Tesa Marcon

Secondary Porphyria: what you should know before starting a CAP

"Cpni induced secondary porphyriai
Treatment of Chlamydia infection may exacerbate pre-existing genetic porphyria or more likely cause a secondary acute porphyria by making the intracellulari Chlamydia more active or by killing infected cells that already are loaded with high porphyrin levels. Some of what is mis-labeled as a “herx” reaction to treatment, is actually an acute porphyria reaction and not a reaction to bacterial endotoxini which is what a true herxheimer reaction is referring to."

What Is Porphyria?
*** Acquired and secondary porphyria****
Erythrohepatic protopotphyria (liver and red blood cells)

The Acquired porphyrias may be considered to be the result of an environmental insult or poison on either (1) a genetically predisposed individual or (2) a previously normal individual with no familial history or predisposition to the disease.

This means there has been damage to the liver or bone marrow or both, resulting in various deficiencies of different enzymes in the porphyrin-to heme-pathway, with the subsequent depositing of porphyrins in different tissues causing the disease.
Linked: 30 March, 2008

Chlamydia Pneumoniae Help

"A website devoted to the understanding and treatment of Chlamydia Pneumoniae, an infectious bacteria implicated in a number of human illnesses."

"www.cpnhelp.org was started by educated patients who are themselves undergoing combination antibiotic treatment of diseasesi where Cpni has been implicated, including:

Multiple sclerosis, Chronic fatigue, Cardiac disease, Interstitial cystitis, Prostatitis, Crohn's diseasei, Inflammatory bowel diseasei, Alzheimer's disease, Asthma, Arthritis, Fibromyalgia, Chronic refractory sinusitis, Macular Degeneration, and others."

Linked: 28 March, 2008

Antimicrobics and Infectious Diseases Newsletter
"The following iscussion addresses host-cell energ depletion and its possible metabolic onsequences as these metabolic cons qu~nces could be important in th pathogenesis of systemic chlam dial infections."

The Pathogenesis of Systemic Chlamydial Infections:
Theoretical Considerations of Host Cell Energy Depletion - and Its Metabolic Consequences pg..33
Charles~ ~S trattonW. illiamM . Mitchell

Linked: 18 April, 2008

 Rheumatoid Arthritis: The Infection Connection {Targeting and Treating the Cause of Chronic Illness}
By Katherine Poehlmann, PhD,
The premise of this book is that infection by pathogenic microbes has been shown to be a significant co-factor in many autoimmune disorders besides Rheumatoid Arthritis. These conditions include Multiple Sclerosis, Fibromyalgia, Scleroderma, Lupus, CFIDS, Gulf War Illness, tendonitis (i.e., Carpal Tunnel Syndrome), as well as painful sports injuries that fail to heal. Hallmarks of a microbial infection include joint pain, inflammation, bursitis, and chronic fatigue.  The book describes a scientifically proven medical treatment, along with nutrition and diet methods to strengthen the immune system.  Unlike standard medical treatments for RA, this protocol addresses the cause(s), not just relief of symptoms.

The Marshall Protocol for Treating Chronic Fatigue Syndrome & FMS (Sal-Free^tm): & other autoimmune diseases.
 

Interview with Trevor Marshall, Ph.D.
ImmuneSupport.com  -  06-30-2004
Editor's note: Many CFS patients are buzzing about the Marshall Protocol, originally developed for Sarcoidosis patients, for relieving their symptoms. Here is an exclusive interview with Trevor Marshall, Ph.D., who devised the protocol and explains why he believes it works for CFS patients.

Trevor marshall, Ph.D., States: "CFS is a Th1 Immune Disease, Bacterial in Origin"
ImmuneSupport.com  -  07-21-2004 -  [posted 16 July 2004]
By Trevor G marshall, Director
Autoimmunity Research Foundation, Thousand Oaks, California
Re: CFS is a Th1 Immune Disease, Bacterial in Origin
during the last several months, an online CFS community, which can be accessed at Yahoo Health Groups, has found that CFS is indeed also associated with elevated levels of the secosteroid hormone 1,25-dihdroxycholecalciferol, a marker of Th1 inflammatory processes.

See Marshall Protocol Forum
 

The Marshall protocol addresses: CFS/CFIDS/FMS/ME, Chronic Lyme, RA, and 'autoimmune' diseases.

Autoimmunity Research Foundation - Trevor G Marshall, PhD (Chairman)

Also see the Salt/C protocol statement here

Explanation of test for serum phosphorus - indicates sarcoidosis may cause elevations

An online textbook has this chart:
Effects of 1,25?D (1,25?dihydroxyvitamin D) on Mineral Metabolism
Bone
Promotes mineralization of osteoid
Increases resorption at high doses
Kidney
Decreases calcium excretion
Decreases phosphorus excretion
Gastrointestinal Tract
Increases calcium absorption
Increases phosphorus absorption
Blood
Increases calcium
Increases phosphorus

Role of 1,25-D in maintaining phosphorus
Y. Tanaka and H. F. Deluca
PNAS | April 1, 1974 | vol. 71 | no. 4 | 1040-1044
http://tinyurl.com/pxlg6

Role of 1,25-dihydroxyvitamin D3 on intestinal phosphate absorption in rats with a normal vitamin D supply.
J Clin Invest. 1977 Sep;60(3):639-47.
FULL TEXT: http://tinyurl.com/le3q4
PMID: 893667 [PubMed - indexed for MEDLINE]

Bacteriality: Exploring Chronic Disease - About the Marshall Protocol

"The ability of the Th1 pathogens to proliferate in the body is directly related to the vitamin D receptor (VDR). Critically important to the body, the Vitamin D Receptor (VDR) controls the innate immune system – the body’s first line of defense against infection. It’s also responsible for turning on/off a wide array of genes and chemical pathways. One of the VDR’s myriad jobs is to control expression of several families of antimicrobial peptides (AMPs), proteins that kill bacteria, viruses and fungi by a variety of mechanisms including disrupting membranes, interfering with metabolism, and targeting components of the machinery inside the cell.

Although casually referred to as a vitamin by some members of the medical community, molecular biologists have long realized that the precursor form of vitamin D (25-D) is really a secosteroid. Recent molecular modeling research (which has been confirmed by a large amount of clinical data) has shown that levels of 25-D over 20 ng/ml can bind and inactivate the VDR, which subsequently shuts down the innate immune system.

Certain species of bacteria also produce substances that can bind and inactivate the VDR in a manner similar to 25-D. Consequently, people who are infected with the Th1 pathogens and consuming vitamin D are no longer able to produce the AMPs or turn on the innate immune system. This allows their bacteria to proliferate and spread."

A Journey Towards Complete Recovery from Chronic Fatigue Syndrome:

The Story of My Progress on the Marshall Protocol

July 25, 2005

The MP, created by doctor and researcher Trevor Marshall, is based on the idea that CFS and many other chronic diseases (termed Th1 illnesses, including fibromyalgia, lupus, and rheumatoid arthritis), are caused when certain individuals accumulate large amounts of bacteria that have mutated and lost their cell walls. Because of this mutation, antibiotics are unable to kill them directly. Unlike other forms of bacteria, cell wall deficient (CWD) bacteria have also developed the ability to remain alive and proliferate undetected inside the very cells of the immune system that the body uses to kill invading pathogens, allowing them to generate a wide array of painful symptoms.
 

The Marshall Protocol (MP) in Laymen’s Terms -- November 12, 2005.
Presentation before a Lyme Support Group Meeting (Transcript Part 1)
by J. C. Waterhouse, Ph.D.

"I’ve been on the Marshall Protocol for almost a year and I believe I’m on my way to being cured of the chronic fatigue syndrome (CFS), fibromyalgia (FM) and Lyme disease that I have had for over 20 years. A year ago, I would have never imagined I would be well enough to give a presentation like this. Before the Marshall Protocol, I had tried two years of a diverse group of oral antibiotics, that included flagyl and tinidazole. I took some of the antibiotics in high doses and I tried them in various combinations and I didn’t improve."

"I found Dr. St. Amand’s protocol using guaifenesin helped. However, now I believe that the Marshall Protocol probably makes guaifenesin unnecessary. For those of you who are interested, I think this is because when you lower elevated vitamin D levels on the MP, it helps your body excrete phosphate more normally. So, by lowering 1,25D for the MP, you may be accomplishing what guaifenesin does. And, in addition, the MP kills the bacteria, which are the underlying cause."

Vitamin D, the Vitamin D Receptor and Chronic Disease --
Brain Lesions, Vascular Calcification and Osteoporosis:
Two Views of Vitamin D Supplementation and Parathyroid Hormone
by J. C. Waterhouse, Ph.D.

Introduction
Recently, there have been increasing calls for higher levels of vitamin D intake, particularly for the prevention and treatment of various chronic conditions, including osteoporosis in older adults (1). Such calls for increasing vitamin D intake continue, despite a large meta analysis that recently failed to show that vitamin D when added to calcium supplementation had a significantly greater reduction in fractures than calcium alone (2, 3). And another large meta analysis looking at mortality over a 1-5 year period, also failed to show a statistically significant effect from vitamin D supplementation (3, 4). Despite these meta analyses, vitamin D supplementation is still being urged at higher and higher levels and some contend that there is still evidence in its favor (1, 5, 6).

There is another emerging view that centers on the vitamin D receptor (VDR). It is based on the work of Trevor Marshall, Ph.D., who argues that vitamin D receptor (VDR) competence is a crucial, but over looked factor in chronic disease (7, 8). His disease model is based on molecular modeling and clinical research that provides a model of chronic inflammatory disease (7, 8, 9). In this view, a properly functioning vitamin D receptor is seen as key to innate immune function (7, 10, 11).

This new work has revealed that the ability of the VDR to properly stimulate the innate immune system is impeded by high levels of vitamin D – (measured as the precursor form, the secosteroid 25D) - which binds and decreases the activity of the receptor. Thus higher levels of 25D decrease the ability of the active hormonal form of vitamin D, 1,25D, to activate the VDR. Bacterial products have been identified that also block the activity of the VDR (8). Sophisticated computer modeling has determined that olmesartan, an angiotensin receptor blocker, is able to displace substances that block the VDR and itself, activate the VDR (7, 8, 9). When combined with vitamin D reduction and low dose pulsed antibiotics, Marshall’s protocol is gradually able to eliminate cell wall deficient (CWD L-form) and biofilm bacteria at the heart of many unexplained inflammatory diseases. These treatment-resistant bacteria, acquired over a lifetime, are thought to stimulate inflammation in many diseases, ranging from sarcoidosis, “autoimmune” diseases and diseases of aging, such as diabetes, osteoporosis and cardiovascular disease.

As a result of the problems with VDR blockage just mentioned, this new view does not regard vitamin D supplementation and a higher 25D as generally beneficial for the treatment or prevention of chronic inflammatory diseases. These new findings call for a re examination of past research on vitamin D in the light of Marshall’s work and other new research.

Simple explanation of the pathogenesis of Th1 inflammation

-The CWD-bacteria create the dysregulation. They create 1,25-D in quantities that your body can't handle.

-The latest research as pointed out by Dr Marshall clearly indicates that it is not just one bacteria making you sick, but an accumulation of bacteria and the changes they provoke in the cells they infect.

-You get these bacteria in all sorts of ways; by water, soil, milk, sperm, blood transfusion, etc.

-Research found that a cell that was invaded by one bacteria led to 70 new genes and 368 altered genes.

-An immunecell is programmed to kill and destroy invaders

-A bacteria getting in that cell alters that program, making it possible for more bacteria to get in by producing 1,25-D which affects the proteins in the cell's wall, creating gaps where they can sneak in

-If a second bacteria of another species gets in, that leads to even more reprogramming. Possibly that new program makes the immunecell create the cytokine-cascade (the actual inflammation)

-Dr Marshall believes that there are many new programs possible if even more species enter/infect the cells

-Some of these new programs are called RA, some are called Lyme, some CFS etc.

-In other words: the constant reprogramming of the genes in your cells by the different species of CWD-bacteria and possibly the order in which they infect the cells leads to the different Th1-illnesses, not an initial genetic defect

(BTW, On the DVDs Dr Marshall pointed out that the research of Prof. Bach showed that cumulative infection/ gathering of CWD-bacteria had a definite impact)

Cell Wall Deficient Bacteria (CWD)

Cell Wall Deficient bacteria act in four ways:

1. they produce 1,25-D to 'hide' from the immunes ystem

2. they produce 1,25-D to weaken the cell walls of the immune system cells

3. they produce excess 1,25-D which is the hormone that is like the 'fuel' for inflammation (it is needed for the immune-cells to differentiate)

4. they directly stimulate the phagocytes (nucleus) to start a cytokine cascade (the actual inflammation)

CWD bacteria need angiotensin II to do the first 3 and Benicar blocks that, thereby turning it all around:

1. they are less able to hide

2. they can't slip in and out of the cells of the immune system so easily

3. there is less 1,25-D, so less 'fuel' for the inflammation, therefore bringing the inflammation down

-Benicar blocks only angiotensin II type one receptors to inhibit bacterial growth.

-Benicar does not inhibit the good effects of angiotensin II type 2 receptors and this allows the immune system to function normally.

Successive intracellular infection

-We all get invaded/infected by CWD-bacteria constantly.

-These CWD-bacteria alter the genes in the invaded/infected cells (not the human genes/DNA, but only the genes in the infected cells' nucleus).

-If you are first invaded/infected by CWD # 1 you may have 70 genes that are altered (this is shown by research).

-If you are then invaded/infected by bacteria #2, there will be even more genes altered, as well as the ones that are already altered.

-You can see that if you get invaded/infected by more and more species, you can get enormous changes.

-You, and also everyone else on this planet, will give CWD-bacteria to other people.

Biofilms

-Several sorts of bacteria make biofilms. Our 'beloved' CWD too.

-Biofilms consist of colonies of bacteria. This makes up the DNA pea soup, since these colonies consist of all sorts of bacteria, probably also the CWD forms we know.

-Several sorts of bacteria manufacture capnine.

The order in which things seem to develop:

- Bacterium 1 enters cell

- Innate immunity cannot kill it: this might be because vitamin D is too high, but also because of the capnine some bacteria manufacture, so there are now at least two mechanisms the bacteria use to evade being killed by the host (that's us)

- Bacterium 1 starts making biofilm, thereby further evading being killed (this might in fact be mechanism number three)

- Bacterium 1 also starts de-regulating the host (our) DNA

- Now bacterium 2 (might be and probably is of a totally different species) enters the cell and also enters the biofilm, and helps bacterium 1 to make more biofilm

- Even more changes in host (our) DNA are being made

- The bacteria start mutiplying, more capnine is produced, more biofilm, and then the kids move out, so to speak, and move to other cells, etc, etc

(This might be what we are observing under the microscope, once the bacteria's "food has run out", those long strings of pearls, they are probably trying to move to other cells to survive)

- etcetera

Simple explanation of vitamin D metabolism

There are two forms of Vitamin D.....active and inactive.

Vitamin D is not a vitamin. Vitamins are substances the body cannot make (lack of Vitamin C causing scurvy is a good example).

Vitamin D is a secosteroid hormone with a function similar to that which prednisone performs. It was misidentified when it was discovered (at the University of Wisconsin) and the name has stuck. Vitamin D (a secosteroid hormone) is an immune-suppressant.

The body makes the inactive form of Vitamin D in the cells of the skin.

The Vitamin D made in the skin is inactive and easy to measure. It's only function is as a precursor for the body to make the active form of Vitamin D.

People do not need to take Vitamin D in any form (food or supplements) to have enough of the active form in their body because the body makes it in the kidneys and other cells using the inactive form made in the skin.

It only takes a few minutes of natural light to produce enough inactive Vitamin D which is stored by the body for use when natural light is scarce.

The active form of Vitamin D is used by the Vitamin D Receptors (VDR) in almost every cell in the body, including immune system cells, for many vital functions including activating the immune system.

Most chronic disease is caused by inflammation. Inflammation is caused by intracellular bacteria that live within the white cells of the immune system.

These bacteria block activation of the Vitamin D Receptors in the cells, so that key antimicrobial peptides cannot be manufactured by the immune system, and in the process cause the body to produce too much active Vitamin D to accumulate in the cells.

Thus, the bacteria can continue to live and multiply within the cells of the immune system.

People who are ill with inflammatory diseases make too much of the active hormone but scientists rarely measure this because it is difficult and expensive.

People who are ill and have too much of the active Vitamin D will have a low level of the inactive Vitamin D because of a complicated feedback mechanism in the cells that manufacture the active Vitamin D. In other words, the high active Vitamin D reduces the level of the inactive Vitamin D....remember this is the only form scientists usually bother to measure.....erroneously thinking that a low inactive level means a low active level.

Scientists have ignored this crucial fact and base conclusions about disease on the measurement of only the inactive Vitamin D which is low because of the disease process.

When people with chronic disease have their active Vitamin D level measured it is found to be high.

Low inactive Vitamin D does not cause diseases. The diseases cause the low inactive Vitamin D.

Studies of Vitamin D need to measure both inactive Vitamin D (which will be low in chronic disease) and the active Vitamin D which will be high in chronic disease in order to come to accurate conclusions about chronic disease.

People with chronic disease who take Vitamin D (food and supplements) will suppress the action of the Vitamin D Receptor and thus turn-off the immune system's response so it cannot fight the intra-phagocytic bacteria that cause chronic inflammatory diseases.

Cancer is caused by inflammation. Taking supplemental vitamin D will not prevent cancer.

Some people feel better in the short-term when they take Vitamin D because bacteria are not being killed which often causes temporary symptoms due to increased toxins, but they will succumb to the chronic diseases which are caused by intracellular infection more rapidly in the long-run.

Many people with chronic diseases feel ill when they take too much Vitamin D or spend too much time in the sun where their skin makes Vitamin D.

Too much active vitamin D has the effect of taking calcium from the bones and depositing it in the heart or lungs or kidneys (kidney stones), reducing their function.

Too much active Vitamin D causes calcium to leech from bones which results in osteoporosis.

Rickets is caused by too little calcium not lack of Vitamin D."

Last edited on Sat Feb 16th, 2008 14:45 by Meg Mangin R.N.

A-CID
"This group addresses ACQUIRED CHRONIC INFLAMMATORY DISEASE (A-CID) and CHRONIC INFECTION.

The objective of this group is to share information regarding the pathogenesis (cause) of and therapeutic modalities (remedies) for acquired chronic inflammatory/infectious diseases including: BORRELIOSIS, CFS, FIBROMYALGIA, ME, MCS, RA, SLE, LUPUS, SARC ...etc., all which appear to have similar immunopathologies.

This group will also emphasize and explore the new theories behind the Marshall Protocol for chronic inflammation, chronic infection, the dysregulation of vitamin D3, ARBS (angiotensin II Blockers) and antibiotic therapy along with other theories and treatments."

Mycoplasma's: the unsuspected invader
"Chronic fatigue syndrome, fibromyalgia, arthritis, Gulf War Syndrome, multiple sclerosis, lupus, Crohn's disease, and a host of other disorders have baffled physicians and caused untold pain among sufferers for years. Now, there is mounting evidence that these disorders may well be caused by a peculiar species of a highly contagious and insidious stealth-pathogen ... mycoplasma. The further good news is, if we know the cause, we are more likely to be able to determine a cure."

"What is a mycoplasma?  Most of the body's 100 trillion cells have a cell membrane composed of proteins and fats. The purpose of the cell membrane is to regulate the passage of nutrients in and out of the cell. Mycoplasmas are neither viral nor bacterial. They lack a cell membrane enabling them to change form, invade other cells with impunity, and play hide-and-seek within the body's immune system causing any number of auto-immune disorders."

New uses of older antibiotics.
Klein NC, Cunha BA.

Department of Medicine, State University of New York School of Medicine, Stony Brook, USA.

"Despite the development of extended-spectrum penicillins, cephalosporins, and quinolones, the older antimicrobial agents, doxycycline, minocycline, TMP-SMX, clindamycin, and metronidazole (Flagyl), still play an important role in the treatment of infectious diseases."

Bacteria May Be the Cause of IBS
 ProHealthNetwork.com - 09-13-2004

"A USC researcher considers new ways to treat a gastrointestinal condition that affects millions of Americans. The approach represents a reversal in thinking, offering hope for patients. By Alicia Di Rado

The enigmatic-but-common condition known as irritable bowel syndrome, or IBS, is caused by an overgrowth of bacteria in the small intestine, a USC researcher has proposed in the Journal of the American Medical Association."
 

Bacteria Tied To Chronic Illnesses
Infections-illness-med
Calif., D.C., MD.
By Dan Vergano

"Slow growing infections may cause or promote a host of chronic illnesses, including Chronic Fatigue Syndrome, Fibromyalgia Syndrome and Gulf War Syndrome, according to one team of researchers."

This article appeared in the March 2004 issue of the AARP bulletin, Vol. 45, No. 3:

The Klinghardt Neurotoxin Elimination Protocol

Approved by:
American Academy of Neural Therapy and
Institute of Neurobiology (Bellevue, WA, USA)
Institute for Neurobiologie (Stuttgart, Germany)

Academy for Balanced NeuroBiology Ltd (London, United Kingdom)

This lecture was presented by Dietrich Klinghardt M.D., Ph.D. at the Jean Piaget Department at the University of Geneva, Switzerland Oct.2002 to physicians and dentists from Europe, Israel, several Arab countries and Asia

"What are the symptoms?

Any illness can be caused by, or contributed to, or exagerated by neurotoxins. Fatigue, depression, insomnia, memory loss and blunting of the senses are common early symptoms..."

Road Back Foundation
The Road Back Foundation (RBF), founded by patient-volunteers in 1993, is a non profit organization dedicated to support, research and education regarding the treatment and causes of rheumatoid arthritis, scleroderma, lupus, juvenile rheumatoid arthritis, fibromyalgia and related diseases. A particular focus of the Foundation is treatment and research using safe, low-cost, low-dose antibiotic therapy proven effective in NIH-sponsored clinical trials.

Emerging Infectious Determinants of Chronic Diseases
Siobhán M. O'Connor,* Christopher E. Taylor,† and James M. Hughes‡
*Centers for Disease Control and Prevention, Atlanta, Georgia, USA; †National Institutes of Health, Bethesda, Maryland, USA; and ‡Emory University, Atlanta, Georgia, USA

"Evidence now confirms that noncommunicable chronic diseases can stem from infectious agents. Furthermore, at least 13 of 39 recently described infectious agents induce chronic syndromes. Identifying the relationships can affect health across populations, creating opportunities to reduce the impact of chronic disease by preventing or treating infection. As the concept is progressively accepted, advances in laboratory technology and epidemiology facilitate the detection of noncultivable, novel, and even recognized microbial origins. A spectrum of diverse pathogens and chronic syndromes emerges, with a range of pathways from exposure to chronic illness or disability. Complex systems of changing human behavioral traits superimposed on human, microbial, and environmental factors often determine risk for exposure and chronic outcome. Yet the strength of causal evidence varies widely, and detecting a microbe does not prove causality. Nevertheless, infectious agents likely determine more cancers, immune-mediated syndromes, neurodevelopmental disorders, and other chronic conditions than currently appreciated.

Infectious agents have emerged as notable determinants, not just complications, of chronic diseases. Not infrequently, infection may simply represent the first misstep along a continuum from health to long-term illness and disability. Preventing or treating infection or the immune response to infection offers a chance to disrupt the continuum, avoiding or minimizing a chronic outcome. To capitalize on these opportunities, clinicians, public health practitioners, and policymakers must recognize that many chronic diseases may indeed have infectious origins."

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Detoxification

Holy Tea 

"Based on a Medicinal Herb Called Holy Thistle Used For 2000 Years, This Amazing Cleansing Tea Has Been Used Successfully For Over 20 Years."

Dr. Miller's Holy Tea - formulated by Dr. Bill Miller (Ph.D. Nutritional Science) of Jackson, Tennessee - is a unique herbal blend of safe, all-natural ingredients designed to gently cleanse the digestive tract and detoxify the body.

Look up at the right hand corner .. see the little red tab that says "Click Here" ... place your cursor over it and then CLICK for new product Coral Calcium (Sal-FreeTM) and soon there will also be cinnamon for sugar issues.

Glutathione: The Master Antioxidant That Defends Against Illness

April 20, 2005

TORONTO A slew of recent evidence and rare US and international patents have accelerated research on one of the body's chief defenses against illness, the essential, yet little-known protein, glutathione (GSH). Medical patents for natural health interventions are few and far between in the world of chemically-based drugs.

"In the next five or six years, people are going to be using the word glutathione as commonly as they use the word vitamin C or antioxidant," says Dr. Jimmy Gutman, a Montreal-based physician and author of "GSH, Your Body's Most Powerful Protector, Glutathione".

"Glutathione is virtually involved in dozens of critical cell processes and without it we would succumb to our environment literally within hours," says Gutman.

Undenatured Whey (Sal-Free^tm) Protein sites:
http://virtualhometown.com/dfwcfids/medical/whey.html
http://pages.cthome.net/xx/whey.htm
http://pages.cthome.net/xx/gregW.htm
http://www.lef.org/magazine/mag96/96jan2.htm

You can get Glutathione injections in the US by some docs.  You can also probably get cream (or something?).  Any compounding pharmacy would make up what you want.  Some items might need an
RX.  (Raymond Peat told me in private correspondence that dried protein powders (including whey) are a problem and actually can cause FMS type symptoms but many seem to be finding it successful)

Vitamin Shoppe - Nac (N-Acetyl-L-Cysteine), 600 mg, 150 capsules, Buy it at The Vitamin Shoppe and Enjoy FREE Shipping on $75 purchase - Limited time offer!

Twinlab - Nac (N-Acetyl-Cysteine), 600 mg, 60 capsules, Buy it at The Vitamin Shoppe and Enjoy FREE Shipping on $75 purchase - Limited time offer!

N-Acetyl Cysteine (NAC) is the pre-acetylized form of the simple amino acid Cysteine. N-Acetyl Cysteine is a powerful antioxidant and a premier antitoxin and immune support substance. Antioxidants neutralize free radicals, which are produced by normal metabolic activity. When free radicals are left unchecked they cause damage to cells and DNA and are considered by scientists to be a major factor in the aging process. N-Acetyl Cysteine has been shown to provide protection against free radicals as well as a broad range of toxic hazards such as: acrolein (found in barbecue and cigarette smoke and auto exhaust), bromobenzene, paraquat (a toxic herbicide), overdoses of acetaminophen, and the side-effects of cyclophosphamide and adrimycin (anticancer drugs). The key to this protection may be the sulphur and sulfhydryl groups contained in N-Acetyl Cysteine and its derivative, Glutathione. Both Cysteine and Methionine are good precursors of glutathione, but N-Acetyl Cysteine is better. L-cysteine loses approximately 85% of its sulphur group (which becomes the active part of glutathione) in the digestion process, while N-Acetyl Cysteine, a more stable compound, loses only 15%. This means that N-Acetyl Cysteine has almost six times more effective sulphur groups left after digestion.N-Acetyl Cysteine is also a better source of glutathione than taking glutathione itself, because less than half of supplemental glutathione gets out of the digestive system and into the body. This greater efficiency is important since cellular glutathione levels tend to drop 30% to 35% with age. Supplemental N-Acetyl Cysteine may have an anti-aging effect by increasing glutathione levels in the liver, lungs, kidneys and bone marrow.NAC is currently the dietary supplement of choice for building up or conserving the body's stores of glutathion, cysteine, and other sulfhydryl antioxidant resources. NAC is well tolerated, is well absorbed, resists enzymatic breakdown, and has been proven to raise i ...

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Frequency Therapies

Frex News with Ken Uzzell

"Software and development announcements for Frex, a popular Resonance Initiated Field Effects (RIFE) program for generating health and wellness in people. Frex is a great educational tool for people to learn about frequency therapy.

News announcements on my ERS work will also be made here, prior to being published on www.heal-me.com.au"

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Inflammation

Cytokine Inflammation and Management in Fibromyalgia and Chronic Fatigue Syndrome
by John W. Addington -- ImmuneSupport.com -- 07-24-2002
"Inflammation in an otherwise healthy person is a natural response to injury or infection and is part of the normal healing process. Chronic inflammation, on the other hand, can reflect an improperly functioning immune system. Many researchers feel that chronic inflammation along with an altered immune system may either be the cause or contribute to fibromyalgia (FM) and chronic fatigue syndrome (CFS) symptoms. Fortunately, some treatment options are emerging to manage such inflammation and thus limit the discomfort and pain brought on by these ailments."

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Immune System

Is Glutathione Depletion an Important Part of the Pathogenesis of Chronic Fatigue Syndrome  Richard A. Konynenburg Ph.D. (Independent Researcher)

Miracle Mineral Supplement

"Chlorine dioxide is the topic of author, scientist, chemist and humanitarian, Jim Humble's book entitled, "Breakthrough, The Miracle Mineral Supplement of the 21st Century". In Breakthrough, Humble describes how he discovered the use of chlorine dioxide as an alternative treatment for Malaria, which has since led to over 75,000 documented successful treatments of the disease in Africa. Humble's research aims to establish MMS as a powerful alternative treatment to most pathogen-borne diseases.
Chlorine dioxide can be used to kill "disease-bearing bacteria, yeasts, molds, fungi and algae", including MRSA and other deadly pathogens."

Miracle Mineral Solution

  Sal-Free^TM

Depression

Rapid Recovery From Major Depression Using Magnesium Treatment

George A. Eby *, Karen L. Eby

George Eby Research, 14909-C Fitzhugh Road, Austin, TX 78736, United States

Received 18 January 2006; accepted 20 January 2006

Summary Major depression is a mood disorder characterized by a sense of inadequacy, despondency, decreased activity, pessimism, anhedonia and sadness where these symptoms severely disrupt and adversely affect the person’s life, sometimes to such an extent that suicide is attempted or results. Antidepressant drugs are not always effective and some have been accused of causing an increased number of suicides particularly in young people. Magnesium deficiency is well known to produce neuropathologies. Only 16% of the magnesium found in whole wheat remains in refined flour, and magnesium has been removed from most drinking water supplies, setting a stage for human magnesium deficiency.  Magnesium ions regulate calcium ion flow in neuronal calcium channels, helping to regulate neuronal nitric oxide production. In magnesium deficiency, neuronal requirements for magnesium may not be met, causing neuronal damage which could manifest as depression. Magnesium treatment is hypothesized to be effective in treating major depression
resulting from intraneuronal magnesium deficits. These magnesium ion neuronal deficits may be induced by stress hormones, excessive dietary calcium as well as dietary deficiencies of magnesium. Case histories are presented showing rapid recovery (less than 7 days) from major depression using 125–300 mg of magnesium (as glycinate and taurinate) with each meal and at bedtime. Magnesium was found usually effective for treatment of depression in general use.  Related and accompanying mental illnesses in these case histories including traumatic brain injury, headache, suicidal ideation, anxiety, irritability, insomnia, postpartum depression, cocaine, alcohol and tobacco abuse, hypersensitivity to calcium, short-term memory loss and IQ loss were also benefited. Dietary deficiencies of magnesium, coupled with excess calcium and stress may cause many cases of other related symptoms including agitation, anxiety, irritability, confusion, asthenia, sleeplessness, headache, delirium, hallucinations and hyperexcitability, with each of these having been previously documented. The possibility that magnesium deficiency is the cause of most major depression and related mental health problems including IQ loss and addiction is enormously important to public health and is recommended for immediate further study. Fortifying refined grain and drinking water with biologically available magnesium to pre-twentieth century levels is recommended.
c 2006 Elsevier Ltd. All rights reserved.

Antioxidants

Antioxidant Suggestions For Down-regulation of the NO/ONOO- Cycle from Dr. Martin Pall, PhD
by Martin L. Pall, PhD
ImmuneSupport.com
06-12-2007

"Martin Pall, PhD, School of Molecular Biosciences, Washington State University, has identified the NO/ONOO- cycle (the stress-induced increase in the levels of nitric oxide and its oxidant product peroxynitrite, and the biochemical vicious cycle that keeps these levels chronically elevated) as a key mechanism underlying oxidative stress. [See the article: "Nitric Oxide Cycle Theory: Will It Explain CFS, FM, and Other 'Unexplained Illnesses?"]"

Live Chat with Martin L. Pall, PhD – July 6, 2007: Professor of Biochemistry Explains Mechanisms of Chronic Fatigue Syndrome and Fibromyalgia & Suggested Protocol
ImmuneSupport.com
07-09-2007
"Dr. Pall has concluded that a single complex biochemical cycle which elevates levels of potent oxidants in the body – the nitric oxide/peroxynitrite cycle (NO/ONOO- cycle) – is responsible for causing CFS, FM, MCS, PTSD, and other chronic diseases. He believes this vicious cycle is initiated by a range of short-term stressors including viral and bacterial infections, toxic chemicals, physical trauma, and severe psychological stress. And a well-chosen regimen of antioxidants and other agents may help the body down-regulate that cycle."

Amino Acids

Healing Back Pain, Blood Pressure, Fibromyalgia

"This discovery, that 9 out of 10 people were not "utilizing" their dietary protein to rebuild their tissues, but rather converting much of it to sugars and burning it as fuel or storing it as fat, was revolutionary. Dr. Vickery found that most of his patients were in a "nutritional" crisis mode where their systems could not sustain themselves and were depleted to a point of serious degeneration. Dr Vickery determined that if he could find a way for the body to absorb the proper nutrition it needed that the body could begin to heal itself and correct the years of degeneration. So in the early 80's Dr. Vickery teamed up with a score of world renown doctors and chemists to find the missing factor in the nutritional chain. This missing link turned out to be the free form amino acid chain. But not just any amino formula would work. They discovered that in order for the body to utilize all the necessary nutrients the free form amino chain needed to be a perfect balance of amino acids similar to that found in nature."

By 1986 the first "Essential Amino Acid formula" was in production and this perfectly balanced formula was in use. Back pain in thousands of cases responded so well, that Dr. Vickery in a 50 case study had 100% success. These ranged from herniated disks (confirmed by CT Scan and MRI) to lesions that were still intra-diskal yet were causing pain and malfunction."

"What happened next took the staff by surprise. Not only back pain and disk problems were being healed, but arthritis, depression, hypoglycemia, heart problems, blood pressure, fibromyalgia and a host of conditions cleared up coincidentally with the treatment of the back injuries! Needing to confirm these finding independently Dr. Vickery made his formula available to other doctors for free. They began to have similar results!"

Understanding and Curing Fibromyalgia

by Dr. Brice E. Vickery

This article, written by Dr. Brice Vickery, explains the fibromyalgia mystery, its origins in hypoglycemia, and protein deficiency, its relationship to viral, bacterial, yeast and fungal infections. It will illuminate fibromyalgia's connection to spinal degeneration and vitamin and mineral deficiencies. It will also discuss testing methods to explain how to find these conditions in the body. Although the Vickery methods are not standard medical procedure today, they are extremely efficient, cost effective, and highly accurate. Many years of research went into the development of the testing methods and the development of the Platinum Plus Amino Acids, the foundation of all Vickery programs for the cure of many disease conditions, including fibromyalgia.

Amino Acids for Heavy Metal Removal and Much More

Viral Connections

NEW CLUES TO CHRONIC FATIGUE  "Researchers in France have found a probable cause for two painful conditions that have long puzzled medical science.  They discovered traces of a virus in skeletal muscles of people with chronic fatigue syndrome and fibromyalgia - but none in healthy volunteers.  "The virus, known as enterovirus, also turned up in people with inflammatory muscle  diseases", says Fatima Douche-Aourik of the medical school at the University Hospital Center in Saint-Etienne.  "The researchers believe a persistent infection caused by the virus may explain these conditions, according to their report in Vol. 71, Issue 4 of the Journal of Medical Virology."

Detection of enterovirus in human skeletal muscle from patients with chronic inflammatory muscle disease or fibromyalgia and healthy subjects
Enterovirus RNA has been found previously in specimens of muscle biopsy from patients with idiopathic dilated cardiomyopathy, chronic inflammatory muscle diseases, and fibromyalgia or chronic fatigue syndrome (fibromyalgia/chronic fatigue syndrome). These results suggest that skeletal muscle may host enteroviral persistent infection.

Dysbiosis Metabolic Markers - Urine

EBV (Epstein Barr Virus) Lab Test Report

International Conference on Chronic Fatigue Points to Low-grade viral Infections in Brain.  Click here for the full press release  which has an addendum which lists the researchers and their tests and findings.

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Parasites

New Parasite Found In Chronic Fatigue Syndrome (CFIDS)
by Immunesupport.com Staff
ImmuneSupport.com - 01-16-2000
CFS Radio Program Jan. 16th, 2000. Roger G. Mazlen, M.D. Host with Dr. Larry Klapow.

"Dr. Mazlen: Dr. Larry Klapow was a guest on this past Sunday's CFS Radio Show and gave a very important and very informative report of the work he has been doing. Dr. Klapow has been finding a new roundworm type of parasite in CFS patients called "Cryptostrongylus pulmoni". I found this show to be of particular interest to me because I have been found to have this particular parasitic infection and was very interested to learn of the immunologic dysfunctions that it can cause. I truly think that this important work definitely plays a part in the complex puzzle that is known as Chronic Fatigue Syndrome."

"...new species of roundworm parasite/cfids/some roundworms may be using chronic viruses as cofactors to help perpetuate their own survival."

The Rickettsial and Para-Rickettsial Approach of CFS And Related Disorders
CL Jadin MD  -  Johannesburg South Africa
Cecile Jadin from Johannesburg, South Africa, has studied rickettsial infections extensively following the lead given by the Pasteur Institute. She has now seen many patients with chronic illnesses which have a commonality of symptomatology such as fatigue, myalgia, arthralgia, headaches, cognitive problems, recurrent sore throat, sweating, bruising, psychological and neurological disorders and balance problems. Sore throat, enlarged glands, heart abnormalities and RIF tenderness are commonly found on examination.

What is CFS

Normalization of the increased translocation of endotoxin from gram negative enterobacteria (leaky gut) is accompanied by a remission of Chronic Fatigue Syndrome – Source: Neuro Endocrinology Letters, Dec 6, 2007 by M Maes, et al.
ImmuneSupport.com  12-11-2007

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Candida

Iodine: The Candida Killer!
"Perhaps the world's cheapest, most traditional, and best anti Candida agent is the simplest. It is iodine. Yes, I am describing the same iodine found in "tincture of iodine" that your mother used to treat your cuts and scratches when you were a child. Because Big Pharma drug companies have re-educated us to believe that the fancy new (expensive) antibiotics are better and safer than (dirt cheap) iodine, we have lost sight of the one truly miraculous and completely natural antiviral, antibiotic and antifungal agent. Nothing is likely to beat iodine in this regard. However, Big Pharma marketing has taught us that we shouldn't tolerate the deep, long lasting stain that iodine causes when applied to our skin. Yes, iodine will stain your skin, but when used properly that stain can be of enormous value to you in your battle against Candida"

"Ionic zinc is also antifungal, and dietary supplements of zinc can also be helpful in treating candida infections. According to this article, it works synergistically with iodine. How much zinc? You won't believe my theories without substantial evidence, consequently I will refer you to my theoretical article on treating extremely dangerous disorders (smallpox and brown recluse spider bites) with extremely large amounts of zinc here. OK. Forget that, just don't take more zinc than will make you nauseous or more than one milligram per pound of body weight a day (2.2 mg/kg) for more than a month."

"Kefir: The Candida Crusher
"Think of Candida Albicans as being a toxic weed. What do you do? Is it sufficient to kill the weeds? Is it sufficient to just kill the Candida Albicans? In both cases the answer is no. Why? They both come back later, and may even come back with a vengeance.....we must repopulate our intestines with fungi and bacteria that will prevent the regrowth of Candida Albicans."

"What must be done to assure victory over Candida Albicans is to use Kefir after killing Candida Albicans with antifungals, not while killing them, because the good guys in Kefir can easily be killed by antifungals, defeating the purpose of Kefir. I had never heard of Kefir until May of 2004, but after a few weeks of drinking Kefir, I became very willing to offer glowing praise for this old Turkish "feel good" product. Kefir is rich in gut friendly bacteria and yeasts. The friendly yeasts in Kefir repopulate the intestinal tract, replacing the dangerous Candida Albicans, allowing vastly improved digestion, and intestinal health."

Candida: Suggestions from GG Members

Platinum Ionic Mineral Supplement, 50 +/- ppm, 16 fl. oz., Fully Absorbable

 

1)  Use of a prescription cream or OTC cream like Lamisil is okay to get the yeast rash cleared up. When it does clear up, use a non-allergenic roll on or spray deodorant under flaps of skin and breasts to prevent moisture. Don't use cornstarch powder because cornstarch feeds the yeast.
 

2) Use the oral probiotics that you have to refrigerate. Pay attention to foods that can cause yeast build up (sugars, peanuts, starches). You may notice a link between what you eat and when you have an outbreak. It's good to keep a food journal for this.

3) I seem to be able to keep this under control by using my rock crystal deodorant daily on these areas, and by powdering with anti-fungal foot powder before I put on my bra.  Wouldn't use the crystal while everything is sore and sting-y, though!

Caprylic Acid 100 Capsules ---  Caprylic Acid 60 softgels
 

National Candida Center - Includes 3 Self Tests

"Welcome to National Candida Center Online
Your Solution For Treating and Healing Candida Yeast Infections

This site is designed to teach you how to take a pro active stand against yeast infections. Is a yeast infection getting the best of you? We are health care professionals who are experts in treating yeast infections. The National Candida Center offers a comprehensive program and has the solution for treating and healing the plaque of yeast infections."

"These tests are just general indicators.  If you test positive or score high on any one of them, it means that you probably have Candida Overgrowth dysbiosis and it would be in your best interest to get a more accurate medical test as described in the Treatment Program section.  ( see the "Test don’t Guess" section of  Treatment Program.  Generally, the higher your score the greater is the urgency."

Test #1: How often do you eat these foods?

Sugar, Candy, Chocolate, Dessert, Alcohol, Tea/Coffee, Colas, Juice, Pop, Fast Foods, Junk Snacks, Pasta, Noodles, Pizza, Fruit Bread, Rolls, Donuts, Dairy Products, etc.

"First, let us say there is nothing inherently wrong with any of the above foods. Everyone enjoys a treat every now and then. However, if you find yourself eating these kind of foods several times a week, much less every day or several times a day, then it definitely indicates trouble.  That "sweet tooth" could indicate a deeper underlying health problem like Candida Albicans yeast infection Overgrowth. 

With the exception of fruit, most of the items above are not even real foods. They are packaged, processed, refined and lifeless. They are loaded with sugar. If you are craving sugar (and you are if you eat these types of foods) then the chances are high that you are feeding the yeastie beastie."

Test #2: This is a spit test. The best time to do this test is the first thing in the morning as soon as you wake up. Before you rinse, spit, or put anything in your mouth, go get a glass of water (in a clear glass). Now build up a bunch of saliva (just mouth saliva, do not cough up anything) and spit it into the glass of water. Observe what happens. The saliva will float. That is OK and normal. If within 15 minutes you see thin projections extending downward into the water, it is a positive sign for candida. The projections may look like hair, or small strings, like a jelly fish or spider legs, moving down into the water from the saliva floating on the top. Other positive indications might be very "cloudy" saliva that will sink to the bottom of the glass within a few minutes or particles that slowly sink or suspend below the saliva glob.  What you are seeing are colonies of yeast which band together to form the strings.     

Test #3: Review the signs and symptoms to determine if you have Candida Albicans yeast infection Overgrowth. These 3 Self-Tests are provided to help you determine if it would be wise to proceed further. Each one of these tests is a general indicator. If you test positive or score high on any one of them, it means you probably have Candida Albicans yeast infection Overgrowth, or Candida Overgrowth (CO) dysbiosis and it would definitely be in your best interest to begin this program and get a real test, see the "Test don’t Guess" section of  Treatment Program Generally, the higher your score the greater is the urgency.

Candida / Yeast, Nelsons/Bach Homeopathic - 84 Chewable Pills.
 

Eliminate The Underlying Cause
"My name is Mark Cobb, and this website is dedicated to the millions of people who, like me, have suffered through the debilitating effects of, and myriad treatments for what is commonly referred to as Candida, or more accurately, a yeast/fungal overgrowth of Candida albicans, which I was diagnosed with 19 years ago.

Candida Yeast/Fungal overgrowth has been found to be a common occurrence in many disorders and is also present in millions of other people who cannot figure out what is wrong with them, or what to do about it."
 

Health-Truth.com

"Did you know...
Hormonal imbalances can cause Candida?
Antioxidants supplements can stop antifungals from working?
Vitamin and mineral supplements can spread Candida?"

DiagnoseMe.com
"Yeast Candida Infection

Health problems rarely occur in isolation or for obvious reasons

Instead of simply guessing at what might be wrong, let us help you discover what is really going on inside your body based on the many clues it is giving.

Click here for an in-depth online health analysis by The Analyst™ with full explanations and recommendations."

FungusFocus

Fungus, Yeast, Candida, Bacteria, Parasites

Know The Cause

"Does fungus cause human disease? Unfortunately, most physicians say "no!" But careful examination of scriptural and medical literature tells a completely different story. If the answer to the question above is, as most believe, "no", then this website is for naught. If, however, fungus is intimately linked to most serious life-threatening diseases, then this website can assist you in working with your health professional to accomplish 2 goals; getting yourself better and teaching them. Join us often as we constantly update the scientific information you are about to read. Thanks for logging on!"

The Low Carb Cook

Candida, FMS/CFS & Allergies

Low Carb Cooking & Recipes with Sharron
"My experience. I spent many years suffering with a variety of complaints from allergies to Irritable Bowel Syndrome to fibromyalgia (chronic fatigue syndrome or CFS.) I underwent a rigorous candida treatment, essentially following Dr. Robert Atkins plan as outlined in his book “Dr. Atkins New Diet Revolution,” c1992, 1999, guided by my Naturopathic Physician. I cannot say that all of my troubles went away after treatment, but I can say that they got significantly better!"

NaturopathyWorks.com
"Candida's stealth invasion of the human body
Fungi such as candida can cause problems as diverse as frequent bouts of colds, athlete's foot, urinary tract infections, PMS, irritable bowel and "brain fog". Chronic sinusitis is another condition that researchers are finding may have to do with chronic fungal infection in the nose according to a recent Mayo Clinic sinusitis study."

Lovely Health
"What is the cause of Candidiasis - Candida?
Why has it become so common.
What does it do to our bodies.
Candida symptoms.
Diagnosing of Candida.
Candida treatments - Candida diet.
Supplements that can help to cure your gut.
How long will a Candida cure take?
Literature and information on Candidiasis."
 

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Audio/Visual
 

The Neuro-Programmer 2 (NP2) is an innovative software application for the PC, built to help you achieve rapid and long lasting personal change. NP2 stimulates Brainwaves while using Hypnosis, NLP and other Psychological techniques to help you transform your mind and enhance your mental abilities.
 

NP2 combines the methods of many different fields and disciplines into one easy to use program built to help you change yourself.

For example, one way NP2 affects the mind is through a neurological process known as brainwave entrainment. When neurologists first began to measure the brain's response to stimuli, it was found that if light and sound stimuli were precisely timed to the electrical activity of the brain, brainwave patterns could actually be altered. In turn, the mental state of a person could reliably be changed. As an example, someone who is wide awake may start to feel relaxed and drowsy when given a stimulus corresponding to a relaxed brainwave pattern. This has become known as audio/visual brainwave entrainment. Today, 70 years after the discovery of this effect, brainwave entrainment is widely used for a huge variety of purposes, not only to measure the brain's response, but also to train the brain to a particular mental state. It has become so widely used that many clinical EEG units come with entrainment devices.

Brainwave Entrainment's usefulness is not limited to relaxation and enhancing academic performance. It can also be used for reducing headaches, insomnia, ADD, fibromyalgia, stress and even enhancing athletic performance. Refer to the Benefits section for more information.

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Miscellaneous

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Studies

Scottish scientists find 'key to curing ME'
(also known as Chronic Fatigue Syndrome - CFS)

IAN JOHNSTON

SCIENCE CORRESPONDENT

"A REMEDY for the debilitating condition ME, once derided as "yuppie flu", could be available in as little as a year after groundbreaking Scottish research.

A Glasgow University team has discovered a malfunction in sufferers' genes which appears to prompt their immune system to "work overtime", making patients extremely tired.

The lead scientist, Dr John Gow, said a cocktail of drugs could be used to "turn off" the genes, allowing patients to live "a fairly normal" life.

The university has already patented the genes involved as a means of diagnosing the condition, also known as chronic fatigue syndrome (CFS), quickly and cheaply."

Scientists 'Unlock' ME/Chronic Fatigue Syndrome Genetics? ImmuneSupport.com

National Databank for Rheumatic Diseases Needs FMS Participants
NDB Fibromyalgia Research
The National Data Bank for Rheumatic Diseases (NDB) is conducting research into factors that lead to the development of fibromyalgia. We need the help of people with fibromyalgia in researching this important issue.

Skin Offers Clues to Chronic Fatigue Syndrome
ImmuneSupport.com --  09-03-2004
New Approach May Make It Easier to Diagnose Complicated Disorder
By Jennifer Warner  --  WebMD Medical News
Reviewed By Michael Smith, MD on Thursday, August 26, 2004

"The long sought-after physical evidence of chronic fatigue syndrome (CFS) may be found in the skin, according to a new research study.

The study suggests that differences in skin temperature and electrical activity may provide a new way to identify the potentially disabling disorder. CFS causes a variety of common symptoms, such as fever, fatigue, sore throat, headache, muscle weakness, pain, and sleep disturbances, which makes it hard to distinguish it from other ailments."

Microcirculation abnormalities in patients with fibromyalgia – measured by capillary microscopy and laser fluxmetry

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Chronic Fatigue & Fibromyalgia Syndromes

Is Heart Failure Secondary to Mitochondrial Failure in CFS/FMS

International Association for Chronic Fatigue Syndrome Myths

Paul Cheney Articles

The Heart Of The Matter: Dr. Cheney On CFS & Cardiac Issues (Part 2)

(Reference to Nitric Oxide)

Nitric Oxide Cycle Theory: Will It Explain CFS, FM, and Other ‘Unexplained’ Illnesses? - Q&A with Martin L. Pall, PhD
ImmuneSupport.com
06-11-2007
"Martin L. Pall, PhD, is generating excitement in scientific communities worldwide with his theory that a "stressor-initiated" biochemical mechanism - the nitric oxide/peroxynitrite (NO/ONOO-) cycle - may be responsible for CFS, FM, and other syndromes."
(Referenced in Cheney article above)

Ray Peat P.h.D (biologist) links re Nitric Oxide

(Referenced in Cheney & Pall articles above)

Chronic Lyme Disease is a Frequent Cause of Fibromyalgia and CFS

Chronic Neuroimmune Diseases
Melissa Kaplan's
Information on CFS, FM, MCS, Lyme Disease, Thyroid, and more...

"The symptoms experienced by most people with CFS, FM and many other autoimmune diseases occur in people with other disorders. The following disorders may be the cause of some or all the symptoms, or the disorders may set in about the same time as the original autoimmune disorder or in the years following onset, as the body remains stressed beyond the ability of the organs and systems to work effectively. The following disorders should be checked for and treated if found. While treating them may not make you completely well again, treatment will help your body deal better with everything else. Since many of these disorders have neurological components, addressing the disorder may help improve some areas of cognitive function."

Hit-and-run injury to the brain
28 February 2006

"A seven-year tracking study has prompted scientists to suggest that chronic fatigue syndrome could be the result of brain injuries inflicted during the early stages of glandular fever*.

Australian researchers have put the suggestion in this week's Journal of Infectious Diseases, which reveals new findings from the 'Dubbo Infection Outcomes Study'. Since 1999, a team led by UNSW Professor Andrew Lloyd have been tracking the long-term health of individuals infected with Epstein-Barr virus (EBV), Ross River virus (RRV) or Q fever infection. Their goal is to discover whether the post-infection fatigue syndrome that may affect up to 100,000 Australians is caused by the persistence of EBV, a weakened immune system, psychological vulnerability, or some combination of these."

Marshall Protocol - Dr Gary Deed interviewed by Judy Williams

"Judy writes: Recently I spent some time with Dr Gary Deed - a general practitioner in Brisbane who specialises in nutritional and environmental medicine. He graduated from The University of Queensland and has completed post-graduate training in the use of medicinal herbs (Southern Cross Herbal School) plus a Fellowship through the Australasian College of Nutritional and Environmental Medicine.

He has spent a great deal of time in the education of other health professionals to improve services in the area of Integrative Medicine and works closely with diverse patient groups within Women’s Health, Fatigue Spectrum Disorder, Autistic Spectrum Disorder and Diabetes to name a few. He is a current Adjunct Lecturer at the University of New England in Nutrition. He has practiced Integrative Medicine for the past 15 years.

Dr Deed is supervising several patients on the Marshall Protocol, myself included, and I felt it was important to get some accurate information out to fellow CFS people in Australia. Being a 24 year veteran of CFS, I believe hope is the single most important element to maintain in this disease and hopefully, reading about Trevor Marshall’s new science and new medicine will deliver this……"
 

Chronic Fatigue Is in the Genes, Study Finds
Mutations are to blame for a syndrome often scoffed at as imaginary, researchers say.
By Thomas H. Maugh II, Times Staff Writer
April 21, 2006

"Chronic fatigue syndrome, often dismissed as the imaginings of depressed and whiny people, is caused by genetic mutations that impair the central nervous system's ability to adapt to stressful situations, according to a major new study by the Centers for Disease Control and Prevention.

Small changes in many of the genes in the brain prevent the nervous system from rebounding from everyday stress and from less frequent, stronger pressures, eventually triggering a cascade of molecular responses that leave the patient severely debilitated, researchers reported Thursday in 14 separate papers in the journal Pharmacogenomics.

"This is the first credible evidence for a biological basis" for the syndrome, said CDC Director Dr. Julie L. Gerberding."

From the Bench

Increased neutrophil apoptosis in chronic fatigue syndrome
Authors: Kennedy G, Spence VA, Underwood C and Belch JJF.

Institution: Vascular Diseases Research Unit, The Institute of Cardiovascular Research,

"Ninewells Hospital & Medical School, Dundee DD1 9SY, UK.

Conclusion: We have shown that patients with CFS also have increased neutrophil apoptosis and higher levels of TGF-b1. We suggest that increased neutrophil apoptosis and inhibition of transmigration of neutrophils by higher TGF-b1 levels may be indicative of a persistent viral infection or a toxic state giving rise to many of the symptoms which characterize CFS. It might also be that increased apoptosis merely reflects a quicker turnover of neutrophils in this condition, but either way the data presented here provides convincing evidence that many patients with CFS have an underlying detectable abnormality."

Neuro-immune Fatigue And Cellular Hypoxia

David S. Bell MD, FAAP, Editor
Volume 4, Number 2: June 2007

"In the first chapter of this section we discussed the evidence pointing to certain infections causing ME/CFS. The next question is how do these infections cause the prolonged symptoms, and for some, the flu that never ends. The answer to this question involves the immune mechanism set off by the infection, and specifically the abnormal immune mechanism that allows for persistence of symptoms even after the obvious infection has gone away."

Symptom Improvements with Parkinson's Drug Found in Fibromyalgia Trial
ImmuneSupport.com - 10-28-2005

Study on Pramipexole Also Reports Significant Weight Loss
SAN ANTONIO, Oct. 18 /PRNewswire/ -- The dopamine agonist pramipexole, (Mirapex (R), Boehringer-Ingelheim) currently indicated by the FDA for treatment of Parkinson's disease, provides a high response rate of overall fibromyalgia (FM) symptom improvements, as well as promoting significant weight loss, according to data to be presented in a late breaking abstract on Thursday, October 21, at 9:45 am, Ballroom A, at the American College of Rheumatology Annual Scientific Meeting, the National Fibromyalgia Association (NFA) announced today.

Scientists Find Genetic Link for a Disorder

"Imagine you keep waking up with a fierce urge to move your legs, each time further eroding your sleep quota and your partner’s patience. You have restless legs syndrome, a quaintly named disorder whose sufferers may get more respect now that its genetic basis has been identified.

Two independent teams, one in Germany and one in Iceland, have identified three variant sites on the human genome which predispose people to the condition. The advance should help scientists understand the biological basis of the disorder, which could lead to new ideas for treatment."

Alfred Blasi Protocol
Recuperation is a food supplement containing minerals (Sal-Free^tm)
Click here for Recuperat-ion web site and to order.
Click here for Recuperat-ion Research page

Good News For Fibromyalgia Patients: "Dr. Samuel Yue noted that many women with fibromyalgia enjoy a
reduction or even a remission of symptoms during pregnancy.  He then began to research the hormonal changes during pregnancy.  The most striking change is a ten-fold increase in the ovarian hormone called relaxin.  This finding is consistent with the fact that many fibromyalgia patients have their first symptoms after removal of the ovaries or after menopause.  Both of these conditions greatly reduce relaxin levels - a problem not addressed by the usual hormone therapies.  Further research revealed that 70% of female patients experience dramatic improvement when relaxin supplementation is used.  Only 30% of male patients experience this improvement."

Normalization of the increased translocation of endotoxin from gram negative enterobacteria (leaky gut) is accompanied by a remission of Chronic Fatigue Syndrome

 – Source: Neuro Endocrinology Letters, Dec 6, 2007

by M Maes, et al.  ImmuneSupport.com 12-11-2007
"There is now evidence that Chronic Fatigue Syndrome (CFS) is accompanied by an increased translocation of endotoxins from gram-negative enterobacteria through the gut wall, as demonstrated by increased prevalences and median values for serum IgM and IgA against the endotoxins of gram-negative enterobacteria."

Possible role for early-life immune insult including developmental immunotoxicity in chronic fatigue syndrome (CFS) or myalgic encephalomyelitis (ME).

Department of Microbiology and Immunology, C5-135 VMC, College of Veterinary Medicine, North Tower Road, Cornell University, Ithaca, NY 14853, USA. 

Linked: 26 March, 2008

Chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME) in some countries, is a debilitating disease with a constellation of multi-system dysfunctions primarily involving the neurological, endocrine and immune systems. While substantial information is available concerning the complex dysfunction-associated symptoms of CFS, environmental origins of the disease have yet to be determined.
 

Inspiratory airflow dynamics during sleep in women with fibromyalgia
"STUDY OBJECTIVES To determine whether women with fibromyalgia have inspiratory airflow dynamics during sleep similar to those of women with upper-airway resistance syndrome (UARS)." Sleep. 2004 May 1;27(3):459-66. Gold AR, Dipalo F, Gold MS, Broderick J.

New study proves that pain is not a symptom of osteoarthritis, pain causes arthritis
"Pain is more than a symptom of osteoarthritis, it is an inherent and damaging part of the disease itself, according to a study published September 29* in the journal Arthritis and Rheumatism.

The study revealed that pain signals originating in arthritic joints, and the biochemical processing of those signals as they reach the spinal cord, worsen and expand arthritis. In addition, researchers found that nerve pathways carrying pain signals transfer inflammation from arthritic joints to the spine and back again, causing disease at both ends.

Technically, pain is a patient's conscious realization of discomfort. Before that can happen, however, information must be carried along nerve cell pathways from say an injured knee to the pain processing centers in dorsal horns of the spinal cord, a process called nociception. The current study provides strong evidence that two-way, nociceptive "crosstalk" may:

• First enable joint arthritis to transmit inflammation into the spinal cord and brain,

• And then to spread through the central nervous system (CNS) from one joint to another.

Furthermore, if joint arthritis can cause neuro-inflammation, it could have a role in conditions like Alzheimer's disease, dementia and multiple sclerosis."

A comparison study of quality of life in women with fibromyalgia and myofascial pain syndrome
"CONCLUSIONS: The quality of life profile of fibromyalgia patients is quite different from those in the myosfascial pain syndrome group. Myofascial pain syndrome impacted mostly on physical health whereas fibromyalgia impacted on both physical and mental health."  Disabil Rehabil.

Treating Chronic Fatigue Syndrome and Fibromyalgia: Interview with David Moskowitz, M.D. ImmuneSupport.com  10-01-2003

Raymond Peat Ph.D. Biology

Dr. John C. Lowe's page (thyroid protocol for FMS)

Dr. Cheney's Basic Treatment Plan for Chronic Fatigue Syndrome  by Carol Sieverling - ImmuneSupport.com - October 19, 2001

Advanced Techniques For Overcoming CFS, FMS & GWS

Excerpt from: Diagnosing Chronic Fatigue? Check for Sinusitis
ImmuneSupport.com  -- 08-27-2003
"Sinus disease is seldom considered as a cause of unexplained chronic fatigue or pain, despite recent ear, nose, and throat (otolaryngology) studies documenting significant fatigue and pain in patients with sinusitis and dramatic improvement after sinus surgery.

A Harvard study showed that fatigue and pain scores of sinusitis patients were similar or worse than a group 20 years older with congestive heart failure, lung disease, or back pain."

New Test for FMS: Algotensiometry

Fish Oil Supplements Could Help Fight Chronic Fatigue Syndrome
ChronicFatiguesupport.com  09-11-2002
"Chronic Fatigue Syndrome (CFS) or ME may be caused by a chemical imbalance in the brain, according to doctors. They have also suggested that taking daily fish oil supplements may help to alleviate some of the symptoms associated with the condition."

FAQ About Antibiotic Therapy
 

Question 14. DOES THIS TREATMENT WORK FOR FIBROMYALGIA?
Garth Nicholson, M.D. of the Institute of Molecular Medicine at Huntington
Beach, CA., and Daryl See, M.D. of the University of California College of
Medicine at Irvine, CA are finding strong evidence of mycoplasmal blood
infections in a majority of their fibromyalgia patients. Other chronic
infections may also be a source. They recommend long term antibiotic
therapy.  Click here for further information from Dr Nicholson.

Dr. Lida Mattman, a leading microbiologist, retired from Wayne State
University and now running a laboratory with Dr. Seldon Nelson in Warren,
Michigan, reports she is finding the Lyme Disease spirochete, Borrelia
burgdorferi in 40% of the fibromyalgia patients she tests. Dr. Mattman says
should the strep organism be causing a problem, it will not be found until
the Lyme Disease is treated - these organisms overgrow each other. Posted in
the section of our web page titled "Interesting Topics" is another program
used by a fibromyalgia patient that put her disease in remission.
Linked May 11, 2003

Neurotransmitter Deficiency & Repletion
Home  9/16/2002
"Neurotransmitters are the naturally occurring chemicals inside your body that transmit messages between nerve cells.  In the brain alone there are 183 different neurotransmitters.  Two major neurotransmitters are serotonin and catecholamines, which includes norepinephrine, epinephrine, and dopamine. "
"Make no mistake neurotransmitters in the body come from only one source. The amino acids, vitamins, and mineral we eat are converted to neurotransmitters. Eat a diet deficient in these things and you will have a neurotransmitter deficiency. The following foods are serotonin-rich:  avocado, banana, red plum, tomatoes, pineapples, eggplants, walnuts, and possibly coffee.
However, it is not a simple as eating the right foods. From our database we know that prolonged dietary deficiency requires amino acid intake higher than normal food levels can give."
Linked May 22, 2003

Emu Oil Institute About Fibromyalgia
 

"What's the link between Emu Oil and Fibromyalgia?   Emu oil has been proven to be an all-natural anti-inflammatory.  Consumers are reporting relief from the use of Emu Oil as an all-over massage product for fibromyalgia.  Additionally, there are Emu oil based products on the market targeting pain relief...."

Canberra Fibromyalgia and Chronic Fatigue Syndrome Page
Moira A Smith Canberra, Australia moira@masmith.inspired.net.au
sponsored by the A.C.T. ME/CFS Society Inc.
www.mecfscanberra.org.au

Canberra Fibromyalgia and CFS pages
Treatment and Research Links

Fibromyalgia Awareness Pin http://www.teleport.com/~nfra/Ribbon.htm#Top

Health directory: Fibromyalgia
Conditions & Diseases

Milnacipran Significantly Improves Pain and Fatigue in Fibromyalgia Syndrome Patients

The Effects of Collagen Hydrolysat On Symptoms of Chronic Fibromyalgia And Temporomandibular Joint Pain     ( Product )

Treating Fibromyalgia with Testosterone
 

ImmuneSupport.com  -  01-14-2004
Source: The Chronicle of Higher Education, December 12, 2003. Report on fibromyalgia research taking place at Dartmouth College.

The name "Co-Cure" stands for "Cooperate and Communicate for a Cure."
Chronic Fatigue Syndrome and Fibromyalgia Information Exchange Forum

Archives

Co-Cure Message Board: The Co-Cure Message Board is available for open discussions on issues relevant to chronic fatigue syndrome, fibromyalgia, and related illnesses.

Index of Primary Co-Cure Pages

Information for Patients and Supporters with Devin Starlanyl
Fibromyalgia (FMS) and Chronic Myofascial Pain (CMP)
 

Oil Pulling

"The exciting factor of this healing method is its simplicity. It consists of
swishing cold-pressed vegetable oil in the mouth. The healing process is
accomplished by the human organism on its own. In this way it is possible to
heal cells, tissue and all organs simultaneously; the body rids itself of
toxic waste without disturbing the healthy microflora. Dr. Karach says human
beings are living only half their life span. They could potentially live to
be 140 to 150 years old.

He claims that the following illnesses can be effectively healed with the
application of oil therapy: headaches, bronchitis, lung and liver
conditions, toothache, thrombosis, blood diseases, arthrosis, paralysis,
eczema, gastric ulcers, intestinal disorders, heart and kidney ailments,
encephalitis, nervous conditions and female disorders."
http://www.oilpulling.com/
http://www.earthclinic.com/Remedies/oil_pulling.html
http://www.eytonsearth.org/forum/post-505.html
http://www.oilpulling.com/PULLING%20OIL_karacharticle.pdf
http://www.thehindubusinessline.com/life/2003/02/10/stories/2003021000160400.htm

There is a group doing this on curezone.com:
http://curezone.com/forums/f.asp?f=738

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FMS Discussion Forums

FMS Australia

A-CID
"This group addresses ACQUIRED CHRONIC INFLAMMATORY DISEASE (A-CID) and CHRONIC INFECTION.

The objective of this group is to share information regarding the pathogenesis (cause) of and therapeutic modalities (remedies) for acquired chronic inflammatory/infectious diseases including: BORRELIOSIS, CFS, FIBROMYALGIA, ME, MCS, RA, SLE, LUPUS, SARC ...etc., all which appear to have similar immunopathologies.

This group will also emphasize and explore the new theories behind the Marshall Protocol for chronic inflammation, chronic infection, the dysregulation of vitamin D3, ARBS (angiotensin II Blockers) and antibiotic therapy along with other theories and treatments."

Friends International Support Group is run by a Norwegian and an American for CFS/FMS/ME and Chronic pain sufferers all over the world.  There are web forums on several topics.

Men with Fibro
http://www.menwithfibro.com/

FMS-Recovery
http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?A0=fms-recovery

This was a forum I used to own and manage till I handed it over to new managers.  You can discuss everything to do with FMS and treatments there although they do prefer guai discussion is restricted to our Guai-Support.  One can also discuss other research and treatments for FMS under the FMS topic on Guai-Support and other conditions and treatments under the OTHER topic.  Almost everything will fit under FMS topic however.

Whey-CFS-FMS
http://groups.yahoo.com/group/Whey-CFS-FMS/
This discussion group is intended to be a central meeting place concerning whey and the treatment of CFS, FMS, MCS, and GWS. 

Marshall Protocol Forum
"The objective of this group is to share information regarding the pathogenesis (cause) of and therapeutic modalities (remedies) for acquired chronic inflammatory diseases including: BORRELIOSIS, CFS, FIBROMYALGIA, ME, MCS, RA, SLE, LUPUS, SARC ...etc., all which appear to have similar immunopathologies.

This group will strongly emphasize the important work of Dr. Trevor Marshall, PhD, director of research at the not for profit, Autoimmunity Research Foundation, Thousand Oaks, CA. For more information visit www.sarcinfo.com , or the files and links section found here to your left.

Dr. Marshall's work has uncovered a major medical breakthrough regarding the cause and treatment of many acquired chronic inflammatory diseases. The impact of this discovery is just beginning to be realized."

Alfred Blasi Protocol

AlfredblasiprotocolFMSCFS
This is group is dedicated to discussion of recovery from Fibromyalgia (FMS), Chronic Fatigue Syndrome (CFS or CFIDS) or M.E, using the protocol developed by Alfred Blasi. Whether you are a sufferer or are interested in learning more, you are welcome here.
(This is the new group since Alfred Blasi took over.  You need to be a member of yahoo to join.)

Click here for Recuperat-ion web site and to order.

Email Message Lists & Other Groups for Vulvodynia

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Other Sites which may be of interest

Often those diagnosed with FMS also have other conditions that present with overlapping symptoms or which we may eventually discover are part of FMS itself or someone might suffer other conditions entirely different and be interested in checking them out further so I've included a few links here for those interested in researching information for themselves. 

FMS is not a name I personally believe adequately describes our condition(s).  I think it should be described in a way that refers to the results of a systemic low metabolic scenario, e.g. "chronic metabolic debilitation syndrome." (R. L. Garrison, a medical physician, and P.C. Breeding ("A metabolic basis for fibromyalgia and its related disorders: the possible role of thyroid hormone resistance." Article in "Medical Hypotheses.") or 'Compromised ATP syndrome' (mine) or TH1 Disease (Trevor Marshall) or ...?
Tesa Marcon

Click here to see Insulin Resistance Page on this site.  Also contains information regarding Hypoglycemia.

Better Health Channel
Healthier Living Online; Reliable Health Information - quality assured by the Victorian government.

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News Items

Chronic Illness Support and Research Association (CISRA): Synergy Health Newsletter Purpose: Synergy occurs when a dynamic process of cooperation and interaction leads to results that would not have occurred without that process. The name Synergy reflects the process by which we hope to accomplish our goals for the chronically ill: To inspire hope, to educate doctors, patients and researchers about new research findings and treatments, to provide resources, and to empower patients and their families to obtain the most beneficial treatments for themselves and to promote the research that will benefit all.

About the Editor: Dr. J.C. Waterhouse graduated from the University of California, Irvine, cum laude and Phi Beta Kappa, with a bachelor's in Biology (much of it pre medical). Dr. Waterhouse received a Ph.D. in Systems Ecology with a minor in Statistics from U.T. Knoxville, did research at Oak Ridge National Laboratory, and published several papers in scientific journals before becoming ill with chronic fatigue and immune dysregulation syndrome (CFIDS or CFS), fibromyalgia and Lyme Disease, and has since spent nearly 20 years studying these and other illnesses.

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Anti-aging

Anti-aging and Health Basics With References - Duncan Crow - Wholistic Consultant

"Circulation, immune response, organ function, fitness and muscle tone, digestion problems, wrinkles and other age-related damage, arthritis, and other problem areas that parallel disease and aging, are unnecessary and can be improved. This site shows you how the top causes of death and chronic disease states can be prevented and most can be reversed with detoxification, diet and nutrition. Further, by improving natural and acquired shortfalls that are normally associated with aging and disease, a wellness program can keep people well and biologically youthful.

Doctors and other health professionals increasingly rely on these carefully-selected products. Users describe them as phenomenal. Those who like to read the scientific work behind them will be especially impressed."

Degenerative Disorder and Anti-Aging Protocol - Duncan Crow - Wholistic Consultant

"This autoimmune and degenerative disorder protocol has worked in neurodegenerative and mitochondrial disorders for which there is no cure. A non-drug protocol, it addresses age-related degeneration and degenerative and autoimmune diseases, the hallmark of which is low ATP production, that is, impaired cell metabolism resulting in cell senescence and cell death, obvious degeneration and wasting, shriveled organs, and the eventual death of the subject."

Anti-aging Information

"The purpose of this web site is to provide a variety of information, references, links, and resources to people interested in any aspect of anti-aging products, therapies, or lifestyles. We hope to serve as a clearinghouse for information and ideas of all kind so that interested parties may efficiently inform and educate themselves and become more intelligent consumers."

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Sleep Issues and Sleep Apnea

Connection between insulin resistance and sleep apnea.
Obstructive sleep apnoea syndrome impairs insulin sensitivity independently of anthropometric variables: Clinical Endocrinology, Volume 59 Issue 3 Page 374  - September 2003, doi:10.1046/j.1365-2265.2003.01859.x
objectives: Obstructive sleep apnoea syndrome (OSAS) is strongly associated with obesity and characterized by endocrine and metabolic changes including impairment of insulin sensitivity. The aim of this study was to further clarify the insulin dynamics and glucose metabolism in this condition.
Note: See The Marshall Protocol for Treating Chronic Fatigue Syndrome Sal-Free^tm) for item: Benicar ameliorates IR.
 

Sleep apnea can lead to diabetes
Reported by Susan Aldridge, PhD, medical journalist People who have sleep apnea have a higher than average chance of having diabetes, say researchers in France. 

Although many of the participants were overweight, this does not provide a complete explanation of the link between sleep apnea and diabetes. The researchers think that the fall in oxygen levels in the blood that occurs when breathing stops somehow disturbs glucose metabolism.

More Sleep Apnea Articles

Short-term sleep restriction results in impaired glucose tolerance.
A prospective study of self-reported sleep duration and incident diabetes in women. (Original Article: Epidemiology/Health Services/Psychosocial Research).

Archives of Internal Medicine on Sleep Apnea
 

Type 2 diabetes, glycemic control, and continuous positive airway pressure in obstructive sleep apnea.
Babu AR, Herdegen J, Fogelfeld L, Shott S, Mazzone T.
Department of Medicine, Rush University Medical Center, Chicago, IL 60612, USA.

According to research from the University of Illinois at Chicago, patients with type 2 diabetes who also have sleep apnea can lower glucose levels with the help of CPAP therapy. Study participants who underwent CPAP (continuous positive airway pressure device) therapy for at least four hours daily experienced significant reduction in glucose levels. "With such clear evidence for the high risk of sleep apnea among patients with type 2 diabetes, it is encouraging that our data show patients can achieve better control of their glucose levels with CPAP therapy," said Dr. James Herdegen, author of the study, which was published in the Feb. 28 Archives of Internal Medicine.

Influence of Melatonin on Glucose Tolerance & Insulin Sensitivity
"CONCLUSIONS: The present results indicate that in aged women administration of 1 mg of melatonin reduces glucose tolerance and insulin sensitivity. The present data may have both physiological and clinical implications."

Date: Fri, 30 Nov 2007 17:33:26 +1100

From: Papagodesign <papagodesign@GMAIL.COM>

Subject: {CO-CURE] MED: Supplements - Melatonin adverse effects warning

I would like to share the following link with regards to the supplement Melatonin

http://www.nlm.nih.gov/medlineplus/druginfo/natural/patient-melatonin.html

It was suggested to me by a physician to take 3 mg Melatonin at night to help with falling asleep. I followed his advice, after all there had been research into it's effects on jet lag. I was impressed by it's effectiveness in getting me to fall asleep within 30 minutes of taking a tablet. Getting out of bed the next day was another story altogether, but manageable.

I am hesitant swallowing anything without proven benefit and have had my experiences with new and off-label therapies. I kept searching for articles on the supplement's adverse effects. As a dietitian this was something I just had to know. However as I felt better during the day I took a gamble.

Over time I gained weight, was always hungry, developed hyperinsulinaemia and impaired glucose tolerance and lots of other associated problems. then I came across this article and the penny dropped and I stopped Melatonin.

I had been monitoring my blood glucose levels meticulously and post melatonin they returned to normal.

Needless to say, Melatonin's adverse effects compound the already impaired glucose tolerance of CFS sufferers. When taken in conjunction with other drugs such as tricyclic antidepressants may multiply these adverse effects. These adverse effects have now been documented.

The adverse effects of many novel and off-label drug and supplement therapies for CFS symptoms are not well researched in CFS sufferers.

Drug-nutrient interactions are even less publicised.

If you are taking melatonin please read the article and references and monitor yourself carefully.

Sabine Spiesser B.Sc, Grad Dip Ther Dietetics
Dietitian (currently not practicing)
 

TORONTO - Sleep apnea in women may be different from that in men.
An analysis of questionnaire responses from more than 2,700 patients seen at a sleep laboratory showed that men were more likely to have traditional apnea symptoms, such as snoring, while women were more likely to report sleep disturbances, longer sleep latency, and greater difficulty sleeping, Jessica J. Runyon reported at the annual American Lung Association/American Thoracic Society International Conference.

TORONTO -- Obese women with polycystic ovary syndrome face an increased risk of sleep apnea and should be asked about symptoms of the disorder, Dr. Robert B. Fogel said at the annual American Lung Association/American Thoracic Society International Conference.

Obstructive sleep apnea in women with polycystic ovary syndrome (PCOS) may be pathophysiologically related to their androgen excess, speculated Dr. Fogel, adding that androgens could affect the airway anatomy pharyngeal muscle function, and ventilatory control in these women.

In turn, obstructive sleep apnea could contribute to the insulin resistance and cardiovascular risk associated with PCOS, said Dr. Fogel, a pulmonary and critical care medicine physician at Massachusetts General Hospital in Boston.

 

Want to Prevent Cancer? Make Sure You Sleep Well
By Dr. Joseph Mercola  with Rachael Droege
"We all know that sleep is important. The research is quite clear that insufficient rest will result in increased rates of cancer and diabetes, while optimizing your sleep can slow down the aging process. If you need some help getting a good night’s sleep, you can review the sleep guidelines that seem to help many of our patients."

 

Biorhythms and possible central regulation of magnesium status, phototherapy, darkness therapy and chronopathological forms of magnesium depletion.
Durlach J, Pages N, Bac P, Bara M, Guiet-Bara A.
SDRM, Univ P et M Curie, Paris VI, France. Jean.Durlach@wanadoo.fr

 

Sleep Apnea
A.P.N.E.A.net
 

The Apnea Patient's News, Education & Awareness Network

Sleep and Chest Disorders Centre
 

Sleep Apnea, Restless Leg Syndrome, Insomnia, Narcolepsy

The Sleep Site
 

How are sleep problems affecting you?
What is the present impact of sleep disorders on your health?
On your job? On your family? On your business?
How can you tell whether you and those close to you suffer from sleep disorders?...

Inspiratory airflow dynamics during sleep in women with fibromyalgia.
Gold AR, Dipalo F, Gold MS, Broderick J.

Division of Pulmonary/Critical Care Medicine and the Applied Behavioral Medicine Research Institute, Stony Brook University School of Medicine, Stony Brook, NY, USA. avram.gold@med.va.gov

 

"CONCLUSION: Inspiratory airflow limitation is a common inspiratory airflow
pattern during sleep in women with fibromyalgia. Our findings are compatible
with the hypothesis that inspiratory flow limitation during sleep plays a
role in the development of the functional somatic syndromes."

 

aveoTSD - anti-snoring aid

"The aveoTSD (TONGUE STABILIZING DEVICE )anti-snoring aid was developed following several years of clinical research in the treatment of SNORING and OBSTRUCTIVE SLEEP APNOEA (OSA). The aveoTSD is made from a soft medical silicone for comfort and works by holding the tongue forward by gentle suction preventing it from falling back against the back of the throat , keeping the airway open during sleep . Unlike oral dental devices , the aveoTSD does not attach to the teeth, and does not require specialist fitting by a dental professional."

 

The Pillar Procedure

New Treatment For Sleep Apnea
"Restore Medical offers a breakthrough treatment for sleep-related breathing disorders - the Pillar Procedure.
The Pillar Procedure compares favorable[sic] with more invasive surgical procedures LAUP (laser assisted uvulopalatoplasty) and UPPP (uvulopalatopharyngoplasty.) People may well prefer it to the use of CPAP (continuous positive airway pressure,) especially those who find it difficult to sleep wearing the prescribed mask."

 

Sleep Disorders Guide
"Description: A comprehensive information guide about sleep disorders.  Descriptions, symptoms, causes, treatments of various sleep disorders like sleep apnea, insomnia, snoring, restless legs and narcolepsy." 

Raghav

 

 

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Thyroid
 

By David Brownstein M.D.  Overcoming Thyroid Disorders

"Overcoming Thyroid Disorders" by Dr. David Brownstein is a ground-breaking book about how a holistic program can be used to treat Hypothyroidism, Hashimoto's Disease, Graves" Disease, Chronic Fatigue Syndrome, Fibromyalgia and many other conditions. This book will show you how a natural treatment program consisting of: natural thyroid hormone, other natural hormones, vitamins, minerals, diet modifications and detoxification can successfully treat many thyriod and other conditions. Dr. Brownstein illustrates the tremendous success he has had with his holistic treatment program by including over 30 actual case studies from his practice. This book provides hope to those who suffer from thyroid problems because it shows how a natural, holistic prgram can be used to overcome these chronic conditions.

Transdermal Iodine Therapy (for hypothyroid treatment)
Transdermal iodine may boost a low body temperature, even if your thyroid tests indicate your thyroid is "normal". 

Before starting this procedure it is a good idea to record your basal temperature as a baseline and then again after a couple of months.

Daub regular first-aid type iodine on the soft tissue on lower belly after your shower and then don't bathe again for 24 hours. The iodine will wash off if done prior to bathing.  Dimension of the stain should be approximately 3 inches square.  Do not paint over and over the stain -- just do one layer. Your body will absorb the iodine.  If you have enough iodine in your system already, 24 hours after you first apply it, you'll still see a faint yellow stain on your skin.  But if you are deficient in iodine, then you'll absorb it faster and the stain will completely disappear.  Often the stain can be gone in just 2 or 3 hours.  Keep checking and reapply if it has been absorbed.  As the body's need is addressed the stain will last on the skin longer and longer each time.  When the stain is still faintly visible for the 24 hours your body's needs have been met for the time being.  Wait 4 weeks and repeat the same process again.  If you do this "as directed", it's very safe but, of course, having the support of your health care professional never hurts any situation.

 

"the supposed test for iodine deficency by painting a few drops of intense iodine solution on the skin and seeing how long it takes to disappear is crazy, the mechanism is diffusion and the rate of disappearance does not relate to body stores"

a post by laurie on the yahoo adult metal chelation board (19th august 2005)

"I don't agree with the iodine test either. I had the skin painting iodine test done and I could still see the iodine one week later indicating no need for iodine. My urine test indicated I was low in iodine though. I don't believe either of the tests."

 

Thyroid Disease with Mary Shoman
Endocrinologists Say TSH Normal Range is Now 0.3 to 3
New Guidelines Say Millions More Are at Thyroid Risk http://thyroid.about.com/library/weekly/aanewTSHrange.htm
Excerpt: "According to the American Association of Clinical Endocrinologists (AACE), what was normal last year, thyroid-wise, may now be abnormal.

According to the AACE, doctors have typically been basing their diagnoses on the "normal" range for the TSH test. The typical normal levels at most laboratories has fallen in the 0.5 to 5.0 range.

The new guidelines narrow the range for acceptable thyroid function, and the AACE is now encouraging doctors to consider thyroid treatment for patients who test the target TSH level of 0.3 to 3.04, a far narrower range. AACE believes the new range will result in proper diagnosis for millions of Americans who suffer from a mild thyroid disorder, but have gone untreated until now."

Thyroid Disease: Related Conditions

The Celiac/Autoimmune Thyroid Disease Connection: A Major Thyroid Disease Breakthrough
"...researchers found that...organ-specific autoantibodies (i.e., thyroid antibodies) -- will disappear after 3 to 6 months of a gluten-free diet."

Thyroid Info

About (Thyroid).com

An Interview With Dr. Raymond Peat

A Renowned Nutritional Counselor Offers His Thoughts About Thyroid Disease
by Mary Shomon
Raymond Peat, Ph.D. is editor and researcher of a popular and well-known monthly newsletter on nutritiona and health, as well as author of a number of cutting-edge publications that look at aging, nutrition, and hormones from a biochemical perspective. Dr. Peat has a Ph.D. in Biology from the University of Oregon, with specialization in physiology. He has taught at the University of Oregon, Urbana College, Montana State University, National College of Naturopathic Medicine, Universidad Veracruzana, the Universidad Autonoma del Estado de Mexico, and Blake College. He also conducts private nutritional counseling.

I had the privilege to conduct an interview with Ray Peat in November of 2000, touching upon a few of the many interesting points he raises in his various publications.

Click here for more information about Dr. Ray Peat.  He has a monthly newsletter and has written several books, which include Progesterone in Orthomolecular Medicine, Generative Energy: Protecting and Restoring the Wholeness of Life, Mind and Tissue: Russian Research Perspectives on the Human Brain, Nutrition for Women,and From PMS to Menopause: Female Hormones in Context.

 

Dr. John C. Lowe's page (thyroid protocol for FMS)
Metabolic Health

 

Broda O. Barnes, M.D. Research Foundation, Inc.  (thyroid)
"Health begins and ends with the proper balance of the endocrine system."
 

All about Thyroid
 

Wilson's Syndrome Foundation:  (thyroid)

 

 Wilson's Thyroid Syndrome: A Reversible Thyroid Problem

 

Free Online book from Dr Wilson   (thyroid)
"Depression, Fatigue, Easy Weight Gain, Hair Loss, Headaches, Migraines, Fluid Retention, PMS, Low Sex Drive, Anxiety, Panic Attacks, Irritability, Decreased Memory & Concentration, Unhealthy Nails, and many other complaints........ can be caused by a low body temperature."

Interview with Richard Shames, M.D.: Treating Thyroid Dysfunction, Chronic Fatigue Syndrome & Fibromyalgia
ImmuneSupport.com -- 10-31-2003

 

What Your Doctor May Not Tell You About Menopause: The Breakthrough Book on Natural Progesterone by John R. Lee, Virginia Hopkins Women considering hormone replacement therapy (HRT) for menopause symptoms and health benefits should read this controversial, provocative book first. "Advertising and research dollars are spent trying to convince women that estrogen will cure everything from heart disease to Alzheimer's," writes John R. Lee, M.D., "but there is scant evidence for any of these claims and reams of evidence that synthetic estrogens are highly toxic and carcinogenic." Lee has studied the research and concludes that estrogen is not the magic bullet for protection against heart disease and osteoporosis, nor does it retard aging. Natural progesterone, instead, puts postmenopausal women's hormones in balance, says Lee.

 

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Osteoarthritis

Red wine can ease your sore joints

By Pat Hagan, Mail 15:08pm 29th November 2005

"Red wine could hold the secret to repairing joint damage caused by osteoarthritis, according to the latest research looking at the benefits of the drink.

 

Scientists have found that resveratrol, a powerful antioxidant found in certain types of grape, appears to halt the damage done to cartilage - the gristle-like substance that covers the ends of bones in a joint - and speed up recovery.

 

During laboratory experiments, tissue was taken from patients undergoing knee replacement surgery and cells were exposed to small doses of resveratrol."

 

Young Again Resvert  (Look for Resvert product link on left side of Young Again web site) Serving Size: One Capsule twice a day with meals Ingredient: Trans-Resveratrol [25 mg] Proanthrocyanidins ]100 mg] Quercetin (as Quercetin dihydrate) [100 mg]

"In the new study into resveratrol's effects on osteoarthritis, tiny samples of cartilage taken from damaged knee joints were combined with the antioxidant compound.

The results showed it slashed production of chemicals that cause inflammation in the joints by between 50 and 90 per cent.

It also stimulated production of key proteins that make up an important part of the connective tissue in the joints. "

 

Antibiotic Slows Joint Damage in Knees
But it did not relieve pain of osteoarthritis, study found

 

"THURSDAY, July 7 (HealthDay News) -- The tetracycline antibiotic doxycycline may slow the progression of joint damage in people with knee osteoarthritis, researchers report in the July issue of Arthritis & Rheumatism .

 

The study included 431 overweight women with moderate osteoarthritis in one knee who were randomly assigned to receive either 100 milligrams of doxycycline or a placebo twice a day for 30 months.

 

After 16 months of treatment, the people in the doxycycline group had 40 percent less mean loss of joint space within the diseased knee than those in the placebo group. After 30 months, it was 33 percent less.

 

However, even though it slowed disease progression, doxycycline did not reduce the severity of joint pain. The study also found that doxycycline seemed to have no effect on joint space narrowing or pain in the relatively disease-free knees of the women.

 

The study authors concluded that doxycycline did show benefits in slowing the rate of joint space narrowing in knees with established osteoarthritis. However, further research is needed to determine whether the drug had any value in the early treatment or management of osteoarthritis symptoms."

 

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Autoimmune

There are around 80 conditions considered to be autoimmune, including: Addison's Disease, Alopecia, Ankylosing Spondylitis, Celiac Disease, Fibromyalgia, Graves' Disease, Guillain-Barre Syndrome, Hashimoto's Thyroiditis, Inflammatory Bowel Disease, Interstitial Cystitis, Lupus, Multiple Sclerosis, Myasthenia Gravis, Pernicious Anaemia, Psoriasis, Raynaud's Disease, Reiter's Syndrome, Rheumatoid Arthritis, Rosacea, Sarcoidosis, Scleroderma, Sjogren's Syndrome, Vasculitis, Vitiligo or any of the other 80 known autoimmune conditions now so prevalent in our society: http://www.theautoimmunesite.com/disorders.html

American Autoimmune Related Diseases Association

"Welcome to the American Autoimmune Related Diseases Association medical information page.Information provided at this web site is of a general nature and is not intended to take the place of a physician's advice. It is vital that persons diagnosed with, or suspected of having, an autoimmune disease consult with their physician or with the appropriate division at a major teaching hospital, to assure proper evaluation, treatment and interpretation of information contained on this site.  To view a topic select it from the drop down list and click submit"
 

See Marshall Protocol

 

Mechanism Behind Autoimmune Diseases Found

"FRIDAY, Oct. 21 (HealthDay News) -- A mechanism that could result in autoimmune diseases such as rheumatoid arthritis, lupus or diabetes has been identified by researchers at National Jewish Medical and Research Center.

They found that a form of potentially harmful immune system B cells circulating in the body are not permanently inactivated as previously believed. It turns out these harmful B cells can reactivate and launch attacks on the body's own tissue."

 

See Crohne's Disease

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Osteoporosis

National Osteoporosis Foundation

"Osteoporosis is a disease in which bones become fragile and more likely to break. If not prevented or if left untreated, osteoporosis can progress painlessly until a bone breaks. These broken bones, also known as fractures, occur typically in the hip, spine, and wrist.

Any bone can be affected, but of special concern are fractures of the hip and spine. A hip fracture almost always requires hospitalization and major surgery. It can impair a person's ability to walk unassisted and may cause prolonged or permanent disability or even death. Spinal or vertebral fractures also have serious consequences, including loss of height, severe back pain, and deformity."

Osteoporosis Australia

"Osteoporosis is a condition in which the bones become fragile and brittle, leading to a higher risk of fractures (breaks or cracks) than normal bone. Osteoporosis occurs when bones lose minerals such as calcium, and the body cannot replace these minerals fast enough to keep the bones healthy. As a result, bones become thinner and less dense. Osteoporosis is almost as common as high blood pressure, and is more common than high cholesterol. Any bone can be affected by osteoporosis, but the most common sites are bones in the hip, spine, wrist, ribs, pelvis and upper arm. Osteoporosis has no signs or symptoms usually until a fracture occurs - this is why osteoporosis is often called a silent disease. Fractures due to osteoporosis are known as osteoporotic fractures. These can lead to changes in posture (eg developing a stoop or Dowager's hump in your back), muscle weakness, loss of height and deformity of the area affected. Fractures can lead to long-term pain and disability, loss of independence, and may even contribute to premature death."

 

Preventing Osteoporosis with Ipriflavone: Discover the Proven, Safe Alternative to Estrogen Replacement Therapy

 

IPRIFLAVONE, Bone Building Miracle, 60 capsules, 300 mg

Ingredients: Ipriflavone (a bioflavonoid) 300 mg, Strontium 10 mg

Read here for conflicting information regarding Ipriflavone

 

Pharmaceutical Treatment of Osteoporosis

 

Basic Prevention of Osteoporosis   

 

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Hormones

 

Ray Peat on Hormones
From PMS to menopause: Female hormones in context

 

Official Website Of John R. Lee, M.d.  
Natural Hormone Balance

 

Stress, Hormones, and Fibromyalgia

Thomas Slaughter, PharmD

"Since most fibromyalgia patients are women, there is another critical side effect of stress: increased risk of breast cancer.
So, what is the relationship between fibromyalgia, stress, and hormone replacement (and breast cancer)?"

 

A Survivor's Guide to Surgical Menopause
"We're here to talk about surgical menopause. There are lots of ways to get to this state, but most of us got there as a secondary effect of having a hysterectomy with removal of our ovaries This is also called a TAHBSO or total hyst or some variety thereof—the critical element being the BSO, which is medspeak for bilateral salpingo-oophorectomy."
 

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Celiac Disease & Gluten Intolerance

 

What is Celiac Disease

 

A doctor describes coeliac disease

 

Research Data on Celiac Disease & Gluten Intolerance
http://www.celiac.com/stats.html#IMMCO

 

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Nutritional: Vitamins, Minerals, Supplements, etc.

 

The Vitamins and Nutrition Center provides accurate information on vitamins and nutrition, research on vitamins and the different effects of vitamin deficiency.  Be sure to check all vitamins & Supplements against the *Salicylate data bases on this site.

 

A senior executive at Europe's largest drug maker has admitted most prescription medicines don't work for most people, it is reported.  Click on Drugs 'don't work on many people' to see full article.  Allen Roses, of GlaxoSmithKline, is quoted in a national newspaper as saying "more than 90% of drugs only work in 30-50% of people. "

 

Ray Peat on Nutrition

 

Magnesium For Life

"To say that magnesium is important in health and medicine is to underestimate the case for it is needed for more than 300 biochemical reactions in the body. Mg is extremely important for the metabolism of Ca, K, P, Zn, Cu, Fe, Na, Pb, Cd, HCl, acetylcholine, and nitric oxide (NO), for many enzymes, for the intracellular homeostasis and for activation of thiamine and therefore, for a very wide gamut of critical body functions. Magnesium is a particularly crucial element for mediating the vital functions of the nervous and endocrine systems; it helps maintain normal muscle and nerve functions, keeps heart rhythm steady, supports a healthy immune system, and keeps bones strong. Magnesium also helps regulate blood sugar levels, promotes normal blood pressure, and is known to be involved in energy metabolism and protein synthesis. In the nucleus more than half the magnesium is closely associated with nucleic acids and mononucleotides. Magnesium is necessary for the physical integrity of the double helix of DNA, which carries genetic information and the code for specific proteins.

Enzymes are protein molecules that stimulate every chemical reaction in the body. Magnesium is required to make hundreds of these enzymes work." Dr. Carolyn Dean

 

By Mark Sircus, Ac., O.M.D. Transdermal Magnesium Therapy

From the Publisher The rise in chronic illness and disease as associated with the concurrent rise in routine use of, and exposure to toxins and pathogens, is well documented. In fact, chronic illness and disease has become an accepted, and even expected eventuality of modern living. What has not been well documented is the body's natural ability to maintain, and even restore its health, IF properly nourished... not so much with popular foods (which are themselves nutritionally compromised), but with minerals. Magnesium is one of the most important minerals to human health, but also one of the least publicized. Mark Sircus has researched the research on magnesium, and found hundreds of cases that prove its critical role in the maintenance of our health.

 

"According to Dr. Norman Shealy oral magnesium supplementation takes between 6 to 12 months to restore intracellular levels whereas a transdermally applied magnesium lotion with 25% magnesium chloride restores intracellular levels within 4 to 6 weeks. Some nutritional experts now believe that 750 milligrams of magnesium supplement per day is a more physiologic[iv] recommendation but to take that much orally might upset the digestive system, cause diarrhea, and end up not being properly absorbed.
 

Good sources of magnesium include whole grains, nuts, peanut butter, cottonseed, peanut and soybean flours, green leafy vegetables and spices. It's better to get magnesium from foods rather than supplements because high doses have a laxative effect--the body's way of preventing toxic levels. But unfortunately we have to come to terms with the fact that the food values of magnesium have been dropping over the last fifty years making it extremely difficult to receive all we need from foods. The International Medical Veritas Association recommends a system of transdermal magnesium therapy that bypasses the problems evident with oral magnesium supplementation. (See treatment recommendations)"

 

Coconut In Modern Medicine
Coconut Research Centre
Modern medical science is now confirming the use of coconut in treating many of the above conditions. Published studies in medical journals show that coconut, in one form or another, may provide a wide range of health benefits.

coconut oil re salicylate issue.

 

Know Your Fats

 

A New Look At Coconut Oil
Health and Nutritional Benefits from coconut oil: An Important Functional Food for the 21st Century
 

Coconut Oil & Cancer

 

The Oiling of America
Rise of Coronary Heart Disease in the 20th Century
 

Koconut Pacific - The DME System

Niulife Extra Virgin DME Coconut Oil

"niulife" is the new brand name for Kokonut Pacific's DME extra virgin coconut oil. The name reflects its South Pacific origin (niu means coconut in Polynesia) and niulife reminds us of the enormous boost that virgin coconut oil is giving to village life.

Kokonut Pacific developed the Direct Micro Expelling (DME) process so that this organically certified oil could be produced in village situations. Very high standards and specifications are achieved as the oil is extracted within one hour of the nut being opened. The key to our dinkum Fair Trade is that we bring new opportunities for employment as well as enhanced incomes to rural villagers. The focus of our work and mission is to "empower and bring hope".

Coconut Research Centre

Success Stories

Yahoo Coconut Oil Open Forum

The Coconut Diet^TM Forums

Xylitol

Australian Source for Xylitol products   (Xylitol is a 100% natural sweetener without the side-effects of sugar, or artificial sweeteners, as well as a number of key advantages not normally associated with sugar alternatives. Xylitol is antimicrobial, preventing the growth of bacteria and while sugar is acid-forming, xylitol is alkaline enhancing.

One mineral can help a myriad of conditions from atherosclerosis to "copd"to zits:
http://www.tahoma-clinic.com/iodide.shtml

Vitamin D deficiency linked to pain
Posted on Tue, Dec. 09, 2003
UNIVERSITY OF MINNESOTA
 

Vitamin D deficiency linked to pain
BY TOM MAJESKI  --  Pioneer Press
"Do you hurt all over? Researchers at the University of Minnesota say you might feel better if you drank more milk and enjoyed a bit more sunshine."

If you are not sure if this might apply to you, please click here to read the National Institutes of Health's web page on Vitamin D

Click here to read the Marshall Protocol which claims that some, including those of us FMS/CFS need to strictly limit Vitamin D while following his protocol.

 

Dr Rath Health Foundation

The Foundation of Cellular Health:  "Good and poor health is determined at the level of the millions of cells making up the human body. Vitamins, amino acids and trace elements are needed for the thousands of biochemical reactions taking place in each cell and chronic deficiency of these nutrients is the most frequent cause of cellular dysfunction.

Replenishing these cells with essential nutrients supports their bioenergy production and leads to optimal health. However, without adequate supplementation, the normal functioning of cells will eventually become impaired, resulting in poor health.

Dr Rath’s discoveries reveal that the millions of cells in the body require nutritional support to function normally. Cellular Health is based on nutrient synergy and the optimal daily intake of vitamins and other essential nutrients needed to help maintain good health."
 

Natural Eradication of Cardiovascular Disease:

 

Why Animals Don't Get Heart Attacks but People Do, Fourth Revised Edition by Matthias Rath

In Why Animals Don?t Get Heart Attacks, But People Do, Matthias Rath, M.D., an internationally respected cardiovascular researcher, asserts that high cholesterol is not the actual cause of heart disease. Bears, for example, have average cholesterol levels of 400 milligrams per deciliter of blood, but they don?t suffer heart attacks. Why? According to Dr. Rath, it is because bears produce large amounts of vitamin C, which optimizes collagen production and ensures maximum stability of their artery walls.

"Conventional medicine is largely confined to treating the symptoms of this disease. Calcium antagonists, beta-blockers, nitrates and other drugs are prescribed to alleviate angina pain. Surgical procedures (angioplasty and bypass surgery) are applied to improve blood flow mechanically. Rarely does conventional medicine target the underlying problem: the instability of the vascular wall, which triggers the development of atherosclerotic deposits.

Cellular Medicine provides a breakthrough in our understanding of the underlying causes of these conditions and leads to the effective prevention and treatment of coronary heart disease. The primary cause of coronary heart disease and other forms of atherosclerotic disease is a chronic deficiency of vitamins and other essential nutrients in millions of vascular wall cells. This leads to the instability of the vascular walls, lesions and cracks, atherosclerotic deposits and, eventually, heart attacks or strokes. Since the primary cause of cardiovascular disease is a deficiency of essential nutrients in the vascular wall, the daily optimum intake of these essential nutrients is the primary measure to prevent atherosclerosis and help repair artery wall damage."

Rath Foundation Free Online Cellular Health Seminar

The Cause Of Degenerative Disease

"All enerative disease begins as a relatively acid condition in the tissues of the body. These tissues become oxidized, diseased and old.

 

Pleomorphic organisms come out of this acid environment, from elements in the blood in order to clean up these old, diseased, tissues. Bacteria are being found in the diseased tissues of all chronic, degenerative diseases. The Atlantic Monthly, A New Germ Theory by Judith Hooper, February 1999.) These bacteria are there as a result, not the cause. Louis Pasteur (1822-1895) was wrong, these organisms are not caught from the outside, they come from within.

 

Pleomorphism is a concept discovered in the early 1800s. Pleomorphic organisms are micro-organisms that change form (pleo-change, morph-form), viral into bacterial into fungal forms and back again. All micro-organisms change form. Grown in a hospital laboratory, under exactly the same growing conditions, a streptococcus is always a streptococcus but change something, the pH of the growth medium for example and that strep germ will change form into something else, some other micro-organism.

 

These germs come from inside the body, from "tiny dots" that you can see in the blood of any living thing, with any microscope. All micro-organisms, all living things come from these "tiny dots" and all living things turn back into these "tiny dots".

These "tiny dots" themselves, never die. The cell is not the smallest living thing, these "little dots" are. These "tiny dots" are called Protits in German and Somatides in French. There isn't even a name for them in the English language. Isn't that strange?"

 

Continue on to: Pleomorphism

 

"Germs, all microorganisms, (viruses, bacteria, fungi and everything in-between) are the result, not the cause of disease!

 

Louis Pasteur was wrong!
His idea of the bacterial cause of disease was wrong!

 

If "germs" are there as a result, not a cause,
then to treat the resultant germs with antibiotics is in theory and in fact, wrong!
This basic misconception about disease affects all aspects of medicine.
This is why this is a "new"... biology.

 

Louis Pasteur is said to have said on his deathbed that really he had been wrong about his "Germ Theory" of disease. He said then, in so many words, that, it is not the germ that is the problem, it is the internal environment, the internal milieu that allowed the germ to develop in the first place that is the problem."

 

THE VITAMIN C FANATICS WERE RIGHT ALL ALONG
Categories
Health through Nutrition

Practical Health

..."Millions of people could have delayed or avoided health problems such as cataracts, cancer, blood vessel disease, aneurysms, gall stones and more had NIH researchers properly conducted tests to determine the human need for vitamin C....

....Despite recently published data that stands in stark contrast to the RDA and the claim that mega-dose vitamin C supplementation is of no benefit, public health authorities are not forthcoming about their past mistakes."...

 

Research in Aging, Nutrition, and Hormones by Ray Peat

"This website currently reports on my research in aging, nutrition, and hormones. You will find this information in the ARTICLES section.
A variety of health problems are examined (eg., infertility, epilepsy, dementia, diabetes, premenstrual syndrome, arthritis, menopause), and the therapeutic uses of progesterone, pregnenolone, thyroid, and coconut oil are frequently discussed.

My approach gives priority to environmental influences on development, regenerative processes, and an evolutionary perspective. When biophysics, biochemistry, and physiology are worked into a comprehensive view of the organism, it appears that the degenerative processes are caused by defects in our environment."

 

Newsletters on Aging from Ray Peat

 

Ray Peat Various Articles

Excellent!

 

Why Soy Can Damage Your Health

Many links on Dr Joseph Mercola's site

 

 

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Cholesterol

The Greatest Scam in the History of Medicine!  Why Your Fear of Cholesterol Could Be Killing You

"If you're like most people, you honestly believe that keeping a low blood cholesterol level and avoiding fatty foods are the keys to escaping the deadly clutches of heart disease.

For years you've been watching your cholesterol levels like a hawk. You've been meticulously trimming the fat from your meats, drinking skim milk, and eating only the lowest fat foods you can find. Your doctor has even placed you on statins, those 'miracle' cholesterol-lowering drugs that allegedly slash your risk of heart disease by one-third!

Guess what?  You are WASTING YOUR TIME - and MONEY!

The Great Cholesterol Con Anthony Colpo

You don't know it yet, but you've fallen hook, line and sinker for the biggest scam in the history of medicine! You're not alone - your neighbours, your doctor, the reporters who write the health articles appearing in your daily newspaper, and even thousands of experienced researchers have also been effortlessly taken in by this elaborate con!"

 

Have We Been Conned About Cholesterol

Conventional medical wisdom about cholesterol and the role of statins is now being challenged by a small, but growing number of health professionals. Among them is Dr Malcolm Kendrick. A GP for 25 years, he has also worked with the European Society of Cardiology, and writes for leading medical magazines

The Great Cholesterol Lie: The Truth About What Really Causes Heart Disease and How to Avoid It by Malcolm Kendrick

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Lyme Disease

 

Alternative Treatments for Lyme Disease and Co-Infections

"There are many experimental treatments for Lyme Disease and co-infections. This information is not an endorsement of any particular treatment or product or a guarantee of effectiveness or safety. Use at your own risk. We list this information here as a resource for those looking for help in finding alternative lyme disease treatments.

If you have just recently been infected, you have the best chance of ridding yourself of lyme and co-infections permanently by getting appropriate treatment through an LLMD (lyme literate Medical Doctor). The treatment typically given is high dose antibiotics. Co-infections are tested for and treated which gives one a better chance of beating lyme.

If you are a chronic lyme sufferer, in my opinion, you will get the best treatment for your illness through an LLMD (lyme literate Medical Doctor). Unfortunately, many who have been sick for a long time do not have the financial resources to afford treatment through an LLMD which is why this information is provided.

There are a number of factors that affect chronic lyme disease patients and their ability to heal. Biotoxins caused by die-off of bacteria (borrelia and possibly babesia), metal toxicity and co-infections all complicate healing. You will find information about all of these issues in some of the articles listed. here.

You may want to use this site to log your treatment progress: Lyme Log "

 

Lyme Literate Medical Doctors (LLMDs) in the United States
Listed by State

 

Advanced Topics in Lyme Disease

Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses
Joseph J. Burrascano JR., M.D.

 

Lyme Disease Links at WSE

 

Lyme Disease: A Comprehensive Guide To Diagnosis and Treatment

Joseph J. Burrascano Jr M.D.
LDA-UK 6th Annual Tick Borne Diseases Conference - 6 July, 2007

 

Lyme disease: A Look Beyond Antibiotics
Explore Magazine, Volume 14, No. 2, April 2005
Dietrich K. Klinghardt, MD, PhD

In the last decade the majority of outcome-oriented physicians observed a major shift: we realized that it was neither the lack of vitamins or growth hormone that made our patients ill. We discovered that toxicity and chronic infections were most often at the core of the client’s suffering. We watched the discussion, which infection may be the primary one: mycoplasma, stealth viruses, HHV-6, trichomonas, Chlamydia pneumoniae, leptospirosis, mutated strep, or what else?

The new kid on the block is Borrelia Burgdorferi (Bb) and some of us have looked at it for a long time as possibly the bug that opens the door for all the other infections to enter the system. Lyme disease has become a buzzword in the alternative medical field. Since none of the recommended treatments are specific to either one of the microbes, we can never assume that we really know what we treated once a patient has recovered.

 

An in vitro study of the susceptibility of mobile and cystic forms of Borrelia burgdorferi to metronidazole.
"The aim of this study was to examine the susceptibility of mobile and cystic forms of Borrelia burgdorferi to metronidazole." (Flagyl)

 

Bob Joy  "The Cure" - guai, whey and leaky gut syndrome

"A simple treatment for fibromyalgia syndrome (FMS), chronic fatigue syndrome (CFS), chronic lyme disease (LD), irritable bowel syndrome (IBS), gulf war syndrome (GWS), multiple chemical sensitivities syndrome (MCS).  To my knowledge this web site is the only place in the world which brings the three treatments together in a simplified clinically orientated fashion for the patient.    I plan on keeping the three treatments separate because they are separate in the literature and in the eyes of most patients.  This will keep the confusion to the patient to a minimum except that if a patient has one label they must remember that they have the condition, regardless of the applied label.  If you are new to these treatments, I suggest you start with the whey first simply because it is much simpler than guai." - Bob Joy

 

The Marshall protocol addresses: CFS/CFIDS/FMS/ME, Chronic Lyme, RA, and 'autoimmune' diseases.

 

What is a Herxheimer Reaction?
By Donna Herrell, Director, Lyme Alliance Inc.

 

Lyme Disease; It's evolving and the Clock is Ticking

 

Science Library: Samento*

 

Marshall Protocol

"Lyme and borreliosis are both caused by the CWD bacteria called a borrelia. Lyme, by definition of the US's CDC (Center for Disease Control), is caused by the borrelia that was found around Old Lyme and Lyme, Conn. It was named borrelia burgdorferi after the man who discovered it, Dr. Willy Burgdorfi, Phd, a micro-biologist. It was further named borrelia burgdorferi sensu stricto, a sub-species of the family of borrelia, Bb sensu lato.

There are at least 82 strains of Bb sensu stricto in the US. There are over 100 strains of BB sensu lato in the US alone....I understand over 300 worldwide. The medical name should have been used for the disease, borreliosis. But it sure is easier to say Lyme, and the media loved that name for the "new" disease that was "discovered" by two mothers in about 1975, but which really goes back to 1895 or so in the US, and back further in Europe.

Borreliosis is the medical name for a disease in which any borrelia is involved. The world outside of the US uses borreliosis. The folks on the East Coast particularly like to use, and almost insist on using the term "Lyme" for all borrelioses. "...ses" is the plural. "

 

Late and Chronic lyme Disease: Symptom Overlap with Chronic Fatigue Syndrome & Fibromyalgia - ImmuneSupport.com - 05-15-2002 - By Sam Donta,M.D.

"That chronic lyme Disease actually exists, and is likely the most common form of the disease, is supported by epidemiologic studies demonstrating that 30-50-% of treated and untreated patients go on to develop a multisymptom disorder typical of, and indistinguishable from, fibromyalgia and chronic fatigue (1, 28)"

 

Lyme Disease and Rife Machines

 

When Antibiotics Fail: Lyme Disease and Rife Machines, with Critical Evaluation of Leading Alternative Therapies  by Bryan Rosner   "This book describes how electromagnetic frequency devices known as rife machines have been used for over 15 years in private homes to successfully fight Lyme Disease."   "The Lyme Disease community is quickly discovering that rife machine therapy is a life-saving treatment option. Lyme Literate Medical Doctors (LLMDs) often refer their patients to rife machines if antibiotics fail..."

 

Road Back Foundation
The Road Back Foundation (RBF), founded by patient-volunteers in 1993, is a non profit organization dedicated to support, research and education regarding the treatment and causes of rheumatoid arthritis, scleroderma, lupus, juvenile rheumatoid arthritis, fibromyalgia and related diseases. A particular focus of the Foundation is treatment and research using safe, low-cost, low-dose antibiotic therapy proven effective in NIH-sponsored clinical trials.

 

Biochemistry of Lyme disease: Borrelia burgdorferi spirochete/cyst.

From: Townsend Letter for Doctors and Patients | Date: 2/1/2006 | Author: Allen, Henry W.

"Abstract -- It has been noted that many of the symptoms of Lyme disease involve the nervous system. It was shown that the spirochete produces a toxin that disrupts normal nerve function. Through the use of DNA manipulations and a database of known protein toxin DNA sequences, a match was made with a selected Borrelia burgdorferi (Bb) gene and a specific toxin in the database. Protein generated from this cloned Bb gene was examined biochemically and found to have characteristics similar to that of botulinum, the toxin of Clostridium botulinum, a zinc endoproteinase. The action of botulinum (as well as the toxin from the Lyme spirochete) is to prevent, through its action as a specific proteolytic enzyme, the release of the neurotransmitter acetylcholine."

"One of the known actions of Bb toxin is to diminish the release and availability of acetylcholine. This substance is biosynthesized by the body as required in nerve activation and transmission. Supplementation by the precursors of acetylcholine synthesis has been shown to benefit Lyme patients"

 

How Nicotine Works

"Each neurotransmitter has its own specific family of receptors. Nicotine works by docking to a subset of receptors that bind the neurotransmitter acetylcholine. Acetylcholine is the neurotransmitter that (depending on what region of the brain a neuron is in):

Delivers signals from your brain to your muscles

Controls basic functions like your energy level, the beating of your heart and how you breathe

Acts as a "traffic cop" overseeing the flow of information in your brain

Plays a role in learning and memory"

The Science of Salt/C

"22 – Salt/C may be a natural form of the ‘Marshall Protocol’ in which two medications are used to address infected blood cells. The MP uses an anti-inflammatory drug (Benicar) and a mild abx like Minocycline. Vitamin C has anti-inflammatory properties and may act somewhat like the Benicar and salt is a known broad-spectrum anti-microbial (see 21 above) and may act like Minocycline."

 

Lyme Disease Alternative Therapies

 

Starting the Salt/C protocol

 

Finding a Holistic Protocol For CFIDS and Lyme Disease
"This Blog is about Kurt's search for a holistic protocol for Chronic Fatigue Syndrome with Lyme Disease:

This blog is about one person's experience searching through various combinations of natural medicine and cognitive techniques to find solutions to the devastating CFS/CFIDS illness complex, including Lyme Disease."

 

Lyme Strategies
 

Cautions about Salt/C

"A number of reports of serious negative reactions to trials of salt/c have been appeared recently, prompting me to carefully re-evaluate safety issues related to the protocol. Although I had some worrysome symptoms myself initially on salt/c, including some heart palpitations, chest pain, occasional upper left arm pain and kidney area pain, most of that went away when I lowered my dose, or when I took supplements to support each of those systems. I had attributed those events to the herx response so often mentioned in the salt/c forums and although I was worried about the symptoms from time to time, the benefits from salt/c were often substantial and I believed the idea that these were normal herx symptoms. However, after receiving several reports of serious reactions to salt/c, I decided to do some homework. And what I found has changed my views of salt/c significantly."
 

Curezone and Lyme (Links)

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Crohn's Disease

 

Study Supports Bacterial Cause for Crohn's
Finds infectious agent in patients with intestinal condition
By Ed Edelson

"HealthDay Reporter THURSDAY, Sept. 16 (HealthDayNews) -- Scientists say they have new evidence to support the belief that Crohn's disease, an irritable bowel condition that affects a half-million Americans, has a bacterial origin."

 

Mycoplasma's: the unsuspected invader
"Chronic fatigue syndrome, fibromyalgia, arthritis, Gulf War Syndrome, multiple sclerosis, lupus, Crohn's disease, and a host of other disorders have baffled physicians and caused untold pain among sufferers for years. Now, there is mounting evidence that these disorders may well be caused by a peculiar species of a highly contagious and insidious stealth-pathogen ... mycoplasma. The further good news is, if we know the cause, we are more likely to be able to determine a cure."

"What is a mycoplasma?  Most of the body's 100 trillion cells have a cell membrane composed of proteins and fats. The purpose of the cell membrane is to regulate the passage of nutrients in and out of the cell. Mycoplasmas are neither viral nor bacterial. They lack a cell membrane enabling them to change form, invade other cells with impunity, and play hide-and-seek within the body's immune system causing any number of auto-immune disorders."

 

Excerpt from: Curcumin May Be an Effective Therapy for Inflammatory Bowel Disease
ImmuneSupport.com -- 08-27-2003
"Curcumin is a component of the spice turmeric (Curcuma longa) used in curries and mustard, whose anti-inflammatory properties have been recognized for years. These effects are related, in part, to inhibition of the activities of the cyclooxygenase, lipoxygenase, and NF- B in several cell systems. Furthermore, its role in the attenuation of colonic cancer in animal models has also been established."

 

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Heavy Metal Toxicity

 

Amino Acids For Heavy Metal Removal And Much More
"People with health issues have one thing in common: Almost all of them have some degree of digestive failure. One result is that there is a lack of free amino acids. Even if people eat steak three times a day, there is protein starvation at the level of the individual free amino acids."

"Even supplementation of stomach acid and enzymes usually does not enable the body to make enough free amino acids. So necessary materials cannot be produced. One compound that is necessary for health in a polluted world is metallothionein.

The body uses metallothionein to carry away mercury and other toxic metals. But the body cannot make this material if there is a shortage of free amino acids. At DoctorVickery.com  there are more charts showing toxic metal removal using a product called Platinum Plus Essential Amino Acids. Each patient was also required to take a multivitamin-mineral product and 1/4 teaspoon of natural salt ( such as Real Salt or Celtic salt) in water daily. Those who did not take in enough salt failed to make good progress."

Metallothionein Test

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Insulin Resistance

GG's Insulin Resistance Page containing Excerpts & Links to information

PCOS Research News

Drug-induced Disorders of Glucose Tolerance

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