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      Guai-Support Group   
Information & Support for Fibromyalgia

Sal-FreeTM Centre
 Salicylate Information. Includes data bases of Sal-FreeTM Cosmetics, Supplements & Helpful Items.

Established in October 1997 as a non-profit enterprise the original, international Guai-Support Network offers access to 'self-help' health education and support.   Discussion revolves around all renditions of the guaifenesin treatment for FMS, CFS, CFIDS, ME, IBS, EDS, IC, MCS, NMH, RLS, VV, MVP, MPS along with many other health issues such as HG, IR, reflux, Thyroid, Toxicity, etc., reference to other theories about FMS.  Other health conditions & treatment possibilities are referenced here and discussed under appropriate topic in the mailing list.  Members have access to extensive archives.

If you appreciate the full spectrum of services I provide, both personally and through my management of the GG network, and want to help keep GG on-line please

Search GG web site
 Mission Statement 

GuaiCycling MarketPlace

Economic Guai, Sal-FreeTM Products & More

 

Human Interest Animal Interest
                                    

 


Detailed Membership Help & Information Guide (DMG)
Revised 23 January, 2008

Do not print out this document till you see how long it is - print out the  Brief Posting Tips guide instead but even that is best utilized here on the web site, and perhaps the Topics explanations section.

Click her to access the Guai-Support Membership Welcome

Mission Statement - Network Disclaimer - Description/History/Philosophy

OFFICIAL POLICY:
All decisions regarding list management are the sole responsibility of the ListOwner Tesa Marcon.  L-soft merely provide the hosting service.   Subscribers who do not agree with the style of list management are free to leave the list. Complaints to L-soft administration regarding list matters may result in removal from the GG list.  See Troubleshooting section for how to deal with problems and questions.

WELCOME TO THE LIST
I hope you enjoy your stay here and that it is of benefit to you in your path to wellness. ListOwner: Tesa Marcon

The list is known as the GG (Guai Group) thus the logo [GG] (since abbreviations omit hyphenated words) & the subscribers known endearingly as Guais.
(Note 2002:  not to be confused with the 'newer/younger' group who elected to utilise this name.)

Continued subscription to this list is at the sole discretion of the ListOwner and your choice to remain constitutes agreement by you to abide by these g/lines.  You can be removed for unacceptable behaviour.


There are detractors of the Guaifenesin Protocol and you will find them on most other FMS forums.  This forum is a SAFE HAVEN for those who genuinely want information to help them make a decision or who have already chosen to follow a Guaifenesin protocol.  Legitimate questions and discussion very welcome.

It is not expected that you will remember all the rules and guidelines.  I realize this is a very long document but that is because it is a complete reference sheet to cover the details of all the rules, how to get treatment info, what to do if having mailing problems, and more.  It is to be used in conjunction with the more concise Brief Posting-tips, and its Last Minute CheckList (the latter should be used till you are adept at posting.

Make use of the Contents Directory to access the section you need at a given time (see Navigating the Guidelines)

This is a private List and the messages are archived. Only members can read the archives but anyone can sign on to read them and then sign off again so don't write anything you aren't prepared to let the world at large see.  Don’t utilize the archives for personal gain without the express and written permission of the ListOwner and the author of messages. 

Members who post to this list retain their copyright but grant a non-exclusive license to the ListOwner to forward any message posted here and their letters may be quoted on the list by other members . They also grant the list owner permission to maintain an archive (i.e. approve the archiving of list messages) and utilize their messages on the web site to help visitors and members to the site (anonymity will be maintained unless permission is given to use name). Posts entered in to the archives will not be removed.  See
Network Disclaimer.

Other use of e-mail to this list requires the permission of individual writers and the ListOwner.

Members MUST read all the Admin. messages - They arrive under "ALL" in the subject line.

                         Contents Directory
  

1.    Members Responsibility (essential reading);
1a.  Review Status (essential reading);
2.    Admin Assistance
3.    Description, History, Philosophy & Acknowledgements
4.    Important Addresses (mailing to List, commands, archives),
5.    Posting Parameters (rules for posting to the list - see also 14)

5a   Abbreviations  
5b.  Dr Penniston's Nonplus Conditions

6.    Quoting parameters
7.    Appropriate Conduct (do not reprimand other members)
8.    All About Topic & Subject Keywords (SKW & TKW)
9.   Treatment Information (how to access it)
10.  Subscription Renewal Probe (list management tool)
11.  Join, Leave, Change Name/Address, Set Mail Options (digest, nomail, etc)

12.  Troubleshooting     Not Receiving Mail     including Virus Protection      SPAM
13.  More concise posting guide (a must)
14.  Navigating the Guidelines (some helpful points)
15.  Why Have Rules?
16.  Guai-SupportNetworkDisclaimer.htm


1.    Responsibility of subscribers

It is the responsibility of all subscribers to access help through these options so as to make their list experience more enjoyable:

  • The Brief Posting Tips LastMinute CheckList section is a quick way to check if your messages are formatted in the best way to serve your needs as well as your fellow members;
  • refer to the 'troubleshooting' section when problems arise with your mail;
  • ask our posting mentor Wendy for help and/or clarification for any problem at all;
  • read the GG web site and archives for Treatment information and/or write to the list;
  • manipulate your subscription options to suit you best, asking Wendy for help if/when needed;
  • Read the Fear of Posting document if needed.  ;-)

We are here to serve but cannot do so optimally if, when you have problems, you don't seek further help from us. 

The list is a gift not a right.  Given that you accept it, as is evidenced by your continued subscription, I appreciate that you do so graciously.  :-)

1a                            Review Status
The purpose of review is not punishment.  It is a necessary tool while learning to post.  It is an opportunity for us to help you learn to post in a way that serves you and other members best.  It may occasionally be used to protect the membership from disruption but that has only ever been a very rare occurrence.

New members are automatically set to review in order to ascertain that they are complying with the guidelines.  Review status is temporary till the new subscriber has demonstrated they can post. 

When you are on review you will receive an automatic message to tell you your email has been submitted to a moderator, I.E.

"Your message dated .......... with subject ".........." has been submitted to the moderator of the GUAI-SUPPORT list:....etc...."

This is normal and can be ignored.  When the moderator has looked over your message and okays it, it will be sent to everyone who receives the TKW that you put in the Subject line.  If the moderator thinks alterations need to be made, she will send you an email telling you what needs to be done and how to resubmit.  It contains the wording 'RESUBMIT REQUEST' in the subject line.  This is not a "reprimand" from the moderator, but an opportunity to educate.  If you don't understand what is needed simply choose 'reply' and ask for further clarification.  State exactly what it is you don't understand. We are here to help you so we expect these questions.

If you post incorrectly after being taken off review you may receive a gentle reminder notice to help with future posting.  Occasionally, if you are having a lot of trouble with posting you might be set back to REVIEW just so we can help you further.

While on REVIEW there is sometimes a delay before you see your mail on the list.  Your mail is NEVER ignored.  If it doesn't reach the list and you don't receive a personal response from a moderator please let our moderator and posting mentor  Wendy know.

Please check the origin of an email before replying to the list. If a person has replied both to you directly and posted to the list, you will receive two copies of that post. The copy sent directly to you must be considered private correspondence until such time as you see an identical post appear on the list.

To check the status of an email, look at the "To:" line in the email - if it has your address as well as the list's address, then this particular email is a private copy. This becomes important when the sender is on review as the post may or may not go through to the list, or be edited first, thus causing a delay and changes. Wait for the list copy to arrive in your mail box before posting a reply to the list. Replying to the list before seeing the message arrive there, will only confuse other members who have not yet seen the original message.

2.             Admin Assistance

3.  Description, History & Philosophy of the Guai-Support Network  

4.                      Important Addresses

Click here to send messages to all the other members on the list  

Click here to send or reply to messages via the archive interface.

Click here to change mail options and alter topic settings via email 


Click here to signoff, subscribe or change membership settings via the web interface

Click here to search the archives of past messages & read the list mail.  You can also send original messages and/or reply to list mail from archives if you wish
(click here for instructions)

Sal-Free Coping Strategies (Medications/Supplements/home remedies).

ListOwner/Manager; Tesa Marcon
Personal Assistants 
Wendy Howard: Posting mentor/Buddy Coordinator/Moderator/Personal assistant

Magi Marcon Admin/Personal Assistant

Terry K: Project assistant /Sal-Consultant- do not contact please

Bonny: Guai-Support Group HG/Low-Carb Diets, Healthy Eating and Cooking/Food Tips Mentor.  She posts helpful recipes and insights to the list and responds to email questions as well.  Her items are duplicated on Bonny's Low Carb Links, Tips and Recipes page and, when appropriate, other areas of the site.  Please direct queries regarding these topics to the Guai-Support mailing list unless they really are confidential.  Bonny will respond a.s.a.p., so the GG membership can explore even more helpful-n-healthy habits along with you.  Not a member yet?  Click here to join the Guai-Support Group.


See the link panel to the right for Treatment & Salicylate information and Brief  Posting Tips guide.

5.      Posting Parameters (how to post to the list)
Posting and/or receiving messages are subject to the rules and guidelines as determined by the ListOwner. Some or all messages from a subscriber may be declined for ANY reason by the ListOwner.  It may be suggested that one edit their message to keep within the parameters of the list's mission, however, the decision to resubmit or not is entirely up to the subscriber.

*Note: The GG List isn't designed to meet the needs of the whole FMS community, only those interested in, or following, the Guaifenesin protocol.  You can however discuss other research and treatments under the FMS topic and other health issues under the PLUS topic so long as the content of your message stays within the mission of the list and the 'safe haven' policy isn't violated.

 The list is set to reply to (original) sender when you choose "REPLY".
 If you wish to reply to the Guai-Support list you need to choose "REPLY TO ALL" on your message menu. "REPLY TO ALL" will also cause a reply to go to the original sender twice.

Please delete the original sender's address to save them from receiving two pieces of mail and to forestall a confusing chain of events that can be set off if either of you are set to review  (see note below).  Deleting the original address is easy to do.  Once you've chosen 'Reply To All' just select the original sender's address and press delete, leaving only the List address in the "To" field.   Sometimes you might have to switch the list addy to the TO field as at times it is in the CC field. 

Don't delete the original addy if you are changing the subject line to a new topic/thread if you are concerned the original sender will not receive the topic you are switching to (see section 8)

NOTE: If you do not omit the original sender's addy from your address field when replying to the list it can set off a confusing chain of events, i.e. IF your letter is held up via moderation while waiting for you to resubmit your letter the person you also responded to privately may respond to the list and thus, the members will be mightily confused having not been able to follow the 'back list' discussion.  IF both of you are still set to review, and depending on how long this goes on, it can be a time consuming and frustrating ordeal for both you and the moderator.

Please don't include any addresses in the Cc field of your message.  If you want non-list members to see your message you can forward it to them rather than copying them.  It is much more courteous to them anyway since if they chose 'reply to all' with replying they would receive a reject message from the ListServ.

It will save archive space if you don't leave unnecessary empty space in your messages  (normal paragraphs not included). An empty line takes up archive space.....it reads like typed characters so please start your messages at the topmost portion of your window and don't leave quote marks down the side of your messages with no typing alongside them e.g.
>
>
>
which is caused by hard returns.

>It's ok to leave them beside your quoting of course.

Double & triple spaces are not necessary.  Less will do.

Please keep signature lines brief.
A signature begins at the insertion of your name.  No advertisements for a product or service.

You might like to know how to create a signature line for your e-mail program which relates your FMS/Guai history for the Guai and Sal topics. 

Use it when asking questions or giving reports that will serve you or the other members. Constantly repeated information can really weigh the archives down so use it discriminately please Guais.  Although it takes a little more effort, if someone is curious about your history and you haven't posted it on a particular message, they can find your signature on previous messages in the archives.


Please do not post attachments to the list.  Files can contain viruses, can clog up mailboxes, can slow down the processing of other mail and can even crash some computers. Also some people have to pay by the byte for their Internet access. You may offer attachments, and any other items you wish to share (refer to topic info below), on the list and suggest that list members email you privately for a copy.

Do not send virus warnings to the list as oftentimes the warning is a hoax and can cause people to remove legitimate files from their computer.  Please check the information in our virus FAQ and if concerned and/or needing help please send information to Wendy Wendy posts regular and authentic virus warnings to the list.   Remember if you download and execute a program from any source, be it received via email, FTP or hyperlink you run a potential risk of acquiring a virus.

Always clean up your mail by eliminating mail headers in the body of email messages (ListServ can reject them because they can cause mail loops).  A header is the top of your email message that contains the address, FROM and TO plus CC fields along with the path the email took to reach you.  If you fwd a message the header will be left in (best not to forward message because there is extra work in cleaning them up and ensuring your message reaches its topic destination.

Please post URLs/LINKS rather than whole information about anything that can be found on the net.

Do not discuss politics or religion or request that members sign petitions for these or any other purpose.
 

Do not solicit the membership for any purpose outside our agenda.  Please keep in mind that all messages must be suitable for an International list dedicated to supporting FMS sufferers following a Guaifenesin protocol.  Our membership is diverse; made up of people of all religions, political persuasions and belief systems.  Spiritual messages of support or requests/offers for any type of energy healing, prayer, etc., may go to OTHER topic.  All spiritual and /or religious denominations/practices/modalities may use this subject line.

Do not send chain letters (where you prevail on members to fwd the letter to others) no matter how genuine the message may be.  We do have a Human Interest page on the web site however and you can submit items to if you wish.

                               Privacy a critical issue

Please don't forward messages to other lists or people without the writer's express permission.
  
Don't cross post messages to several lists (don't CC several lists).  Don't forward messages from other lists or people to the GG please. Only subscribers to the Guai-Support list can post to it.  

Do not refer to, respond to, or quote someone's private messages to the list without their permission.

Do not send another member's message to the list for them because by doing that they evade the review process & learning to post.  If someone wants to ask specific questions about posting our posting mentor will gladly help them.  Also they could read Afraid to Post which will perhaps put things in perspective.   Extenuating circumstances need to be addressed to me.  If someone hasn't got a computer and needs answers then of course you can be their proxy.

If your post is anything out of the ordinary and you are the least unsure of its suitability to the list please send it to me for consideration first. I am quite happy to help you get your information to members if it may be beneficial to them - please discuss unique items with me and I'll decide the way the information is given or sought.   Please request permission to post to the  ALL (admin) topic

If you are writing a long letter please use clear paragraphs for those with difficulty reading.  Long letters are totally acceptable although you may need to send in parts because our line numbers are somewhat limited to curtail the possibility of viruses slipping through.

Your Email Program should be set to plain text
so that your posts will be readable by all subscribers regardless of their computer and email program so please don't use HTML or any other formatting on the List. Plain US-ASCII only e.g. - no text/enriched - no charset="x-user-defined" - no charset="iso-8859-1 - no HTML - no attachments (invite members to privately request it) - no winmail.dat files - no multipart/mixed - no multipart/signed - no multipart/alternative - no multipart/related - no quoted printable MIME encoding - no Content-Transfer-Encoding: quoted-printable - no Content-Transfer-Encoding: base64 - no multi-part message in MIME format.  
Click here
for help to set plain US-ASCII on your system:

Some suggested
abbreviations
which may make typing messages somewhat easier for you:

TKW: Topic Keyword
SKW: Subject Keyword
DMG: Detailed Member Guide
BPT: Brief Posting Tips
LMCL: LastMinute CheckList
LO: ListOwner

Guai: Guaifenesin
Guais/Guai'ers/Wise Guais: All those on Guai (gender neutral)
BG: Before Guai
OG:  On Guai
T&L's: Tendons & Ligaments
LA: Long-acting
ER: Extended-release
SR: Sustained-release (LA, ER & SR are all the same)

QA: Quick-acting
IM: Immediate-release
RR: Regular-release (QA, IM & RR are all the same)

Q+LA: Quick-acting/Long-acting Combination
LACCLong-acting Compounded Capsules

QACC: Quick-acting Compounded Capsules

QACTC: Quick- acting Compounded Topical Cream

QAHMTL: Quick-acting Home-made Topical Lotion 

 

LTD: Lowest Therapeutic Dose

HTD: Highest Therapeutic Dose

FF = Fibro Fog (cognitive dysfunction)
Sal's or Sals = Salicylates
DD = Dreaded Disease/Damned Disease
          Doomed Disease (Tesa's perception) 

GP: General Practitioner
NIH: National Institutes of Health
NP: nurse practitioner
PCP: Primary Care Provider
tx: treatment
Rx: prescription
HX: history
mg: milligram
ml: milliter
FDA: Food and Drug Administration
RDA: recommended daily allowance
FD&C (colors): food, drug & cosmetic
D&C: (colours): not for ingestion. 
iu: international unit
prn: as needed
tid: three times a day
tds: three times a day
qid: four times a day
q8h: every 8 hours
qod: every other day
q72h: once every 3 days
bd: two times a day
bid: two times a day
OTC: over the counter

abx: antibiotics
AB = Antibiotic
AV = Antiviral
HP = Homeopathic
NSAID: non-steroidal antiinflammatory drug (examples ibuprofen, naprosyn)
MTX = methotrexate

BB = Borrelia burgdorferi

HG = Hypoglycemia
ALC = Atkin's Low Carb
LHG = Liberal Hypoglycemia Diet (Paul St Amand)
SHG = Strict Hypoglycemia Diet (Paul St Amand)
SS = Suzanne Somers
CAD = Carbohydrate Addict's Diet
PD = Paleolithic Diet

MPS: Myofacial Pain Syndrome
ME: myalgic encephalomyelitis (name used in some countries for CFS/CFIDS)
MVPS: mitral valve prolapse syndrome
GERD = Gastroentestinal Esophogeal Reflux Disease
ID: infectious disease
AI: autoimmune
HTN: hypertension
ISAC: Immune System Activated Coagulation
POTS: Postural Orthostatic Tachycardia Syndrome
PWC: persons with chronic disease RA: Rheumatoid Arthritis
sACE: serum angiotension converting enzyme
SLE: systemic lupus erythematosus
SOB: short of breath (dyspnea)
TBD: tick-borne diseases
TNF: tumor necrosis factor
HX: history
ID: infectious disease
GI: gastrointestinal
HBP: High Blood Pressure
LBP: Low Blood Pressure

ALT: alanine aminotransferase (a liver enzyme)
ANA: antinuclear antibodies 
ARB: angiotensin receptor blocker
BMD: bone mineral density
BP: blood pressure
BS: blood sugar
BUN: blood urea nitrogen ( kidney function test)
CBC: complete blood count
CRP: C-Reactive Protein (monitors generalized inflammation)
CPK: creatine phosphokinase
CT: cat scan or computerized tomography
CWD: cell wall deficient
CXR: chest xray
ECG: electrocardiogram (also EKG)
ENT: ear, nose, throat
ESR: erythrocyte sedimentation rate (SED rate)
hgb: hemoglobin
UA: urinalysis
PCR: polymerase chain reaction
PFT: pulmonary function test
Meds: Medications
Supps: Supplements
Meds/Supps: Medications & Supplements
Vits: Vitamins
Mins: Minerals
Vits/Mins: Vitamins & Minerals
MedCab: Medicine Cabinet

TIA = Thanks in advance
Thx = Thanks
FFR = For future reference
FFRO = For future reference only
OTOH = On the other hand
BTW = By The Way
ad lib: as desired
IMO = In My Opinion,
IMHO = In My Humble Opinion
IMV = In My View
FWIW = For what it's worth
TPTB = "The Powers That Be"
asap: as soon as possible
LOL = Laughing Out Loud/Lots Of Laughter/Lots Of Love,
YMMV = Your Mileage May Vary
Emotikon = :-) = Happy Smile
Emotikon = :-( = Sad Face
<g> = grin *g* = grin
SO = Significant Other
DH or MDH = Dear Husband/My Dear Husband
DW or MDW = Dear Wife /My Dear Wife

5b.    Dr Penniston's Nonplus Conditions (with abbreviations):
FMS: Fibromyalgia Syndrome
CFS: Chronic Fatigue Syndrome
CFIDS: Chronic Fatigue, Immuno Deficiency Syndrome
IBS: Irritable Bowel Syndrome
EDS: Ehlers-Danlos Syndrome
IC: Interstitial Cystitis
MCS: Multiple Chemical Sensitivity
Restless Legs Syndrome
VV: Vulvodynia
 

6.                      Quoting Parameters
                 
I know some find quoting rules annoying but without restricting them I might not be able to keep all the archives intact. 
My goal is to keep as many years archives online as possible as they are a great source of information.  Members can read the history of any thread in the archives by inserting the subject line into the appropriate search box.

Quote no more than necessary & locate them above your own responses

Don't leave previous posts attached to the bottom of your message.   Your email program may default to quoting the entire message (a common behavior) and sometimes this doesn't show in your mail window so your first response as a member should be sent to yourself so you can check that your mail settings comply with List rules.

Leaving the previous message attached  at least doubles the amount of text people read through in their email, and is especially hard on digest subscribers, who must read the original message and then skip past it again -- often more than once -- when it is quoted in replies.  Please quote no more than 10 lines.  Often much less is needed to establish context.

It's not always necessary to quote - Be sure to paraphrase however if you don't quote or refer to a particular item in your response and don't just say "yes" or "it" or some such.  Your audience wants to understand you..  The archives can be searched for back information on a thread (Subject line).

Please don't leave gaps in your, signatures, date/timeline or quotes.  Click here for  help on how to tidy quotes.

Please eliminate unnecessary quote marks down the side of your messages.  They are created by reply and forward of messages and empty lines (which are created by pressing *enter* on your keyboard), i.e.,

>
>

>

Please Set your email program's line lengths adequately so as not to have several lines of text where 1 or 2 lines would do (both for quoting and regular text).  Your email program will have information for setting line lengths - ask Wendy for help if you can’t find it.  Forwarding messages can sometimes cause this too so please always send fresh copies of messages to the list.

Do not leave greetings or signatures attached to quotes.  It's unnecessary and takes up precious space in the archives.

An example of an excellent quoting technique:
12 Jan, 2000 Helen wrote: "I received my RX for Guai.."
or:
00/01/12 Helen wrote: "I received my RX for Guai.."

Uniformity also makes the archives and digests more readable.

Don't quote headers in the body of the message.  If it is a post from a source other than the Guai-Support (group) List then please quote the source.

A "Header" in email vernacular refers to an information field, i.e.: the path the message has taken to arrive at its destination. It can be relatively small containing only your own sender, times, path and destination information or very long if it's been forwarded several times. It is located at the top of the email window/page.

A header in the body of your email is the usually result of *forwarding* mail to the List, either your own or someone else's.

Please don't post repeat posts to the List
whether it is because you wish to simply repeat the information to other members thinking they may not have seen it or because you sent it to the wrong topic and you are concerned it may miss many of your desired audience.  Your mail is in the archives so you can send the achive entry information so that members can go read it there. If anyone asks you to post a repeat you can either direct them to the archive copy (posting subject line/date) or offer to post it out to them privately.  If you think it is essential that you send a message again you can discuss it with me (Tesa) first.

7.                        Appropriate Conduct

        Consequences for Inappropriate behavior

Please don't advertise or try to sell your product on the list or privately to our membership.

That includes listing your web site in your signature or referring to the fact you sell/distribute a product when chatting to other members  privately. 

SPAM: Do not send unsolicited mail
to anyone no matter what the subject matter (includes any information where you might receive a financial reward or any other benefit). 

Do not solicit for funds for any person for any reason. 

Run any unusual message by me first to have it cleared.

'EXPRESSION OF INTEREST' is designated by the ListOwner and where it appears in a signature it denotes that the author is responding to problems with, or questions about, a particular product or service (including mapping) with which they are socially or commercially connected.  It is not intended to encourage or allow promotion of products or services on the list.  Once having been given permission by the ListOwner please insert this signature, including the link, on your letters:

'Expression of Interest'
http//www.psha-inc.com/guai-support/sf/DetailedMemberGuide.htm#ExpressionOfInterest

Any requests to operate outside this policy (e.g., where you believe a particular product, with which you have a connection, to be of benefit to members) must be addressed to the ListOwner.

There is to be no discussion of list rules, or my actions regarding your messages, on the list.  If you don't understand something I say to you please ask me for clarification.

List members' conduct in other forums:  People are at liberty to make any statements they wish, wherever they wish; they do not need my permission to do so. At the same time, I work extremely hard to provide this forum and I do not wish or expect that those who are taking what I offer will go elsewhere and malign me. If that is your intent or desire please have the courage of your convictions and the basic ethics to sign off first.

No Flaming: inflaming comments are not allowed and flouting of this rule may get you set to NOPOST or removed from the list completely (depending on severity of infraction).

No Put-downs regarding other people's treatment choices, including the choice NOT to follow the Guaifenesin Protocol , either in a particular way, or at all.  This list is about discussing your choice and disseminating information NOT about judging others. Remember please that there are members on this list who haven't yet made a decision to follow the Guai protocol.  Treat them with respect.

NO corrections or reprimands should be sent to a member privately or publicly (on the list): please write to me privately of you think a member  has given out incorrect information, or you are unhappy with the content of any message (including perceived SPAM). If this rule isn't adhered to,  it may well be that there will be a misunderstanding and a possible, unnecessary public humiliation. This could be emotionally damaging to anyone and more so to an innocent or naïve subscriber.  Please also treat myself and the mentors with the respect due to those who are giving their time and expertise freely to help you.  Private correspondence with me is always the preferred method of handling all complaints/problems; it is my responsibility, and is a kinder way to handle errors in content issues.

Discussion regarding FMS in general should be objective, by presenting your opinions as opinions and not disparaging the ideas of others (i.e. supportive and informative, not confrontational).

All e-mails posted remain the property of the sender and the ListOwner.  Always get permission before referring to or quoting  private message(s) on the List or before you repost their message somewhere else.

No comments regarding "imminent* suicidal intentions should be sent to the list or privately to members please (unless of course they invite you to talk to them about it ,but even then you should know that the average person isn't equipped to deal with such threats).  Members may become very concerned, as well as distressed, if someone posts a message which seems somewhat precipitate & action is possible (especially if it's connected to the information sent to the List regarding the protocol or the protocol itself).  It becomes very hard to give advice with so much bearing on one’s words.

You should also know that certain consequences *may* follow---that is a concerned person getting involved in a way which you perhaps wouldn't approve of i.e.: internet providers getting involved.  If this happens, we cannot predict what action may be taken by them in an effort to ensure your safety.

It is much better to talk with your family, friends and Health Care Professional in person than members of a mailing list. This isn't meant to dissuade you from talking about how you feel just reign it in a bit and be clear that you are talking with someone in person about any depression and that it hasn't anything to do with the Guai protocol but is a consequence of your ill health in general.

There is also a ListServ mailing list for those who contemplate suicide.

Consequences for inappropriate behavior
:  REVIEW, NOPOST (which will prevent one from posting to list until further notice), and SUSPENSION from the List are all possible consequences for rampant and deliberate disregard of the rules, for argument, abusive and offensive messages to me, a mentor or another member, or character assassination in other forums of myself or any member .  The consequence fits the violation.

You may approach me with request for permission to join again and I will address instances on an individual basis.

The ListOwner, Tesa Marcon, is the sole and final arbiter regarding the rules.

8. E-mail Subject Lines:
   
All about topics, including how to use and set them + subject keywords. 

9.       How to Access Treatment Information
Before asking questions of the other list members it is expected that participants will have first read the information available through the various means below. This is to ensure that people are not 'burnt out' answering the same questions repeatedly, and to save on archive space.

It makes sense to do the reading and listen in for a few days or more.

The information at this Web-Site. See link panel to your right. http:www.psha-inc.com/guai-support

Members please search the GG archives for past discussions on the mailing list:

You will be asked to register a password(PW). There is no specific PW - invent one.   If you have any problems at all please see the archive help page.

If you can't find answers to your questions in the archives please don't get hung up searching too long for your comfort - ask the List members after you've diligently tried.

If you go to "search for" or "help" on the archives search page you'll get plenty of good instruction. Over time it will all sink in. If you are not sure of something or how to search ask a mentor for help and advice.

If you have information not covered in the FAQs, and you think it's useful for all Guaifenesin users to know, please send it to me, and I will consider it for the GG web site.

10.                 Subscription Renewal Probe
A ListServ feature called 'Probe' has been implemented. You will receive the 'probe' message (every 93 days). It doubles as a List Guide providing information you may appreciate.

The "Probe" option makes subscription renewal passive rather than reactive; no "CONFIRM listname" response is needed from you.

11.   Click here to open a new page for help to Subscribe, Sign Off, Set Common Mail Options, Change e-mail address, etc.

 

Back to Top


12.                   Troubleshooting

Please do not write to L-soft with problems.
  See if this section covers your concerns and then if not please access Wendy, our  Posting Mentor, for help.  If she  cannot answer your question she will ask for my assistance.

[Note added 20 May 2004: We have had several members write privately for assistance recently, only to find that we cannot write back because of spam filtering on their email accounts.  If you write to us for assistance, and do not receive a reply within two days (this allows for time zone differences and other commitments), please check your spam filtering, and if the problem persists please consult with your ISP to determine the source of the problem.  Write again to the same person when this is sorted, so they know it is safe to resend their reply.  If you are still having problems, consider using another method of contact, e.g., another email address (free e-mail is available from services like Gmail, Yahoo, Hotmail, Mozilla Firefox, etc) or through Instant Messaging (also a free service).  Please be assured that we never ignore a request for assistance, so if no reply is forthcoming there is a problem somewhere in the line of communications.]

*  Always QUERY your account before bothering with anything else (see below).

* * Always refer to the guidelines if the question relates to posting or how to retrieve treatment information.

* If your message to the list returns a message stating 'you are not authorized to send mail from your <whateveraddyyousentitfrom@whichdomain.com> addy' please do a query for that address to see if you are actually subscribed under it. You might be subscribed under another address, in which case you will have to query all possible email addresses you have.  You can do so either by email or web interface as per above.

* If you find yourself no longer receiving messages you might have been removed from the list or set to NOMail due not setting
NOMAIL and leaving an 'away from office
' type auto response.   

* Before asking for help please always click on this link and send an email  to:
LISTSERV@COMMUNITY.LSOFT.COM

In the body of the email type the command: 
QUERY GUAI-SUPPORT

If you are not receiving list mail:

  • check your subscription via QUERY, and if all is in order
  • check your mailbox filters 
         (some mailbox filters detect mass mailings, such
         as those from the Guai-Support list and see it as
         SPAM then reject it.  Add the GG list, to your email
         approved list and your filter or mailbox protector
         will let the mail come through)
  • maybe your ISP has implemented some new spam blocking and is now filtering out messages that have a null return path.  The quick test for this condition is to send one message to: 
          LISTSERV@COMMUNITY.LSOFT.COM
         
    with the 2 line command

               THANKS
                INFO GUAI-SUPPORT

                
        
You should get 2 separate responses back.  
               
YOU'RE WELCOME to the first
                and information regarding Guai-Support to the 2nd.


NOT getting a response from the 2nd command (i.e.  INFO GUAI-SUPPORT)
always means the problem is with the member's service and is a strong indication of SPAM blocking technology.  If you get 2 responses consistently, then it is probably not a blocking problem.

Give the server at least a half hour to respond in case things are moving slowly.

If it looks as though the LISTSERV may be down, i.e. you are not receiving list mail but you are receiving other mail, do not take a chance on clogging the system by sending "Where is everyone?" or "Is the system down?" type messages through the lists.  Instead send the command:

THANK YOU
in the  body of an email message to LISTSERV@COMMUNITY.LSOFT.COM

If the system is up, you should get the polite response:
YOU'RE WELCOME


It also indicates how slow/fast the system is working. If the system is down, you'll get no response. Please wait patiently for mail to resume.  

As per above, if you are not receiving other mail it can also indicate that your own ISP is down or that the free email service you are using has a problem with mailing list configuration. You can talk to your ISP and see if you can sort out the problem.

If you think your mail isn't making it to the list check the current month's mail in the archives.   If it is not there do a QUERY on your account as per above.

These days, some web-based email services (e.g., Gmail, Yahoo & there are sure to be others following soon) do not forward a copy of your own post to you when you post, regardless of the settings you may have at the list.

It happens with other lists besides this one, using a range of different list programs. It is the email service, not the list software, and likely not something that is going to be changed in a hurry. One can get used to not seeing copies of their own posts arrive in their mail box but there are some things you can do if you want to know that your post went through okay.

1. There is a setting you can turn on in your membership settings so that you're sent an email to tell you when your post has been distributed - each and every time you post. It's located under 'Acknowledgements [ACK ... Norepro].  the ACK is for "acknowledge").

(If you want to know more about this or other settings, please go to the L-Soft Subscriber's Manual and go straight to page 19.)

2.  Check the archives and look for your post there.

3.   Wait for replies to be posted, either to the list or directly to you privately. That's a sure sign your post was received.

If you are on review, please remember that there may be a delay between sending your post, and Tesa or Wendy (depending on who is on duty at the time) taking a look at it, so please have a little patience.

If you have any questions or difficulties with this, please write to
Wendy privately with the details so I can help you.

If your e-mail to the List receives a rejection notice
on your next attempt please CC me at: 
GUAI-SUPPORT-REQUEST@COMMUNITY.LSOFT.COM

* Not clearing your mailbox and files on a regular basis can trigger a very unpleasant string of events.   Please ensure your mailbox is not full. Set yourself to NOMail if you are going to be away from your computer to avoid being set to DIGest or NOMail by me; this ensures that I don't have rejected mail filling my mailbox.  I have set auto-delete for bounced mail to 30 days, so if you don't sort out your mail problems in that time you will be deleted.

If your problem was only a transient error and you begin to receive mail again before 7 days you can set yourself back to Mail.  If not, and you've been deleted then you can re-subscribe.  This is not a punishment.   It's just necessary to make my job manageable and is used by all ListOwners

Some of the free email programs are problematic both because of the advertisements in the signatures and the rejects they cause.  You could find yourself set to NOMail due to my receiving loads of reject messages.  These free email services were recommended to me.  I have no personal experience with them however but they might be worth a trial.

Gmail, Yahoo, Hotmail, and AIM are free web-based email services.  All provide free Instant Messaging services, and provide a POP service which allows the emails to be downloaded to your own computer if you wish (but not all offer this for free).

This one doesn't insert advertising  (it can be down very occasionally for testing upgrades).  It's Novell's showcase server, running the latest of their business-class e-mail solutions. The "WebAccess" interface is especially clean and fast.  They offer a lot larger mailboxes (10MB vs 2MB at yahoo and hotmail) with pop3/imap access and there are no advertisements on either the website or tagged to your e-mails. 

http://www.myrealbox.com 

Zapzone

IncrediMail Xe build 934  popular

Eudora in free version

Eudora in Web mail version

Please follow good virus protection rules, i.e. don't open e-mail attachments. Use virus protection programs with e-mail scanning or use one of the free virus scanning sites.  Please don't send virus reports to the mailing list, or write that you've just received a virus.  Check them out at some of the sites listed in our virus info page first.  If they are legitimate and you are concerned please send Wendy the name of the virus and, when deemed necessary, she will send appropriate reports to the GG list.  Wendy has created the virus help page on this web site

SPAM Policy
Please add Guai-Support and Administrative Helpers to your Anti-spam programming or you will not receive mailing list mail or responses from admin.

Click here for addresses

13.             More Concise Posting Guide
It contains a 'Last Minute CheckList which must be used till you are adept at posting Brief Posting-Tips

14.                 Navigating the Guidelines
(a) Brief Posting Tips (BPT):

A concise posting guide containing brief instructions to assist in getting your mail to the list as painlessly as possible, a Last Minute CheckList plus some other helpful information.

 

(b) Your computer's FIND function:

This allows you to go to a designated item within the any document.


(c) The Contents Directory in the Detailed Member Guide 

(this guide)
 

(d) Ask Posting mentor Wendy for help if you still have problems.

Please make your questions specific so they can be more help.
 

15.                      Why Have Rules?
The rules are instituted for the benefit of a large and diverse community of Guai'ers, who each have different preferences.  They enable all members to get what they want rather than just a few and only if they are abided can the list operate effectively.  In fact this list's rules are not more restrictive than many other lists; each ListOwner decides how much they enforce their rules.  I'm well aware that many members have experienced much laxer enforcement on other lists but then again I've received many messages from members who prefer this list because of the outcome of the stricter enforcement of rules.  

The request to check that your mail complies with the guidelines, and the consequence of non-compliance are not intended as punitive actions, they are merely learning tools to facilitate smooth list operation and to cut down on a prohibitive workload (which is not restricted to merely moderating list messages).

Quoting restrictions conserve archive space ensuring that they can be kept on-line for as many years as possible.  They also make reading the list, particularly the digest, much easier.   Having topics in place means that people can choose particular topics in order to restrict their mail when it is too heavy for them, and in addition, good subject keywords enable members to filter their mail, read it or delete it without having to open to see what it is about.  Good conduct rules exist for obvious reasons.

Although many newbies are daunted by learning the topics and how to post correctly, if one follows the Mechanics of Posting guides and then checks their finished message against the Last Minute CheckList in the Brief Posting Tips guide (this one you're reading now), before pressing SEND, posting is simplified.  Being on review will also help you You can also remain a member without posting till you feel more inclined or ask Wendy, our posting mentor, for help when needed.

Easy does it and patience will make your GG experience very enjoyable.  In time many members appreciate that the rules are enforced.  

It is not however possible to please everyone and thus I know that this very structured mailing list will not always suit.  However, please keep in mind that this list is a gift, not a right.  If you can not accept the gift graciously, demonstrated through uncomplaining adherence to the rules and guidelines, please sign off.  If you do choose not to stay please know that I wish you well and that a net search will surely invoke a more suitable forum for you. 

Guai-Support Disclaimer

Personal Assistants to the ListOwner/Manager  Tesa Marcon
 

Home
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To join GG, click here
To sign off GG, click here
(An alternate option is to set NOMail to retain access to archives but not receive mail - click here for directions & more account options)

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Posting Guide
(includes step-by-step directions, link to topics info., etc.)
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Detailed Member Guide


Guai-Support Archives
Members can check previous
discussions & read their mail
here after setting NOMail.

        -----ooooo-----
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Members can visit the
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Resources for ALL

Virus Information & Protection
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Allergy Info

Myths about M.E.

 

And More Resources For All

More Information On FMS & About Other Diseases - Studies - Plus treatments offered

 

     Australian Money Saving Tips
Guaifenesin Treatment
(gwye-FEN-eh-sin)
Basic Treatment Instructions
FAQ: Guai Treatment

Blocking Test
Alternate Guai Scenarios
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LA or QA Guai?
An evolving Protocol
Guai Product Report
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Variable Higher Doses (VHD)
Testing Urine For Phosphates

Guaifenesin Sources

How to split capsules & tablets

Homemade Topical Guai
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History of Guai Product Protest

 

FMS & Guaifenesin
FAQ - FMS-DX-Guaifenesin.htm
Guaifenesin - Dr Starlanyl
Dr. Penniston Re FMS & GL

FMS/CFS & IBS (book)
Fibromyalgia & Guai. Therapy
FMS: Symptoms & Guai Theory
FMS & Uricosuric Agents 

Invisible Illnesses, Visible Stereotypes
 

Vulvodynia

Vulvar Pain Foundation
Low Oxalate Treatment
Low Oxalate Diet for VV

Responses to Misconceptions

 

St Amand Papers

FMS: Symptoms & Guai Theory
FMS & Uricosuric Agents 
Fibromylgia

Genitourinary Syndrome & Fibromyalgia 

Hypoglycemia

FMS & HG


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