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Help
For Anyone Afraid To Post Messages To The Mailing Forum
FEAR 1: I don't know how to get my mail to the list. FEAR BUSTER: Get it in proportion Whenever we’re learning something new we make mistakes. Trial and error is an age-old human strategy for developing skills. Just be glad we're not back at the dawn of time trying to learn what foods were safe for humans to eat; a mistake there could be lethal! ACTION: If you address your e-mail incorrectly it will not go anywhere 'dangerous'. It will be rejected due to there being no mail box. However, if you choose a wrong address from your address book, it is another matter entirely. In any event never write anything in email that might embarrass you. Make addressing your messages the most important aspect of writing your messages. Address your letters to: GUAI-SUPPORT@COMMUNITY.LSOFT.COM;(The above link will open your e-mail already addressed correctly) Decide if you need the topic keyword according to the posting guide Include subject keywords that define the content of your message Write your letter SEND your letter. FEAR 2: I am on review so if I make a mistake my letter will not appear on the list. FEAR BUSTER: Get it in perspective Everyone who joins the list is on review to allow them time to learn and so we can help them. There is no expectation that everybody is genetically designed to write to mailing lists. Therefore, you are not somehow 'inferior' because you don't know this already. Also, many members have memory and concentration issues as cognitive dysfunction is often a symptom of FMS/CFS so you are definitely not alone.
ACTION: FEAR 3: I may say something 'silly' and be embarrassed. FEAR BUSTER: There's safety in numbers 'Silly' is a relative term and who's to judge? We have all said something 'silly' at one time or another; usually more often than that. ACTION: If you think what you want to say may be too 'silly' and leave you open to embarrassment, run it by a friend or our Posting Mentor Wendy first for feedback. I bet you'll find they don't think it's 'silly' at all. If you're still not happy with it, ask Wendy to help you find a way to ask your question or respond to someone with alternate wording. The most important thing is to achieve what you want so you can feel part of the group and send your messages. We're here to help you SEND your letter. FEAR 4: I think I may write something that is against the list rules and get into 'trouble'. FEAR BUSTER: Read the rules If you fear that what you want to say may be an infringement of the list rules, check the posting guide 'do nots' and see. The most important rule is the Safe Haven and it's easy to abide by it. It just means ensures that you treat your fellow members the way you would like them to treat you, i.e., with respect and non-judgement. A diverse membership means that everyone cannot do everything they want. It's like a family, really. Imagine having a family of 1,000 or more, all doing whatever they wanted regardless of what others wanted or needed. You'd pretty soon be looking for a divorce or an adoption agency. ACTION:
If you are unsure of the rules in relation to
your post, even when you've checked the guidelines, ask Wendy, our
Posting Mentor. That's what
she's there for;
to help members. FEAR 5: I may use the wrong TKW (topic key word). FEAR BUSTER: This is NOT blasphemy
Topic Key Words (TKW’s) are not there to ‘catch you out’; they’re there to
enable you to reach the audience of members who share your experience and have
an interest in the subject on which you are writing. There are 2 main reasons
for getting your TKW right. ACTION: Check your letter for the main point/s you are making; If your letter is about the Guai protocol, include the GUAI topic keyword. If not then there's no need for any topic keyword at all. Be sure to add some ‘short and descriptive’ subject keywords to clarify what you’re talking about in the letter; SEND your letter. Then, RELAX. FEAR 6: I’m afraid of being on review for what seems like ‘forever’ and the moderators may think I’m an ‘idiot’. FEAR BUSTER: We all live in a ‘glass house’ here The policy is to set members to NOReview as quickly as possible and then send a 'gentle reminders' if they make a mistake. We all have FMS and we know people suffer from ‘fibrofog’ so our expectation is that people will sometimes, or often, experience difficulties when they are posting. In addition, we know that many people are new to computers and/or mailing lists and we don’t expect expertise or any particular ‘rate of learning’. Some people are ‘gifted’ when it comes to technology but most of us are not. Many people writing to the list ‘labor’ over their letter for ages before sending it to the list and still complain that they ‘got it wrong, sorry’. NO BIG DEAL. ACTION: FEAR 7: I don’t know how to write a ‘good’ letter and so can never write to the list. FEAR BUSTER: No one can express your thoughts and feelings better than you can yourself AND people want to ‘hear’ you. ACTION:
FEAR 7: I'm afraid I will be removed from the list or not allowed to post any longer if I make too many mistakes. FEAR BUSTER: You will not be removed from the list for making posting errors. ACTION: Get Help from Wendy, our Posting Mentor; Check out the posting guide Keep posting because it's just not that big a deal.
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Afraid To Post?
Guai-SupportTM Archives
The
Mind, Body ; Spirit Internet Store of Books, Music and Movies
(Book) by
Esther and Jerry Hicks
Virus Information &
Protection Including
By Thaleakala Hew Len & Joe Vitale
Zero Limits: The Secret Hawaiian System for Wealth, Health, Peace, and More
"This riveting book can awaken humanity. It
reveals the simple power of four phrases to transform your life. It's all based
in love by an author spreading love. You should get ten copies of it----one for
you and nine to give away. It's that good."
After 13 years of illness, some good
things are happening, and I'm finally on my way to being totally well. Books
that set me on this path are: Nadine Tull: Tri-State FMS Recovery - fmsrecovery@yahoo.com
And More Resources For All More Information On FMS & About Other Diseases - Studies - Plus treatments offered
Guaifenesin
Treatment
Guaifenesin effect seen in
FAQ: Guai Treatment
Variable Higher Doses (VHD)
Vulvodynia
Vulvar Pain Foundation
Genitourinary Syndrome & Fibromyalgia
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2008 City of Hope Study
Salicylates &
Sal-FreeTM
Cruelty & Sal-FreeTM Gifts!
Range of Blood Pressure Monitors
Magnetic Jewelry by SOS Magnetics
Carbs in All Types of Food and Drink
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The
Spoon Theory The Fibromyalgia Assistance Foundation More Resources (FMS Tools, Research/Treatments, etc.)
Mastering Emotions
Shopping
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Please say you were referred by Tesa Sal-FreeTM
And for Some Fun Including
Fibromyalgia, Chronic Fatigue & Irritable Bowel: Treating Symptoms Treating Cause
By Dr Gregory K. Penniston A unique book that gives sufferers and their families clear explanations and practical information on every type of treatment for these distressing and hard to manage disorders. It dispels the misconceptions, that lead some people to dismiss these conditions, with thoughtful explanations and reasoning. This book gives emphasis to eliminating the conditions by addressing their 'cause', with a commonly used 'over-the-counter' medication, guaifenesin and provides detailed, easy-to-follow guidelines.
Parting the Fog: The Personal Side of Fibromyalgia/Chronic Fatigue Syndrome By Sue Jones, a GG Member Parting the Fog" is a candid, first person account of what it is like to walk in the shoes of someone suffering from fibromyalgia/chronic fatigue syndrome. It relays the seriousness of this condition in an easy-to-read manner, while employing humor and focusing on hope.
Crack Up at the Wake of Dawn: Everyday Poetry to Incite and Delight Your
Soul Another great Book from our GG Member Sue Jones! If you are a fan of "Parting the Fog", you won't want to miss this book. Although it isn't specific to fibro, you WILL find chapters you can closely relate to, since many topics are dealt with. Some of the poems may make you cry, others make you laugh, and still others trigger a thought or give you greater insight. Whichever the case, you won't be left unaffected.
Take My Hand: The Extraordinary Story of a Girl Named Janis In Take My Hand, Audrey Revell (a long time member of GG) paints a vivid and moving picture of the life and indomitable spirit of her daughter Janis, an exceptionally talented musician and composer despite having lost her sight as a child together with progressive hearing loss.
The Places That Scare You: A Guide to Fearlessness in Difficult Times By Pema Chodron
Getting Unstuck: Breaking Your Habitual Patterns & Encountering Naked Reality By Pema Chodron
Swanson's has a huge selection of products at
very good prices.
(Supplements & Medications)
Foreign Exchange Calculator
Procedures to acquire free drugs for needy clients. There are many many
resources here that perhaps you can either share with your doctors willing
to go the extra few steps to help, or friends who need financial assistance:
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The information on this site is the property of the Guai-Support ListOwner Tesa Marcon:
vashtii@optusnet.com.au
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