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      Guai-SupportTM Group   
Information & Support for Fibromyalgia

Sal-FreeTM Centre
 Salicylate Information. Includes data bases of Sal-FreeTM Cosmetics, Supplements & Helpful Items.

Established in October 1997 as a non-profit enterprise the original, international Guai-Support Network offers access to 'self-help' health education and support. Discussion revolves around all renditions of the guaifenesin treatment for FMS, CFS, CFIDS, ME, IBS, EDS, IC, MCS, NMH, RLS, VV, MVP, MPS under the GUAI topic.  Many other health issues such as HG, IR, reflux, Thyroid, Toxicity & reference to other theories & treatments for FMS/Cfids are welcome without a topic keyword.  Members have access to extensive archives.

If you appreciate the full spectrum of services I provide, both personally and through my management of the GG network, and want to help keep GG on-line please

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Help For Anyone Afraid To Post Messages To The Mailing Forum
Revised 6 June, 2009


Many people feel afraid to post to mailing groups for a variety of reasons.  This fear stops members from enjoying the full benefits of their membership and it is our desire to help you relish your experience here.  So, if you are afraid to post, read on and, we hope, by the end of this page your fears will be exorcised.

FEAR 1:  I don't know how to get my mail to the list.

FEAR BUSTER Get it in proportion

Whenever we’re learning something new we make mistakes.  Trial and error is an age-old human strategy for developing skills.  Just be glad we're not back at the dawn of time trying to learn what foods were safe for humans to eat; a mistake there could be lethal!

ACTION:

If you address your e-mail incorrectly it will not go anywhere 'dangerous'.  It will be rejected due to there being no mail box. However, if you choose a wrong address from your address book, it is another matter entirely.  In any event never write anything in email that might embarrass you. Make addressing your messages the most important aspect of writing your messages.  Address your letters to: GUAI-SUPPORT@COMMUNITY.LSOFT.COM;
(The above link will open your e-mail already addressed correctly)

Decide if you need the topic keyword according to the posting guide

Include subject keywords that define the content of your message

Write your letter

SEND your letter.

FEAR 2:  I am on review so if I make a mistake my letter will not appear on the list.

FEAR BUSTER:  Get it in perspective

Everyone who joins the list is on review to allow them time to learn and so we can help them.  There is no expectation that everybody is genetically designed to write to mailing lists.  Therefore, you are not somehow 'inferior' because you don't know this already.  Also, many members have memory and concentration issues as cognitive dysfunction is often a symptom of FMS/CFS so you are definitely not alone.

ACTION:
Follow the
posting guide which will help you write your letter to the best of your ability;
SEND your letter off;
If you receive a ‘resubmit’ letter from the moderator follow the editing instructions and resubmit;
If you don’t understand the instructions, 'REPLY ALL' with your questions.  

FEAR 3:  I may say something 'silly' and be embarrassed.

FEAR BUSTER:  There's safety in numbers

'Silly' is a relative term and who's to judge?  We have all said something 'silly' at one time or another; usually more often than that.  

ACTION:

If you think what you want to say may be too 'silly' and leave you open to embarrassment, run it by a friend or our Posting Mentor Wendy first for feedback.  I bet you'll find they don't think it's 'silly' at all.  If you're still not happy with it, ask Wendy to help you find a way to ask your question or respond to someone with alternate wording. 

The most important thing is to achieve what you want so you can feel part of the group and send your messages. 

We're here to help you SEND your letter. 

FEAR 4:  I think I may write something that is against the list rules and get into 'trouble'.

FEAR BUSTER:  Read the rules

If you fear that what you want to say may be an infringement of the list rules, check the posting guide 'do nots' and see.  The most important rule is the Safe Haven and it's easy to abide by it.  It just means ensures that you treat your fellow members the way you would like them to treat you, i.e., with respect and non-judgement.  A diverse membership means that everyone cannot do everything they want.  It's like a family, really.  Imagine having a family of 1,000 or more, all doing whatever they wanted regardless of what others wanted or needed.  You'd pretty soon be looking for a divorce or an adoption agency.

ACTION:

If you are unsure of the rules in relation to your post, even when you've checked the guidelines, ask Wendy, our Posting Mentor.  That's what she's there for; to help members.
Correct any ‘rule infringements’ in your letter;
SEND your letter.

FEAR 5:  I may use the wrong TKW (topic key word).

FEAR BUSTER:  This is NOT blasphemy

Topic Key Words (TKW’s) are not there to ‘catch you out’; they’re there to enable you to reach the audience of members who share your experience and have an interest in the subject on which you are writing.  There are 2 main reasons for getting your TKW right. 
1. If you put a TKW that does not ‘fit’ the material written, people interested in the topic on which you’ve ACTUALLY written may not see it. 
2.  People who have selected ‘out’ of the topic about which you have ACTUALLY written, will not appreciate receiving ‘off topic’ mail, so we try to avoid their having to receive it.

ACTION:
Check your letter for the main point/s you are making;
If your letter is about the Guai protocol, include the GUAI topic keyword. 

If not then there's no need for any topic keyword at all.

Be sure to add some ‘short and descriptive’ subject keywords to clarify what you’re talking about in the letter;

SEND your letter.  Then, RELAX. 

FEAR 6:  I’m afraid of being on review for what seems like ‘forever’ and the moderators may think I’m an ‘idiot’.

FEAR BUSTER:   We all live in a ‘glass house’ here

The policy is to set members to NOReview as quickly as possible and then send a 'gentle reminders' if they make a mistake. 

We all have FMS and we know people suffer from ‘fibrofog’ so our expectation is that people will sometimes, or often, experience difficulties when they are posting.  In addition, we know that many people are new to computers and/or mailing lists and we don’t expect expertise or any particular ‘rate of learning’.  Some people are ‘gifted’ when it comes to technology but most of us are not.  Many people writing to the list ‘labor’ over their letter for ages before sending it to the list and still complain that they ‘got it wrong, sorry’.  NO BIG DEAL.

ACTION:
If you've been on review after writing 5 or more messages to the list, without resubmit messages, contact us and check if we've overlooked setting you to NOREView.  

FEAR 7:  I don’t know how to write a ‘good’ letter and so can never write to the list.

FEAR BUSTER:  No one can express your thoughts and feelings better than you can yourself AND people want to ‘hear’ you.

ACTION:
This is a really good one because you get a personal tutor FREE OF CHARGE, our Posting Mentor Wendy!
Send her your ‘draft’ letter, explaining what you want help with (e.g., “I don’t think this makes sense” or “I think my punctuation is really poor” or “I’m not sure how to say this best”, etc.);
Ask for feedback;
TAKE the advice you want and IGNORE the rest;
SEND your letter once it is finalised because we really want to hear from you.

FEAR 7:  I'm afraid I will be removed from the list or not allowed to post any longer if I make too many mistakes.

FEAR BUSTER: You will not be removed from the list for making posting errors.

ACTION:
Get Help from
Wendy, our
Posting Mentor;
Check out the
posting guide
Keep posting because it's just not that big a deal.

 


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Guai-SupportTM Posting Guide
(includes step-by-step directions, link to topics info., etc.)
List Posting Mentor

Afraid To Post?
Abbreviations Used

Description-History-Philosophy
Management Notices

 

Guai-SupportTM Archives
Members can check previous
discussions & read their mail
here after setting NOMail.

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The Mind, Body ; Spirit Internet Store of Books, Music and Movies
 

(Book) by Esther and Jerry Hicks
This book presents the powerful basics of the original Teachings of Abraham. Within these pages, you'll learn how all things, wanted and unwanted, are brought to you by this most powerful law of the universe, the Law of Attraction. (that which is like unto itself is drawn)


Members can visit the
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Resources for ALL

Virus Information & Protection
Free E-mail Programs
Computer How-To

Recipe Sharing & Hints

Mindful Living
Allergy Info

Myths about M.E.

The GG Book Nook

Including

GG members' book Reviews

 


 

By Thaleakala Hew Len & Joe Vitale

 Zero Limits: The Secret Hawaiian System for Wealth, Health, Peace, and More

"This riveting book can awaken humanity. It reveals the simple power of four phrases to transform your life. It's all based in love by an author spreading love. You should get ten copies of it----one for you and nine to give away. It's that good."
---- Debbie Ford, New York Times bestselling author of The Dark Side of the Light Chasers
 

After 13 years of illness, some good things are happening, and I'm finally on my way to being totally well.  Books that set me on this path are:
Ri's Story - from "Recovery from CFS, 50 Personal Stories" by Alexandra Barton
AND
Zero Limits - Dr. Hew Len and Joe Vitale

Nadine Tull: Tri-State FMS Recovery - fmsrecovery@yahoo.com

 

And More Resources For All

More Information On FMS & About Other Diseases - Studies - Plus treatments offered


Guaifenesin Treatment
(gwye-FEN-eh-sin)

 

Guaifenesin effect seen in
Basic Treatment Instructions

FAQ: Guai Treatment
Blocking Test
Alternate Guai Scenarios
Treatment Troubleshooter
FAQ: Guai Product Troubleshooter
LA or QA Guai?
An evolving Protocol
Guai Product Report
Troubleshooting Progress Issues

Variable Higher Doses (VHD)
Testing Urine For Phosphates

Guaifenesin Sources

How to split capsules & tablets

Homemade Topical Guai
Guai quality control
History of Guai Product Protest

 

FMS & Guaifenesin
FAQ - FMS-DX-Guaifenesin.htm
Guaifenesin - Dr Starlanyl
Dr. Penniston Re FMS & GL

FMS/CFS & IBS (book)
Fibromyalgia & Guai. Therapy
FMS: Symptoms & Guai Theory
FMS & Uricosuric Agents 

Invisible Illnesses, Visible Stereotypes
 

Vulvodynia

Vulvar Pain Foundation
Low Oxalate Treatment
Low Oxalate Diet for VV

Responses to Misconceptions

 

St Amand Papers

FMS: Symptoms & Guai Theory
FMS & Uricosuric Agents 
Fibromylgia

Genitourinary Syndrome & Fibromyalgia 

Hypoglycemia

FMS & HG

 

            ********

1996 Oregon Study

Response To Oregon Study

 

           ********

2008 City of Hope Study
FibroAction article on Study


The Salicylate Issue
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Buy pre-screened Sal-Freetm cosmetics and supplements, incl. Guai

 

Search for sal-free, fragrance free, hypo-allergenic products or any combination of those.

 

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Can't find what you're looking for? 
Let us find it for you.

 

 

 

Range of Blood Pressure Monitors
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Magnetic Jewelry by SOS Magnetics

        

Hypoglycemia
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Type 2 Diabetes

Diabetes l & ll Breakthrough  NEW

The GG Book Nook
Insulin Resistance Syndrome

Insulin & its Metabolic  Effects

Carbs Information

Carbs in All Types of Food and Drink
Bonny's LowCarb Tips/Recipes
GG Members' Low-Carb/GI Recipes

Bonny Talks About Xylitol

Bonny Talks About Polyols

Bonny's Coconut Links & Information

FAQ: Hypoglycemia &
Hypoglycemia Diet

Low-Carb Cooking

Low Carb Diets

Slow Start To Low-Carb

RHG, IR: FMS & CMP
HG Support Foundation
Take the HG Quiz & More
SU GI Database
Low Carb Diet for HG Pt 1
Brief Survey-Diets & Books Pt 2

Plus Size Health Information

 

Doctors & Mappers
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...and more...

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Mastering Emotions
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Shopping
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Members Surplus Exchange
Guaifenesin Sources 

 

 


 Now also selling Guai-Aid

Please say you were referred by Tesa
 

Miracle Mineral Solution
   

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DVD - Understanding MMS: Conversations with Jim Humble
A feature-length documentary on the origin, science, and proper use of the MMS protocol to disinfect the waters of the human body with chlorine dioxide.  Produced and directed by Adam Abraham.

 




 

(Whole Wellness Club) 

   

       And for Some Fun

    I'm a Damien Leith Fan

 


       Xlear Australia
 

   The GG Book Nook

            Including

GG members' book Reviews

 

 

 

Fibromyalgia, Chronic Fatigue & Irritable Bowel: Treating Symptoms Treating Cause

By Dr Gregory K. Penniston
(The re-titled new edition to
The Guaifenesin Guide)

A unique book that gives sufferers and their families clear explanations and practical information on every type of treatment for these distressing and hard to manage disorders. It dispels the misconceptions, that lead some people to dismiss these conditions, with thoughtful explanations and reasoning. This book gives emphasis to eliminating the conditions by addressing their 'cause', with a commonly used 'over-the-counter' medication, guaifenesin and provides detailed, easy-to-follow guidelines.

 

 

              

 

Examining Guaifenesin

      

 

 

Parting the Fog: The Personal Side of Fibromyalgia/Chronic Fatigue Syndrome

By Sue Jones, a GG Member

Parting the Fog" is a candid, first person account of what it is like to walk in the shoes of someone suffering from fibromyalgia/chronic fatigue syndrome. It relays the seriousness of this condition in an easy-to-read manner, while employing humor and focusing on hope.

 

 

 

 

 

 

Crack Up at the Wake of Dawn: Everyday Poetry to Incite and Delight Your Soul

Another great Book from our GG Member Sue Jones!  If you are a fan of "Parting the Fog", you won't want to miss this book. Although it isn't specific to fibro, you WILL find chapters you can closely relate to, since many topics are dealt with. Some of the poems may make you cry, others make you laugh, and still others trigger a thought or give you greater insight. Whichever the case, you won't be left unaffected.

 

 

 

 

 

 

 

 

Take My Hand: The Extraordinary Story of a Girl Named Janis

In Take My Hand, Audrey Revell (a long time member of GG) paints a vivid and moving picture of the life and indomitable spirit of her daughter Janis, an exceptionally talented musician and composer despite having lost her sight as a child together with progressive hearing loss.

 

 

 

 The Places That Scare You: A Guide to Fearlessness in Difficult Times

By Pema Chodron

 

Getting Unstuck: Breaking Your Habitual Patterns & Encountering Naked Reality

By Pema Chodron

 


 I Remember Me

 

 
 Fibromyalgia: Show Me Where It Hurts DVD

 

Swanson's has a huge selection of products at very good prices.  Please check the ingredients with our Ingredient list at Sal-FreeTM Ingredients and if you cannot find something there please write your questions to the mailing list under the SAL topic
Not a member yet?  Click here to join.
 

Sales, Coupons And Great Deals at 
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Web Shop Emporium
Buy pre-screened Sal-Freetm cosmetics and supplements, incl. Guai

 

 

WSE Merchant Directory

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Household

 

     Australian Money Saving Tips

Compounding On Oxford
In Western Australia
Guaifenesin, DHEA, etc
Click here for more information
7.5% if you say you were referred by Guai-Support

 


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Procedures to acquire free drugs for needy clients. There are many many resources here that perhaps you can either share with your doctors willing to go the extra few steps to help, or friends who need financial assistance:  Volunteers in Health Care

Web Site Flyer
can be printed out and given to your doctor.  S/he can then print it out for his or her FMS patients, and their waiting room.  You can print & pass out copies as you encounter people interested in the protocol & the Guai-Support group.

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The information on this web site comes from many sources, including: Dr. R. Paul St. Amand, his assistant Claudia Marek, members past & present of the Guai-Support Group Mailing list and others consulted on various topics. It is not meant to be medical advice, but rather helpful hints on this journey. Please consult with your Health Care Professional.

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The information on this site is the property of the Guai-Support ListOwner Tesa Marcon: vashtii@optusnet.com.au  
(& various authors).  If you wish to publish anything from this site, or use the mailing list to gather information for same, please request her permission.