Guai-Support - More Resources

Revised 9 April, 2008

MEMBERS of Guai-Support can search the Guai-Support archives for more information.

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Contents:

If anyone has information and links that they think would be suitable under one of the headings below please send it to me.  The items on this page are for information purposes only.  I have no medical background and only include the page for the reader to investigate for themselves and discuss with their health care professionals.

Fibromyalgia Syndrome and Guai Tools/Management

What is a syndrome?

Symptom Checklists

A combination of symptoms for Fibromyalgia &  Hypoglycemia

Devin's Diagnostic

CDC Chronic Fatigue Syndrome Symptoms

FMS Checklist Filemaker Pro Cross Browser

FMS Checklist for the PC

FMS Checklist for the MAC

Electronic Journal

Pain Scales

Personalizing A Pain Scale

Reminders for taking Medications/Supplements

Various Pill Timers & Organizers

Wendy's Mums' Tip

Wendy's Tip

Medication and Treatment Information

Shed Some Light - Ask a Patient

USA Drug Index

USA Medical Terms from A to Z

Australia - My Dr (from MIMS)

NZ RX - Restricted Meds

Activator Method

Devin Starlynal - Information re Medications

Australian Version of Devin's Information re Medications

Check Potential for Interaction Between Drugs

Blood Pressure Target

Blood Pressure Tests Explained

How To Determine If You Have Low Blood Pressure

Causes and Treatment of Low Blood Pressure

National Fibromyalgia Research Association on Low Blood Pressure

Blood Pressure Monitors

Garlic boosts hydrogen sulfide to relax arteries
At-Home Allergy Pulse Test

CenterWatch Clinical Trials Listing Service

Medication Resources

On-line Meds with no RX needed

On-line Meds with no RX needed - Overnight Delivery

ProceduresToAcquireFreeDrugsForNeedyClients

Disability

GG Disability Resources and Information Page

Access E Bility

Letter to Normals

My Name Is Fibromyalgia

Books, Tapes, CDs, etc

Fly Lady Useful Tips

Step By Step Organizing Tips

Suggestions for Pain Management, Symptom Relief, etc

for FMS symptoms, conditions that often occur in those with FMS and other conditions.

Bonny's Suggestions

Prelief Acid-Reducer

Mitral Valve Prolapse & Magnesium

Chiropractic - Low force care for the spine - Activator method

Magnetic Therapy
Stopping a migraine headache before it ever begins is the new focus of treatments.

Parkinson's Drug May Treat FMS

Activator Method

Taste Tests

Kinesio Taping

Columbia University Researchers Discover On/Off Switch for Chronic Pain (Research only)
 

Spiritual/Energy/Alternative Tools

Meditation

Wisdom Studies at Yahoo

Mastering Emotions

Body - Mind Resources

Reiki: The International House of Reiki - Benefits of Reiki

About Chanting

Prayer for all Religions

Other Guai web sites or FMS sites with Guai content

GuaiLife

Wendy Howard

Bob Joy

J C Waterhouse

Devin Starlanyl

The Vulvar Pain Foundation

CISRA

Shanjo

Jo Gallagher

UK FMS-Guai Group

Jane White

fibroNorth

Miriam Ehrlich Williamson

FMS Research and Treatment Options

Miracle Mineral Supplement
 

Fibromyalgia Recovery Group on Iodine:

Iodine

Fibromyalgia: Putting the Pieces Together

The Differences & Similarities Between the Guaifenesin & Iodine Treatments

The Iodine Group

How Much Iodine Do We Need?

Orthoiodosupplementation
 

Chronic Neurotoxins for FMS

The Klinghardt Neurotoxin Elimination Protocol

The Role Of Infection In Initiating Me/Cfs

Samento Science Library

International Guai-Support Group For Fibromyalgia Home Page

Dr Cheney Articles

Antibiotic Protocols

What is a Herx?

What is Pulsed Dosing?

What is an Antibiotic (IV) "Push"?

Alert: Secondary Porphyria Concern When Using Combination Antibiotic Protocol:

What is Porphyria

Chlamydia Pneumoniae Help

Antimicrobics and Infectious Diseases Newsletter

Breaking Research Reveals Common Bacterium Chlamydia Pneumoniae may be Culprit in CFIDS, FMS and MS
N.A.C. for Chlamydia Pneumoniae

A-CID: Acquired Chronic Inflammatory Disease (A-cid) And Chronic Infection 

Mycoplasmas: The Unsuspected Invader

Fibromaylgia: Is There An Infection Connection?

New Uses For Older Antibiotics (abx)

Bacteria May Be The Cause of IBS

Bacteria Tied To Chronic Illness

Road Back Foundation

Emerging Infectious Determinants of Chronic Diseases

Marshall Protocol for Treating Chronic Fatigue Syndrome Sal-Free^TM)

Explanation Of Test For Serum Phosphorus

Effects of 1,25?D (1,25?dihydroxyvitamin D) on Mineral Metabolism

Journey Towards Complete Recovery From CFS on the Marshall Protocol

The Marshall Protocol (MP) in Laymen’s Terms by J. C. Waterhouse, Ph.D.

Marshall Protocol - Dr Gary Deed interviewed by Judy Williams

Detoxification

Miracle Mineral Supplement

Holy Tea

Glutathione: The Master Antioxidant That Defends Against Illness
Undenatured Whey (Sal-Freetm) Protein sites

N-Acetyl-L-Cysteine (NAC: see also for Pcn)

Frequency Therapy

FreX News with Ken Uzzell

Inflammation

Cytokine Inflammation and Management in Fibromyalgia and Chronic Fatigue Syndrome

Immune System

Is Glutathione Depletion an Important Part of the Pathogenesis of Chronic Fatigue Syndrome

Miracle Mineral Supplement

Depression

Rapid Recovery From Major Depression Using Magnesium Treatment
 

Antioxidants

Anti-oxidant Protocol by Dr Martin L. Pall, PhD

Live Chat with Dr Martin L. Pall, PhD re his anti-oxidant Theory & Protocol

Amino Acids

Healing Back Pain, Blood Pressure, Fibromyalgia

Understanding and Curing Fibromyalgia

Amino Acids for Heavy Metal Removal & Much More

Viral Connections

New Clues to CFS

Detection of Enterovirus in CFS/FMS

Dysbiosis Metabolic Markers - Urine

EVB Lab Report

CFS Linked to HHV-6 Virus

Parasites

New Parasite Found in CFIDS
 

Candida

Iodine: The Candida Killer (includes info on Zinc and Kefir as antifungal)

Suggestions from GG Members

National Candida Centre - Includes 3 Self Tests

Eliminate The Underlying Cause

Health Truth - Did You Know?

Diagnose Me - Yeast Candida Infection

Fungus Focus

Know the Cause

The Low Carb Cook

Naturopathy Works Candida Stealth Invastion

Lovely Health

Miracle Mineral Supplement

Audio/Visual

The Neuro Programmer 2

Miscellaneous FMS

Information for Patients and Supporters with Devin Starlanyl

Oil Pulling

Studies

Scottish Scientists Find 'Key to Curing ME' (CFS)

National Databank for Rheumatic Diseases Needs FMS Participants

Microcirculation abnormalities in patients with fibromyalgia – measured by capillary microscopy and laser fluxmetry
Increased neutrophil apoptosis in chronic fatigue syndrome

Symptom Improvements with Parkinson's Drug Found in Fibromyalgia Trial

Scientists Find Genetic Link for a Disorder (Restless Leg Syndrome)

Alfred Blasi Protocol

Good News for FMS Patients

Normalization of the increased translocation of endotoxin from gram negative enterobacteria (leaky gut)

Possible role for early-life immune insult including developmental immunotoxicity in CFS or ME.

Inspiratory airflow dynamics during sleep in women with fibromyalgia

And more.

Chronic Fatigue Syndrome

Is Heart Failure Secondary to Mitochondrial Malfunction

AACFS Myths of CFS

 Paul Cheney Articles on CFS

The Heart Of The Matter: Dr. Cheney On Cfs & Cardiac Issues (Part 2)

Dr Pall on Nitric Oxide (referenced in Cheney article above)

Ray Peat on Nitric Oxide (referenced in Pall & Cheney articles above)

Chronic Lyme Disease is a Frequent Cause of Fibromyalgia and CFS

Chronic Neuroimmune Diseases

Hit-and-run injury to the brain

Marshall Protocol - Dr Gary Deed interviewed by Judy Williams'

Chronic Fatigue In The Genes, Study Finds

From the Bench

Increased neutrophil apoptosis in chronic fatigue syndrome

Neuro-immune Fatigue And Cellular Hypoxia

Miracle Mineral Supplement

FMS Discussion Forums

FMS Australia

A-CID (Acquired Chronic Inflammatory Disease [and Chronic Infection].

Friends International Support

Men with Fibro

FMS-Recovery

Yahoo Whey Group for FMS/CFS/Gulf War Syndrome

Alfred Blasi Group for Recuperat-ION

Vulvodynia Forums

Other Sites Which May Interest
(If you are using Guai you may discuss other (non-FMS) conditions and treatments under the PLUS topic on the GG mailing list.  Some other conditions will be more prevalent in those of us with FMS but others may not.  Either way you can discuss them all with us so long as they are under the PLUS topic.) 

News Items

Drugmaker's "Blackmail the Public"

Chronic Illness Support and Research Association (CISRA): Synergy Health Newsletter

Anti-aging

Anti-aging and Health Basics With References

Degenerative Disorder and Anti-Aging Protocol

Anti-aging Information
 

Sleep Issues & Sleep Apnea

Connection between insulin resistance and sleep apnea

Sleep Apnea Can Lead To Diabetes

Sleep Apnea Articles

Short-term sleep restriction results in impaired glucose tolerance

Archives of Internal Medicine on Sleep Apnea

Type 2 diabetes, glycemic control, and continuous positive airway pressure in obstructive sleep apnea.

Influence of Melatonin on Glucose Tolerance & Insulin Sensitivity

Melatonin adverse effects warning

Sleep apnea in women may be different from that in men

Want to Prevent Cancer? Make Sure You Sleep Well

Magnesium & Sleep

Sleep Apnea

The Apnea Patient's News, Education & Awareness Network

Sleep Apnea, Restless Leg Syndrome, Insomnia, Narcolepsy

How are sleep problems affecting you?

Sleep Apnea Products and services (Victoria, Australia

Inspiratory airflow dynamics during sleep in women with fibromyalgia.

AveoTSD (anti-snoring aid)

The Pillar Procedure

Sleep Disorders Guide
 

Thyroid

Transdermal Iodine Therapy

Supposed Test for Iodine Sufficiency

Thyroid Disease with Mary Shoman

Thyroid Disease - Related Conditions

Thyroid Info

About Thyroid

Interview with Raymond Peat - Thyroid

John Lowe on Thyroid Resistance

Broda Barnes Research Foundation

All About Thyroid

Wilson's Syndrome Foundation

Free Book From Dr Wilson

Interview With Richard Shames

Osteoarthritis

Red Wine Can Ease Your Sore Joints

Antibiotic Slows Joint Damage in Knees

Miracle Mineral Supplement

Autoimmune

American Autoimmune Related Diseases Association

Marshall Protocol

Mechanism Behind Autoimmune Diseases Found

The Cause Of Degenerative Disease

Antibiotic Protocols

Antibiotics Slows Joint Damage in Knees

Bacteria Tied to Chronic Illness

Mycoplasmas: The Unsuspected Invader

Marshall Protocol - Dr Gary Deed interviewed by Judy Williams

Miracle Mineral Supplement

Osteoporosis

National Osteoporosis Foundation (USA)

Osteoporosis Australia

Preventing Osteoporosis with Ipriflavone

IPRIFLAVONE, Bone Building Miracle

Pharmaceutical Treatment Of Osteoporosis

Basic Prevention of Osteoporosis

Hormones

Raymond Peat on Hormones

John R. Lee Natural Hormone Balance

Stress, Hormones, and Fibromyalgia

A Survivor's Guide to Surgical Menopause

Celiac Disease and Gluten Intolerance

What is Celiac Disease

A Doctor Describes Celiac Disease

Research Data on Celiac And Gluten Intolerance

Nutritional: Vitamins, Minerals, Supplements, etc.

The Vitamin And Nutrition Centre

Drugs Do Not Work For Everyone

Ray Peat on Nutrition

Magnesium for Life

Coconut In Modern Medicine

Know Your Fats

A New Look At Coconut Oil

Coconut Oil & Cancer

The Oiling of America

Koconut Pacific - The DME System

Coconut Research Center

Coconut Research Center Success Stories
Coconut Oil Open Forum

Coconut Diet Forums

Xylitol Information 1

Xylitol Information 2

One Mineral for a Myriad of Conditions

Vitamin D Deficiency Linked to Pain

Dr Rath's Health Foundation

Natural Eradication of Cardiovascular Disease
The Cause Of Degenerative Disease

The Vitamin C Fanatics Were Right All Along

Research in Aging, Nutrition, and Hormones by Ray Peat

Ray Peat on Aging

Ray Peat - Many articles about lots of things.

Why Soy Can Damage Your Health

Cholesterol

The Greatest Scam in the History of Medicine! Why Your Fear of Cholesterol Could Be Killing You

Have We Been Conned About Cholesterol

Lyme Disease

Alternative Treatments for Lyme Disease and Co-Infections

Lyme Literate Medical Doctors in the USA

Miracle Mineral Supplement

Advanced Topics in Lyme Disease

Lyme Disease Links at WSE
Lyme Disease: A Comprehensive Guide To Diagnosis and Treatment

Lyme Disease: A Look Beyond Antibiotics

Miracle Mineral Supplement

Susceptibility of Lyme to Flagyl

Guai, Whey & Leaky Gut Syndrome

Lyme Disease: It's Evolving & the Clock's Ticking

Science Library: Samento*

Marshall Protocol and Lyme

Late and Chronic lyme Disease: Symptom Overlap with Chronic Fatigue Syndrome & Fibromyalgia

Chronic Lyme Disease is a Frequent Cause of Fibromyalgia and CFS

Lyme Disease and Rife Machines

Road Back Foundation

Townsend Letter for Doctors and Patients (see following link re acetylcholine also)

How Nicotine Works (particularly see acetylcholine re Lyme)

The Science of Salt/C

Lyme Disease Alternative Remedies

Starting the Salt/C protocol

Finding a Holistic Protocol For CFIDS and Lyme Disease
Lyme Strategies

Cautions about Salt/C

Curezone & Lyme

Crohne's Disease

Study Supports Bacterial Cause for Chrohn's Disease

Mycoplasma's:  The Unsuspected Invader

Curcumin May Be Effective for Inflammatory Bowel Disease

Miracle Mineral Supplement

Heavy Metal Toxicity

Amino Acids for Heavy Metal Remoal and Much More

Metallothionein Test

Insulin Resistance, (+ Diabetes Type ll, Hypoglycemia, Carbohydrate Intolerance)

GG's Insulin Resistance Excerpts  & Links

PCOS Research News

Drug-induced Disorders of Glucose Tolerance

Miscellaneous

Helpful Medical Abbreviations

Chronic Back Pain Shrinks Thinking Parts of the Brain

An Expert Interview With Dr. John Sarno, Part I: Back Pain Is a State of Mind

An Expert Interview With Dr. John Sarno, Part II: Pain Management Prophet or Pariah?

John Sarno Interview with Spirit.com

The Divided Mind: The Epidemic of Mindbody Disorders

CranioSacral Therapy Targets Nerves

Dr. Mirkin's E-Zine

Mouth Sores (Canker Sores & Cold Sores)

Folk Remedies

Miracle Mineral Supplement

Members may find more information on particular subjects listed below.   Not a member yet?

Click here to Join Guai-Support

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FMS and Guai Tools

What is a Syndrome?

"In medicine and psychology, the term syndrome refers to the association of several clinically recognizable features, signs (discovered by a physician), symptoms (reported by the patient), phenomena or characteristics that often occur together, so that the presence of one feature alerts the physician to the presence of the others."

Symptom CheckLists

With the Symptom Checklist you can rate your pain levels, fog, eyesight, fatigue, gut, etc on a 1 to 10 scale. You can make a new record every day, or once a week or whatever, and since it's filemaker you can export the data you collect to a spreadsheet and make charts to monitor your progress. (The file requires Filemaker to run.  There isn't any password protection so feel free to modify it to suit your needs.

If you already have Filemaker Pro, please download the first file. If you don't have Filemaker Pro, download either the 2nd or 3rd file, choosing the one appropriate for your platform. These last two files are large and may take 10 to 20 minutes to download on a standard 56K modem.

A combination of symptoms for Fibromyalgia &  Hypoglycemia

Devin's Diagnostic (A list of symptoms)

Centers for Disease Control & Prevention Chronic Fatigue Syndrom Symptoms

"Chronic fatigue syndrome can be misdiagnosed or overlooked because its symptoms are common to other many disorders. Fatigue, for instance, is found in hundreds of illnesses. The nature of the symptoms, however, can help distinguish CFS from other illnesses."

FMS Checklist Filemaker Pro Cross Browser

FMS Checklist for the PC

FMS Checklist for the MAC

Runtime files have been tested on Macintosh OS 9 and Windows NT. If you are experiencing problems, please email AussieSue aussie_sue@optushome.com.au with the error message you are getting and she will endeavor to assist you.

Electronic Journal (is down and attempts to contact the manager of it have so far failed)

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Pain Scales

Personalizing A Pain Scale

Reminders for taking meds/supps

(Feedback on any of these very welcome) 

Various Pill Timers Example :

The Cadex Medication Reminder Watch
The CADEX Medication Reminder takes the worry out of taking medications, so you can spend your time enjoying the more important things in life.

Wendy's Mum's Tip:

• Write on the lid of the bottle or packet when, or how many times per day, you have to take the medication (e.g, "x3" or "AM/PM", and so on)

• Keep them all together in a tray, with your added notes visible

• Sort them into order of the first medications of the day at the front, working your way towards the rear during the day.

Wendy's Tip:

By preparing a chart in a spreadsheet on the computer, you can save it and make alterations very quickly as needed.

You can print a separate page for each day.

You can see at a glance if something is due or has already been taken, and there is no need to actually remember what time something has been taken to work out when the next dose is due, because it is there in black and white if you need to check.

• Create a chart that fits onto a single page (Landscape orientation is probably better than Portrait).

• List all medications down the side, with the dose and the frequency of taking them, one per row.

• Add columns across the page for all the times you are to take your meds (upon rising, before breakfast, with breakfast, etc), one column per time period. 

• Use border lines to mark all the columns and rows, so they are clear. 

• Shade the boxes for times that you don’t take a particular drug in grey, so that you are left with a white space that matches a drug and time in the day when it is to be taken.

• When the drug has been dispensed, tick the relevant box, so it can be seen at a glance if something is missing.  Sometimes it is more useful to write the actual time the drug is to be taken, rather than just ticking the box - it all depends on the particular drug and your needs.  For example, pain relief may have be prescribed for four times a day, but if you begin to recover from that particular symptom your need for it may be reduced and you may skip a dose or two; writing the time means you know how long since the last dose if you want more.

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Medication and Treatment Information

Also see Helpful Items  & Sal-Free Pages

USA, Shed Some Light: Ask a Patient for Information

USA Internet Drug Index - 

USA: MedTerms Medical Dictionary A-Z List
Medicine.net

Australia: MyDr.com from MIMS
Search extensive database of Consumer Medicine Information from Australian  pharmaceutical companies. 

NZ: Information for Health Professionals

NZ prescriptions and restricted medicines only.

Information re Medications  Devin Starlynal: "Often, you may have to try many medications before you find the optimum ones for you. We react differently to each medication, and there is no "cookbook recipe" for FMS or MPS. What works well for one of us can be ineffective for another. A medication which puts one person to sleep may keep another awake. Each of us has our unique combination of neurotransmitter disruption and connective tissue disturbance. We need doctors who are willing to stick with us until an acceptable symptom relief level is reached."

Australian Version of Devin's Information re Medications

Drug Digest: Check potential interactions* between two or more drugs
 

What is your Blood Pressure Target

Tests Explained

http://www.mydr.com.au/default.asp?article=3127

What are the acceptable blood pressure levels?

According to the Heart Foundation of Australia, blood pressure less than 120/80 mmHg can be classified as ‘normal’ and blood pressure between 120/80 and 140/90 mmHg is classified as ‘high-normal’ blood pressure.

According to the Heart Foundation, a person could be defined as having high blood pressure (hypertension) if they have systolic pressure greater than or equal to 140 mmHg and/or diastolic pressure greater than or equal to 90 mmHg and/or are receiving medication for high blood pressure. 

Low blood pressure, or hypotension, generally refers to a blood pressure reading below an average of about 120/80 mmHg.

How to determine if you have Low Blood Pressure

What is low blood pressure, what are causes & How is it treated?

National Fibromyalgia Research Association on Blood Pressure

 Blood Pressure Monitors

Garlic boosts hydrogen sulfide to relax arteries
Eating garlic is one of the best ways to lower high blood pressure and protect yourself from cardiovascular disease. A new study from the University of Alabama at Birmingham (UAB) shows this protective effect is closely linked to how much hydrogen sulfide (H2S) is produced from garlic compounds interacting with red blood cells.

Issue 8, 2004 Update: Food Allergies/Sensitivities and the Pulse Test:Withdrawal Reaction Mechanisms, Overcoming Resistance, New Pulse Test Tips and Some Other Methods

by J. C. Waterhouse, Ph.D.

At-home short cut pulse test (originated decades ago by dr. Arthur coca) to arrive at a diet that minimizes reactions. The short cut version of the test is a controlled test, which if done correctly, is objective and often gives very strong proof of the reaction:

I wrote out these brief directions for myself which others might find them useful (Tesa):

If any food raises the resting pulse over 12 beats per minute above your morning resting pulse, that food should be eliminated; you are certainly allergic to it or can't digest that much of it. If your pulse has not returned to its morning resting rate one hour later, you are still having an allergic reaction to the food you ate previously and cannot get a decent result on another food until either your pulse slows again or until the next morning. You may, however, continue to eat other foods that you know do not provoke allergic reactions.

If a food causes no acceleration of pulse (at least 6 beats above your estimated normal maximal) that food can be tentatively labeled non-allergenic.

CenterWatch Clinical Trials Listing Service

"Welcome to the CenterWatch Clinical Trials Listing Service!

You can use this site to find a wealth of information about clinical research, including listings of more than 41,000 active industry and government-sponsored clinical trials, as well as new drug therapies in research and those recently approved by the FDA. Our site is designed to be an open resource for patients interested in participating in clinical trials and for research professionals. Please visit the ‘Your Privacy’ page to learn more about our privacy and confidentiality policies."

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Medication Resources
I do not recommend these sources as I've had no experience with them but I provide them for interested parties to investigate for themselves.  Experiences with buying from these sources can be reported to GG members via the FMS topic.